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Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Traits and Severity

I just had my second child, and I found out he carries two different traits than his sister. His sister's chloride levels always test in the middle, so she is...

Housework

Hello, I'm not sure if any of you can relate but cf makes it hard to do house work. I mean, it's emberressing but the fact is right now, I'm...

CF-er being rude?

Hey!! I have CF and I've heard people say "CF-er" since I was a little kid and I wanted to know if I'm the only one here who doesn't like...

Seeking Urgent Help and Guidance for My Brother

My younger brother, Nikunj, who is 18 years old, has been battling cystic fibrosis (CF) since he was diagnosed at the age of 9. His genetic mutation is R560S. Over...

Best centers for Atypical Adult Onset Diagnosis

I am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that could be indicative of CF, but requires further...

Creon availability

Hi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South Africa and around the world experiencing problems? What...

EXPLORING CYSTIC FIBROSIS: GASTROINTESTINAL CHALLENGES, MENTAL HEALTH IMPACTS, AND INNOVATIVE TREATMENTS"

Cystic fibrosis (CF) is a hereditary rather inheritable mess and disturbance that exert influence on several organs. First and foremost the lungs and digestive system gets affected first.It is caused...

hii

So I got cystic fibrosis and I've always wondered:why can't I smell?? I cant smell anything! it really sucks bc people are like: "oh my gosh that steak smells soooo...

Trikfta side effects

I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this normally happens in children, adolescents, and young adults...

CF osteoprosis

Hello, so does anyone else find it so hard to keep your back straight. It's so hard for me because it's so tiring and take so much energy to keep...

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