Relationships with Cystic FibrosisI believe that having relationships and falling in love is very important for every person, but it’s harder to navigate when you have an illness that can shorten your life...Reactions0reactionsComments0 comments
Social Distancing Spurs Telehealth SurgeThe technology needed for virtual healthcare has been around for decades. But virtual care has not been widely used in the United States until recently. The recent public health emergency...Reactions0reactionsComments0 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with cystic fibrosis. New here? We invite you to explore...Reactions0reactionsComments0 comments
How to Monitor Your Health with At-Home DevicesAt-home monitoring can help you better manage chronic health conditions. It can also aid in your recovery after medical procedures. Using this technology, you can regularly record your health data...Reactions0reactionsComments0 comments
A Thank You To All the Moms With Adult CF ChildrenTo All the Moms with Adult CF Children: Present from the very beginning, this is a thank you to all the moms with adult CF children. The ones who faced...Reactions0reactionsComments0 comments
Privacy Concerns When Going VirtualTelehealth has become a popular way to see a doctor. Today, you can get many health services remotely. And, some studies show you may get better care at a lower...Reactions0reactionsComments0 comments
Where to Find Telehealth ServicesIt can be overwhelming to figure out how to find telehealth services, especially if you do not already have a doctor. But many companies offer a range of virtual health...Reactions0reactionsComments0 comments
Services You Can Get Through TelehealthTelehealth or virtual care can be used to access many different types of health services. To get started, talk to your doctor to find out which virtual services are right...Reactions0reactionsComments0 comments
Five CF-Related Spring Cleaning Tasks To Add To Your To-Do ListSpring is here! We made it! The snow is melted, revealing green grass (hopefully), birds are chirping, flowers are blooming, and the days are growing longer. With spring making its arrival...Reactions0reactionsComments0 comments
Prednisone FaceHaving cystic fibrosis involves taking so many medications and, unfortunately, each and every one of them has side effects. Each one takes its toll on us and leaves a mark...Reactions0reactionsComments0 comments
Preparing for a Virtual Visit with Your DoctorVisiting your doctor online is a great way to get healthcare if you are not able to go in person. You can get medical advice, visual assessments, treatments, or update...Reactions0reactionsComments0 comments
Becoming Mom: My Path to CF Motherhood (Part 1)I distinctly remember the day I realized cystic fibrosis was the reason I wouldn’t go through pregnancy and become a mom. This realization came as a result of a summer...Reactions0reactionsComments0 comments
Telehealth 101: How to Visit Your Doctor OnlineTelehealth is a virtual service that lets patients interact with a healthcare professional online. This lets doctors and patients connect without being in the same room, or even the same...Reactions0reactionsComments0 comments
Thousands of Feet ApartHaving cystic fibrosis means that I cannot be within 6 feet of another CFer. As I write this, it’s still hard for me to come to terms with it. I...Reactions0reactionsComments0 comments
Understanding CFWe asked our advocates, "How old were you when you felt you truly understood what cystic fibrosis is? How did you feel at that time?" They had some interesting responses...Reactions0reactionsComments0 comments
Ten Ways to Support a Loved One With CFSupporting someone you love with cystic fibrosis is a great way to show how much you care and value their experience living with a chronic illness. Support from friends and...Reactions0reactionsComments0 comments
Embracing Changes in CF ManagementIn my last article, I discussed making accommodations for the changes CF imposes on me and many other patients. However, those aren’t the only developments we experience in life with...Reactions0reactionsComments0 comments
Rare In America: What's That?The Rare In America survey is now closed. We know that cystic fibrosis (CF) is more than a lung disease. It affects the whole body - gastrointestinal system, sinuses, pancreas...Reactions0reactionsComments0 comments
Tips To Gain And Maintain WeightLooking from the outside-in, many people might assume being chronically thin is a positive side effect of cystic fibrosis. That’s what everybody wants, isn’t it? Being effortlessly thin sounds wonderful...Reactions0reactionsComments0 comments
Video: Advice To Parents Of Newly Diagnosed Kids With CFIt is not easy to learn that your child has CF. Even though the CF community has come a long way in advancements in treatment and care, having a child...Reactions0reactionsComments1 comments