Being An Advocate During CF Awareness MonthShare different things you do to raise awareness for cystic fibrosis. Whether you participate in walks, enjoy fundraising, or talk about CF on social media, we want to hear about...Reactions 0 reactions Comments0 repliesAwareness
Chronic pancreatitisHas anyone else developed chronic pancreatitis in your late teens and then found out that you also have cystic fibrosis?...Reactions 0 reactions Comments0 repliesSymptoms
Tips for CF College life?Hi everyone, I’m will soon be moving into a dorm (not this fall, but in the spring hopefully if COVID-19 dies down a bit), so I wondering if anyone here...Reactions 0 reactions Comments1 replies
Did you practice the 6-foot rule before COVID-19?How many of you CF’ers practiced — “5-Feet Apart“ or “ 6-feet apart “, Before COVID — 19?...Reactions 0 reactions Comments6 replies
Why do you continue to advocate for cystic fibrosis?It's CF awareness month and we want to know why you continue to advocate for cystic fibrosis! Whether it's for yourself or a loved one, we want to hear from...Reactions 0 reactions Comments2 repliesAwareness
How can I connect with other cftr/crms adults?I’m 36 years old and a professional singer. I fought with a pseudomonas infection in my sinuses for two years before CF was considered. A year ago, my CF results...Reactions 0 reactions Comments0 replies
Have a Question About Clinical Trials? Ask Away!For any questions regarding clinical trials, ask them here....Reactions 0 reactions Comments0 replies
Does My Husband Have Atypical CF?Does anyone have any experience with atypical cystic fibrosis diagnosed in their late 20s? My husband was recently diagnosed. He has cbavd, major polyp sinus issues (two sinus surgeries in...Reactions 0 reactions Comments0 repliesDiagnosisCaregiving
Is My Son a Carrier?My grandson has CF, so my question is does this mean my son is a carrier?...Reactions 0 reactions Comments1 replies
Anyone Out There Dealing With B. Cepacia?How has it affected your inpatient stays? Have a question for the community? Ask here!...Reactions 0 reactions Comments0 replies