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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Creon availability

Hi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South Africa and around the world experiencing problems? What...

EXPLORING CYSTIC FIBROSIS: GASTROINTESTINAL CHALLENGES, MENTAL HEALTH IMPACTS, AND INNOVATIVE TREATMENTS"

Cystic fibrosis (CF) is a hereditary rather inheritable mess and disturbance that exert influence on several organs. First and foremost the lungs and digestive system gets affected first.It is caused...

Hospital admissions & fed up

Is there any coping strategies people use whilst in a state of depression due to our CF bringing us down I mean I have my good days and laugh and...

Trikafta

Trikafta nearly killed me. Inside of 3 months I was in total liver failure. I was in and out of the hospital 5 times before going in and staying 42...

Motivation while constantly getting sick

I've been trying to gain some muscle mass, and made encouraging progress. I have a very small stature for a male at 5ft2 19 years with the bone density half...

CF patient writing articles about living with chronic illness, want your insight

Hello! I am a 26-year-old CF patient, and I am considering writing a series of articles about the experience of those living with chronic or terminal conditions. I think that...

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