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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Bronchoscopy--what to expect?

Hi everyone, I am having a bronchoscopy done to get a better idea of what is happening in my lungs following a CT scan. Have you had one done? What...

Blood tests

Hello so I have to do some blood tests. Long story short, I went to go take my blood tests, and the phlebotomists say they are having trouble finding blood...

CF and Smell

Has CF impacted your or your loved one's sense of smell? Share your experiences with smell in this thread....

Atypical CF

Hello, Atypical Cystic Fibrosis... I wonder if anyone can help please. I am 46 years old I have had bronchiectasis diagnosed in 2008 by HRCT after suffering symptoms all my...

Pneumonia

Hello. I’m a caregiver for my husband who was hospitalized last week with pneumonia, but he has a new ‘symptom’ that hasn’t happened before - memory loss. They said it...

heart damage due to lack of O2

I was wondering if anyone elso out there , has had to go on meds to slow your heart from working too hard due to lack of O2? I have...

I have CF and am pregnant

Let’s share our experiences that can be uniquely nuanced because of managing CF and also new symptoms and changes with pregnancy....

Chronic pancreatitis

Has anyone else developed chronic pancreatitis in your late teens and then found out that you also have cystic fibrosis?...

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