My Brother, My HeroMy baby brother was born with CF. He struggled as a child, teenager, and young adult. We were always told that he wouldn't live to be 16, but let me... By CommunityMember03d33a1 min readBookmark for laterReactions 0 reactions Comments0 comments
My Child's Trikafta FlareThe first year on Trikafta was the best my 9 year old has felt, but he picked up every germ a year and a half in. First, he got strep... By TeamTristan1 min readBookmark for laterReactions 0 reactions Comments1 comments
Cycling Across America with CFI was diagnosed with CF at birth, and currently am 44. I am lucky enough to be part of the evolution of changing treatments. If I look back 30-40 years... By CFCyclistAU2 min readBookmark for laterReactions 0 reactions Comments2 comments
A Day in the Life of a CF WarriorThis is just brief since I can have an attack at any time. So, I wake up at around 8:30am to take all my meds nebulizer, inhalers, vest, mental health... By Fightingforbreath1 min readBookmark for laterReactions 0 reactions Comments0 comments
One WishIf I was granted the ability to make one wish, what I would wish for would shock many people. I would wish for all CF patients around the world to... By Kadeem Morgan1 min readBookmark for laterReactions 0 reactions Comments1 comments
CFRDMy lungs are failing. I have CFRD now along with high blood pressure and high heart rates, I have found I am more tired, get no sleep, hurt a lot... By CommunityMember4026331 min readBookmark for laterReactions 0 reactions Comments0 comments
My quiet timeWhen things get bad I have discovered “Quiet Time”. I typically shut off all noise, TV, radio, etc. I like to lay down, close my eyes and most of the... By LeslieCF581 min readBookmark for laterReactions 0 reactions Comments0 comments
What helps me relax..When I’m feeling stressed or anxious, most of the time I turn to my dog. He’s my #1 supporter and my best friend. He knows how to really cheer me... By d.roysdon1 min readBookmark for laterReactions 0 reactions Comments0 comments
What Helps Me RelaxWhen cystic fibrosis or other things in life get overwhelming, it helps me to do something creative or calming like crocheting while watching a favorite show, coloring, watercolor painting, bracelet... By cftwin21 min readBookmark for laterReactions 0 reactions Comments1 comments
What Helps Me RelaxWhen I'm having a stressful, or bad day because of everything that comes with CF I enjoy making some hot tea, turning on some music, and just sitting still for... By CommunityMember1671 min readBookmark for laterReactions 0 reactions Comments0 comments
What helps me relax when Cf stresses me outHello, I will be 50 in June. About 18 years ago when I would get hospitalized my pulmonary rehab person got me into drawing and coloring mandalas. She would teach... By cfcndlelady1 min readBookmark for laterReactions 0 reactions Comments0 comments
Trikafta - first 3 daysBackground: 55-year-old Canadian guy with CF. FEV1 42%. Pretty stable, but in the past few years a lot, and I mean a lot, more productive cough and more flare-ups that... By Wurdy2 min readBookmark for laterReactions 0 reactions Comments3 comments
Diagnoised as an adult with rare form of cFHello, I am a 57-year-old woman, who was first diagnosed with a very rare form of CF. I was diagnosed at the age of 26. I then had to have... By Nyzki1 min readBookmark for laterReactions 0 reactions Comments0 comments
"Breathing Through A Straw" Cody & IIt has taken me over 30 years, a Covid19 Pandemic & the gentle cattle prod of my friend and publisher to tell Cody's story... my way of saying thank you... By mark1 min readBookmark for laterReactions 0 reactions Comments0 comments
My life story with cfI was diagnosed with CF, two copies of delta f508 at two weeks of age; after I had a meconium ileostomy, several bad feet of intestines removed, appendix removed, and... By elizabethk2 min readBookmark for laterReactions 0 reactions Comments3 comments
CF Carrier with Daughter who passed away at age 26 from CFWhen I was young I had allergies to grass, mold, dust, cats, and dogs. In my 20’s I got allergy shots which helped and then took allergy pills as I... By 2412501 min readBookmark for laterReactions 0 reactions Comments0 comments
Survivors GuiltWith a diagnosis of only 1 gene at the of 10, mom and the family seemed at ease. Moving forward to 17 and the doctors somehow found the second gene... By drum.nerd1 min readBookmark for laterReactions 0 reactions Comments1 comments
CF Carrier symptomsI found out a few months ago (in my thirties) I am a CF carrier. Whilst I know that carrier symptoms cannot begin to compare to those who have CF... By Lou16861 min readBookmark for laterReactions 0 reactions Comments5 comments
Johanna CF patient MomMy daughter's pancreas produces enough enzymes but apparently sometimes (not predictable) the pancreas produces enzymes in a too thick mucus that can’t pass to the bladder therefore it stays in... By johanna1 min readBookmark for laterReactions 0 reactions Comments1 comments
My niece is now in her 40'sMy beautiful niece was diagnosed with cystic fibrosis when she was four years old. And she has been hospitalized many times. However, she has always been a fighter and hasn't... By lcwelke1 min readBookmark for laterReactions 0 reactions Comments1 comments