Preparing for a Virtual Visit with Your DoctorVisiting your doctor online is a great way to get healthcare if you are not able to go in person. You can...reactionscomments
Becoming Mom: My Path to CF Motherhood (Part 1)I distinctly remember the day I realized cystic fibrosis was the reason I wouldn’t go through pregnancy and become a mom. This...reactionscomments
Telehealth 101: How to Visit Your Doctor OnlineTelehealth is a virtual service that lets patients interact with a healthcare professional online. This lets doctors and patients connect without being...reactionscomments
Thousands of Feet ApartHaving cystic fibrosis means that I cannot be within 6 feet of another CFer. As I write this, it’s still hard for...reactionscomments
Understanding CFWe asked our advocates, "How old were you when you felt you truly understood what cystic fibrosis is? How did you feel...reactionscomments
Ten Ways to Support a Loved One With CFSupporting someone you love with cystic fibrosis is a great way to show how much you care and value their experience living...reactionscomments
Embracing Changes in CF ManagementIn my last article, I discussed making accommodations for the changes CF imposes on me and many other patients. However, those aren’t...reactionscomments
Rare In America: What's That?The "In America survey" is now closed. We know that cystic fibrosis (CF) is more than a lung disease. It affects the...reactionscomments
Tips To Gain And Maintain WeightLooking from the outside-in, many people might assume being chronically thin is a positive side effect of cystic fibrosis. That’s what everybody...reactionscomments
Video: Advice To Parents Of Newly Diagnosed Kids With CFIt is not easy to learn that your child has CF. Even though the CF community has come a long way in...reactions1comment
Where Do I Fit In?Having cystic fibrosis is challenging enough. It’s a daily cycle of medications and finding a balance in the day of when to...reactionscomments
Why Advocate?Advocacy, even for CF, used to be as foreign to me as most of the intricacies of the federal government. However, as...reactionscomments
Now Closed - Fatigue and Health SurveyThe 2020 Fatigue and Health survey has now closed. Thank you for your interest! We are excited to share the results with...reactionscomments
My Moment Of RebellionAs long as I can remember, I have always done my best to please those influential people in my life: my parents...reactions2comments
Cystic Fibrosis (CF) Care TeamManaging treatment for cystic fibrosis (CF) is a team effort. Given the many ways living with CF can impact a person, it...reactionscomments
Disclosing CF to Someone New Doesn't Have to Be So ComplicatedHave you ever met someone new, and instantly wondered how you would tell them you have cystic fibrosis? It’s the same plotline...reactionscomments
Coronavirus: Be Calm And AwareThe coronavirus has been on the news more times than I can count and it’s inducing a wave of panic across the...reactionscomments
A CF Diagnosis: From One Parent to AnotherGoing back to that Friday afternoon in August 2008 is still difficult for me to do. I was fatigued. I had an...reactionscomments
Ask The Advocates: Unexpected CF SymptomsThere are symptoms that people with CF expect to experience, like frequent coughing and lung complications. However, CF can contribute to many...reactions1comment
Preparing For A Colonoscopy When You Have Cystic FibrosisColonoscopies are important in helping to screen and prevent colon cancer for everyone, but especially so for those with cystic fibrosis (CF)...reactionscomments
