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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Seeking Urgent Help and Guidance for My Brother

My younger brother, Nikunj, who is 18 years old, has been battling cystic fibrosis (CF) since he was diagnosed at the age of 9. His genetic mutation is R560S. Over...

Please help I need insurance advice

Hello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...

Trikfta side effects

I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this normally happens in children, adolescents, and young adults...

Transplant tests I NEED TO TALK with someone who understands.

Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant facility. And at that appointment, they discussed about...

Helpful friendly advice PLEASE one cf patient to another.

Hello everyone. To try to make a long story short, I will try to be as non detailed as possible. This is sort of a question that is bothering me...

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