Active 6 days agoCf group chatsWould there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or lung transplant? Or even if anyone wants any...Reactions 0 reactions Comments0 repliesDepressionDiet & NutritionTips & Advice
Helpful friendly advice PLEASE one cf patient to another.Hello everyone. To try to make a long story short, I will try to be as non detailed as possible. This is sort of a question that is bothering me...Reactions 0 reactions Comments2 repliesLung TransplantResearch & Clinical TrialsTips & Advice
Sweat test resultHello guys,im new here and i would like to ask a question that really stresses me out! My little boy had a sweat test and the value was 9.36 my...Reactions 0 reactions Comments1 repliesDiagnosisTips & Advice
Trikafta (Kaftrio) causing Bad Memory Loss?Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...Reactions 0 reactions Comments8 repliesTrikaftaSide EffectsTips & Advice
Muscle aches & weaknessJust wondering if anyone here , experiences very painful and sore muscles, I have been having alot of muscle pain in my shoulders, and sides especially My shoulde blades are...Reactions 0 reactions Comments5 repliesTips & Advice
Muscle weakness and crampingAnyone else suffering with muscle weakness and cramping and leg muscle twitches... It's hard exercising when your lungs are saying no but your mind is like yes & barely sleeping...Reactions 0 reactions Comments0 repliesSleepTips & Advice
New port in my armAnyone else find them really uncomfortable 😣 and itchy? I've had mine over a month and I've had pain in my arm and chest on and off not to mention...Reactions 0 reactions Comments0 repliesPortsSide EffectsTips & Advice
How are you preparing for cold and flu season?What steps do you take to keep yourself healthy during the colder months...Reactions 0 reactions Comments0 repliesTips & Advice
Motivation while constantly getting sickI've been trying to gain some muscle mass, and made encouraging progress. I have a very small stature for a male at 5ft2 19 years with the bone density half...Reactions 0 reactions Comments7 repliesDepressionMental HealthTips & Advice
Far Apart, but Close in HeartPeople living with cystic fibrosis are required to stay at least 6-feet apart from each other. Do you make an effort to stay connected with CFers other ways? If so...Reactions 0 reactions Comments3 repliesCopingTips & Advice
