Services You Can Get Through TelehealthTelehealth or virtual care can be used to access many different types of health services. To get started, talk to your doctor to find out which virtual services are right... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Five CF-Related Spring Cleaning Tasks To Add To Your To-Do ListSpring is here! We made it! The snow is melted, revealing green grass (hopefully), birds are chirping, flowers are blooming, and the days are growing longer. With spring making its arrival... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Prednisone FaceHaving cystic fibrosis involves taking so many medications and, unfortunately, each and every one of them has side effects. Each one takes its toll on us and leaves a mark... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Preparing for a Virtual Visit with Your DoctorVisiting your doctor online is a great way to get healthcare if you are not able to go in person. You can get medical advice, visual assessments, treatments, or update... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Becoming Mom: My Path to CF Motherhood (Part 1)I distinctly remember the day I realized cystic fibrosis was the reason I wouldn’t go through pregnancy and become a mom. This realization came as a result of a summer... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Telehealth 101: How to Visit Your Doctor OnlineTelehealth is a virtual service that lets patients interact with a healthcare professional online. This lets doctors and patients connect without being in the same room, or even the same... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Thousands of Feet ApartHaving cystic fibrosis means that I cannot be within 6 feet of another CFer. As I write this, it’s still hard for me to come to terms with it. I... By Marieliz Landa3 min readBookmark for laterReactions 0 reactions Comments0 comments
Understanding CFWe asked our advocates, "How old were you when you felt you truly understood what cystic fibrosis is? How did you feel at that time?" They had some interesting responses... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Ten Ways to Support a Loved One With CFSupporting someone you love with cystic fibrosis is a great way to show how much you care and value their experience living with a chronic illness. Support from friends and... By Janeil Whitworth4 min readBookmark for laterReactions 0 reactions Comments0 comments
Embracing Changes in CF ManagementIn my last article, I discussed making accommodations for the changes CF imposes on me and many other patients. However, those aren’t the only developments we experience in life with... By Kenny Boutot4 min readBookmark for laterReactions 0 reactions Comments0 comments
In America: What's That?The In America survey is now closed. We know that cystic fibrosis (CF) is more than a lung disease. It affects the whole body - gastrointestinal system, sinuses, pancreas, liver... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips To Gain And Maintain WeightLooking from the outside-in, many people might assume being chronically thin is a positive side effect of cystic fibrosis. That’s what everybody wants, isn’t it? Being effortlessly thin sounds wonderful... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Video: Advice To Parents Of Newly Diagnosed Kids With CFIt is not easy to learn that your child has CF. Even though the CF community has come a long way in advancements in treatment and care, having a child... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments1 comments
Where Do I Fit In?Having cystic fibrosis is challenging enough. It’s a daily cycle of medications and finding a balance in the day of when to do treatments and so forth. I am not... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
Why Advocate?Advocacy, even for CF, used to be as foreign to me as most of the intricacies of the federal government. However, as my family faced a dire need for access... By Noreen Tarletsky3 min readBookmark for laterReactions 0 reactions Comments0 comments
Now Closed - Fatigue and Health SurveyThe 2020 Fatigue and Health survey has now closed. Thank you for your interest! We are excited to share the results with you soon. Exhaustion, tiredness, weariness... fatigue. We know... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
My Moment Of RebellionAs long as I can remember, I have always done my best to please those influential people in my life: my parents, my teachers, and my doctor. I always strive... By Nicole Driscoll3 min readBookmark for laterReactions 0 reactions Comments2 comments
Cystic Fibrosis (CF) Care TeamManaging treatment for cystic fibrosis (CF) is a team effort. Given the many ways living with CF can impact a person, it takes a variety of specialists to keep you... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Disclosing CF to Someone New Doesn't Have to Be So ComplicatedHave you ever met someone new, and instantly wondered how you would tell them you have cystic fibrosis? It’s the same plotline each time: the excitement of a new relationship... By Janeil Whitworth4 min readBookmark for laterReactions 0 reactions Comments0 comments
Coronavirus: Be Calm And AwareThe coronavirus has been on the news more times than I can count and it’s inducing a wave of panic across the world. People are nervous and scared - and... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments