Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Ask the Advocates: Answers From Our Health Leaders

What Does Advocacy Mean to You? (Part 1)

Advocacy is a pillar of the cystic fibrosis community, and we are a small but mighty group. There are lots of ways to advocate, including volunteer work, policy work, sharing...

What Lifestyle Changes Has Cystic Fibrosis Caused?

We asked our advocates, "What changes have you had to make to your life/lifestyle because of cystic fibrosis?" Here's what they wanted to share with you. Response from Cheriz K...

What Is a “Nonclassic” Cystic Fibrosis Symptom That You Experience?

Everyone in the cystic fibrosis community can name the telltale symptoms of CF: coughing, shortness of breath, gastrointestinal issues, frequent infections, and salty skin. However, there are so many more...

Staying Active with CF

Staying active can feel like a balancing act, especially as a person living with cystic fibrosis (CF). Sure, there are plenty of fun ways to get your body moving. But...

Alternative Treatments for CF

Cystic fibrosis (CF) affects more than just the lungs, and it is always important to follow the advice of your CF care team. However, alternative treatments can bring additional comfort...

How Has CF Affected Your Hobbies & Passions?

If you or a loved one has CF, you probably know that it can dictate what types of hobbies we can have. We asked our advocate team, "How has CF...

If You Could Have Any Career, What Would It Be and Why?

It is no secret that having cystic fibrosis affects many of life's choices, including what kind of career to pursue. Some people with CF may have an affinity for the...

Connect with others, get the latest stories, ask questions, and more when you create an account.Join Cystic-Fibrosis.com

Community Poll

What topic(s) would you like us to ask our patient leaders about? (Check all that apply)

Understanding CF

We asked our advocates, "How old were you when you felt you truly understood what cystic fibrosis is? How did you feel at that time?" They had some interesting responses...

We want to hear from you – find out how to share your CF story.Share your story!

What Has Been The Biggest Obstacle You Have Overcome With CF?

Each person in the cystic fibrosis community has had to overcome their fair share of obstacles. These obstacles come and go throughout our lives but, together, we can overcome them!...

CF Diet Management

We asked our advocates, "What practices have you applied to CF diet management?" Here's what we heard! Response from Cheriz K I focus on gaining weight by making sure I...

Connecting With CF Peers

We asked our advocates, "What methods do you use to connect with your CF peers? How do you feel about these methods?" Here's what they wanted to share with you...

Community Poll

Do you have other friends with CF?

What Are Your Thoughts on Five Feet Apart?

As someone in the cystic fibrosis community, you have probably heard about Five Feet Apart. Five Feet Apart is a book-turned-Blockbuster film that details and stories of Stella and Will,...

Community Poll

Have you seen the movie Five Feet Apart?

How Has Cystic Fibrosis Affected Your Mental Health?

Many of us are very familiar with the way cystic fibrosis (CF) can physically affect our bodies. However, in addition to cystic fibrosis impacting our lungs, pancreas, liver, sinuses, and...

Airway Clearance Vests

If you or a loved one have cystic fibrosis, using an airway clearance vest is a familiar practice to you. Choosing a vest, on the other hand? That may be...