Here We Go: Planning a Family Vacation with CFFamily vacations are meant to be filled with fun, excitement, close bonding, and laughter. Being someone who does not have CF, I...reactionscomments
Blood Glucose Monitoring Devices for CF-Related Diabetes: Part 2In Part 1 of the article, we discussed the prevalence of CF-related diabetes (CFRD) and the role of blood glucose monitoring. In...reactionscomments
Breaking The SilenceFor the longest while, I have been debating what the topic of my first post on here should be. I don’t want...reactions2comments
PleurisyCystic fibrosis (CF) is a chronic disease that primarily impacts the lungs. Lung infections are more severe with lung disease. They cause...reactionscomments
Staying Organized with CFHello everyone! For my first article I’m beginning with something I have struggled with a lot when it comes to advocating for...reactions3comments
My Two CF Birth Stories: Part OneThere’s days where I wish August 4th, 1995 could peek into the future and see me now 26 years after my cystic...reactionscomments
Hospitalization HacksHello there! For my first article, I thought I'd start with something I have a lot of experience with: getting hospitalized. Below...reactions2comments
Two Years of TrikaftaThis March marks two years since I started taking Trikafta. I remember getting the package in the mail. It was just a...reactions1comment
What Are Patient Support Programs?If you are prescribed a high-cost drug, chances are, you have had experience with patient support programs. Patient support programs, or PSPs...reactionscomments
Cystic Fibrosis Changed My Personality And This Is HowCystic fibrosis has pushed me to my limits and then compelled me to go past them; time and time again. My perspective...reactions1comment
Navigating a Pandemic with Kids Under 5Navigating the pandemic with two kids under five is no joke. I feel like I’m in a game of dodgeball and am...reactionscomments
Parenting With Cystic FibrosisThe balance of being a provider and needing providing wasn’t something I thought about until I became a mother. Diagnosed with CF...reactions1comment
The Role of Community Pharmacist in Your CF JourneyNumerous healthcare professionals are involved in CF care. Most often, people don’t think of their pharmacist as part of their CF team...reactionscomments
Ask the Advocates: DIOSDistal intestinal obstruction syndrome (DIOS) is a condition where the small intestines get blocked by thickened stool. About 15 percent of people...reactionscomments
What's New in Clinical TrialsThe CF community has seen the advent of disease altering treatments in the last few years and a spurred interest from researchers...reactionscomments
Decompression After the HolidaysThe excitement, or dread, that surrounds the holiday season is hard to ignore. People are busy. Shops are open late. Lines are...reactions2comments
Your Voice Matters - Advocating for Cystic FibrosisWhen I stepped out of my comfort zone and started raising awareness, I never thought I would actually teach someone about cystic...reactionscomments
Study Finds People of Color with CF Have Worse Lung FunctionA published study finds that certain people of color with cystic fibrosis (CF) have poorer lung function than white people with the...reactionscomments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments
My Two CF Birth Stories: Part TwoIn Part One of this series, I reminisced about the birth of our first son as a new mom with cystic fibrosis...reactionscomments
