Articles

Having cystic fibrosis is challenging enough. It’s a daily cycle of medications and finding a balance in the day of when to do treatments and so forth. I am not...

Advocacy, even for CF, used to be as foreign to me as most of the intricacies of the federal government. However, as my family faced a dire need for access...

The 2020 Fatigue and Health survey has now closed. Thank you for your interest! We are excited to share the results with you soon. Exhaustion, tiredness, weariness... fatigue. We know...

As long as I can remember, I have always done my best to please those influential people in my life: my parents, my teachers, and my doctor. I always strive...

Managing treatment for cystic fibrosis (CF) is a team effort. Given the many ways living with CF can impact a person, it takes a variety of specialists to keep you...

Have you ever met someone new, and instantly wondered how you would tell them you have cystic fibrosis? It’s the same plotline each time: the excitement of a new relationship...

The coronavirus has been on the news more times than I can count and it’s inducing a wave of panic across the world. People are nervous and scared - and...

Going back to that Friday afternoon in August 2008 is still difficult for me to do. I was fatigued. I had an 8-day-old baby that wasn't eating or sleeping. I...

There are symptoms that people with CF expect to experience, like frequent coughing and lung complications. However, CF can contribute to many other symptoms that we may not consider. We...

Colonoscopies are important in helping to screen and prevent colon cancer for everyone, but especially so for those with cystic fibrosis (CF). A colonoscopy allows the doctor to examine the...

Having cystic fibrosis means dealing with hard concepts and lots of emotions. Feeling sick, scared, angry, hurt, sad, grieving those we lost, and so much more. One of the hardest...

Editor’s Note: LGBTQ+ stands for people who identify as lesbian, gay, bisexual, transgender, or queer. To learn more about gender identity, check out the interactive website The Genderbread Person. Have...

We asked our advocates, "What practices have you applied to CF diet management?" Here's what we heard! Response from Cheriz K I focus on gaining weight by making sure I...

Over the course of my life, I’ve noticed changes to myself that - frankly - I’ve ignored. These are changes due to my cystic fibrosis that I chose to place...

The last day of February is Rare Disease Day all around the world. It is a day to recognize and raise awareness about rare diseases and how they impact patients...

We asked our advocates, "What methods do you use to connect with your CF peers? How do you feel about these methods?" Here's what they wanted to share with you...

Much like the entire cystic fibrosis community, I was eagerly awaiting my arrival of the recently approved CFTR modulator: Trikafta. Following the published research, community hype and amazing progress stories...

For those of us with cystic fibrosis, our bodies put us through a lot every day because of those two mutated CFTR genes. Why is it that something that seems...

There are moments throughout my day living with cystic fibrosis that I sit back and watch my freedom slip away. Like water running through my fingers, there’s no stopping the...

We asked our advocates, "What changes have you had to make to your life/lifestyle because of cystic fibrosis?" Here's what they wanted to share with you. Response from Cheriz K...