Emotional Support AnimalI have often seen service animals and I’m sure you have too. For example, you may see them in the mall or at a park or the store. They wear... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments2 comments
Know Your MucusIf there is one thing us patients with cystic fibrosis have in common, it's mucus! While it is a gross topic and something not a lot of people really talk... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments0 comments
First-Time School Germs Give Me AnxietyIt’s the nightmare all moms talk about after starting school or daycare for the first time: how frequently their children and/or other family become sick after being exposed to an... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
CF Changes You from the Inside OutThere is one conversation that repeats in the CF community that always makes me stop and think about my life and those around me who also fight the same disease... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Morning TreatmentsGrowing up, treatments were never my favorite time of the day. Especially morning treatments. While I looked forward to the relief that my morning dose of medication gave me, I... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Transferring PharmaciesMoving can be a stressful. Coordinating leases, installations, and packing your life into boxes can feel like a lot. If you have a chronic illness, you also need to make... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Take the Managing Treatment and Medication SurveyThe Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like cystic fibrosis (CF)... By Editorial Team 1 min readBookmark for laterReactions 0 reactions Comments0 comments
HidingOne of the difficult parts of having this disease is pretending that you are okay when you are not. I believe at this point in my life I have become... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments2 comments
Why Are Fat-Soluble Vitamins Important in CF?Vitamins A, D,E, and K, or fat-soluble vitamins, play an important role in making sure people with CF are growing and healthy. From helping the body fight off dangerous bacteria... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Are Your Friends and Family Supportive of Your CF?It is no secret that living with cystic fibrosis (CF) can be time-consuming, frustrating, or even flat-out difficult. Due to the day-to-day challenges of living with a chronic condition like... By Editorial Team 7 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: BlueJoseph and the Technicolor Dream coat is one of my favorite shows. I see it every Christmas. One of my favorite songs, “Joseph Coat”, describes all of the colors on... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments0 comments
CF Book Review: Breath From SaltIf you have CF, have a loved one with CF, or are just interested in science or the business model of disease non-profits, Breath from Salt: A Deadly Genetic Disease... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Nasal Pressure Headaches/MigrainesNasal pressure from blocked nasal passages is bad enough but the accompanying headache increases it to terrible. In my case, my sinuses inflame very easily and while I have always... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments2 comments
How Can CF Affect Oral Health?It’s been ingrained into us since early childhood and the days of blue bubblegum toothpaste how important it is to take care of your oral health by brushing and flossing... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Complementary Therapies To Help Manage CF SymptomsI have been a huge fan of alternative medicine and complementary therapies to help manage my cystic fibrosis journey. Here I share some of my top-rated add on's. Antibiotics especially... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments0 comments
Peripheral Neuropathy (Feet)I have painful feet. I was shocked when the doctor told me that I have peripheral neuropathy, but it explained why I could not walk without being in horrible pain... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments4 comments
Supplemental Oxygen on FlightsThe topic of travel may not be at the forefront of your thoughts these days. However, the approaching warm weather may have some people scouring for flight and destination deals... By Canadian Pharmacist2 min readBookmark for laterReactions 0 reactions Comments1 comments
Three Ways to Sanitize Nebulizer CupsAn important step in airway clearance is the maintenance and cleaning of nebulizer cups used to nebulizer inhaled medications. Since I care about my overall lung health and work so... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Is Airline Travel Safe in the Post-COVID Era with CF?As the newly vaccinated US begins emerging from the terrible control of COVID-19, many people are eager to dust off their suitcases and passports and finally start traveling again. After... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Smell the RosesI have written about my sinus surgeries due to nasal polyps. Nasal polyps and sinus surgeries are routine for those of us with cystic fibrosis. Polyps are usually a problem... By Marieliz Landa2 min readBookmark for laterReactions 0 reactions Comments2 comments