Seeking Urgent Help and Guidance for My BrotherMy younger brother, Nikunj, who is 18 years old, has been battling cystic fibrosis (CF) since he was diagnosed at the age of 9. His genetic mutation is R560S. Over...Reactions0reactionsComments1 repliesLung TransplantTips & AdviceDaily Treatment
Best centers for Atypical Adult Onset DiagnosisI am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that could be indicative of CF, but requires further...Reactions0reactionsComments1 repliesResearch & Clinical TrialsTips & AdviceDiagnosis
Creon availabilityHi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South Africa and around the world experiencing problems? What...Reactions0reactionsComments2 repliesTips & AdviceMental HealthCoping
EXPLORING CYSTIC FIBROSIS: GASTROINTESTINAL CHALLENGES, MENTAL HEALTH IMPACTS, AND INNOVATIVE TREATMENTS"Cystic fibrosis (CF) is a hereditary rather inheritable mess and disturbance that exert influence on several organs. First and foremost the lungs and digestive system gets affected first.It is caused...Reactions0reactionsComments6 repliesTips & AdviceMental HealthGI Symptoms
hiiSo I got cystic fibrosis and I've always wondered:why can't I smell?? I cant smell anything! it really sucks bc people are like: "oh my gosh that steak smells soooo...Reactions0reactionsComments1 repliesCopingTips & Advice
Trikfta side effects I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this normally happens in children, adolescents, and young adults...Reactions0reactionsComments14 repliesLung TransplantTrikaftaTips & Advice
CF osteoprosisHello, so does anyone else find it so hard to keep your back straight. It's so hard for me because it's so tiring and take so much energy to keep...Reactions0reactionsComments5 repliesCopingTips & AdviceDiet & Nutrition
HouseworkHello, I'm not sure if any of you can relate but cf makes it hard to do house work. I mean, it's emberressing but the fact is right now, I'm...Reactions0reactionsComments0 repliesTips & AdviceFriends & FamilyCoping
Transplant tests I NEED TO TALK with someone who understands.Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant facility. And at that appointment, they discussed about...Reactions0reactionsComments0 repliesDepressionLung TransplantTips & Advice
Trikafta (Kaftrio) causing Bad Memory Loss?Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...Reactions0reactionsComments9 repliesTrikaftaSide EffectsTips & Advice