CF osteoprosisHello, so does anyone else find it so hard to keep your back straight. It's so hard for me because it's so tiring and take so much energy to keep...Reactions 0 reactions Comments5 repliesCopingDiet & NutritionTips & Advice
HouseworkHello, I'm not sure if any of you can relate but cf makes it hard to do house work. I mean, it's emberressing but the fact is right now, I'm...Reactions 0 reactions Comments0 repliesCopingFriends & FamilyTips & Advice
Transplant tests I NEED TO TALK with someone who understands.Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant facility. And at that appointment, they discussed about...Reactions 0 reactions Comments0 repliesDepressionLung TransplantTips & Advice
Trikfta side effects I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this normally happens in children, adolescents, and young adults...Reactions 0 reactions Comments20 repliesTrikaftaLung TransplantTips & Advice
Trikafta (Kaftrio) causing Bad Memory Loss?Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...Reactions 0 reactions Comments9 repliesTrikaftaSide EffectsTips & Advice
Blood testsHello so I have to do some blood tests. Long story short, I went to go take my blood tests, and the phlebotomists say they are having trouble finding blood...Reactions 0 reactions Comments0 repliesDiagnosisSymptomsTips & Advice
Cf group chatsWould there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or lung transplant? Or even if anyone wants any...Reactions 0 reactions Comments0 repliesDepressionDiet & NutritionTips & Advice
Helpful friendly advice PLEASE one cf patient to another.Hello everyone. To try to make a long story short, I will try to be as non detailed as possible. This is sort of a question that is bothering me...Reactions 0 reactions Comments2 repliesLung TransplantResearch & Clinical TrialsTips & Advice
Sweat test resultHello guys,im new here and i would like to ask a question that really stresses me out! My little boy had a sweat test and the value was 9.36 my...Reactions 0 reactions Comments1 repliesDiagnosisTips & Advice
Muscle aches & weaknessJust wondering if anyone here , experiences very painful and sore muscles, I have been having alot of muscle pain in my shoulders, and sides especially My shoulde blades are...Reactions 0 reactions Comments5 repliesTips & Advice
