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Creon availability

Hi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South Africa and around the world experiencing problems? What are your top tips for dealing with medicine scarcity (I think this topic affected all of us to a greater or lesser degree, even before gene modulators came along, and am interested to know how others deal with it. Many thanks.

  1. We're in Canada and have had to downgrade our creon 35 to creon 25. My kid feels the stress and has reduced her creon intake which has caused digestive issues. She's a teenager and won't listen. It's concerning there is a shortage for something so important!

    1. We hear you and know you're not alone in having these concerns. I am linking an article below that talks about the medical anxiety in kids and offers some insight/tips on how to help support kids. I'm hoping there may be some information here to help you best support your daughter as she continues to get older and takes on more responsibility for her health. Please keep us posted on how you two are doing. Sending hugs to you both! -Beth (Team Member)

      https://cystic-fibrosis.com/living/child-medical-anxiety

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