Living

The second trimester of pregnancy is often thought of as the golden period for many moms-to-be. After a rough few months of morning sickness, food aversions, and fatigue that is...

Having cystic fibrosis has taught me the invaluable lesson: Learning to value myself when it comes to my own health. I believe it is easy to get lost in the...

What can truly be said about needing a third vaccine? In my view, it is scary to be in a world where a different COVID variant can cause damage, because...

Living with cystic fibrosis (CF) can bring many challenges. While the physical symptoms of CF are often discussed, the toll that the condition takes on mental health is just as...

Would you like to share your experience with CF and help others who are also living or caring for someone with the condition? We’re looking to add new voices to...

One of the most frightening things for me to do was travel, because I was always so scared to do anything. I always put my CF as an excuse to...

While many people have heard of cystic fibrosis (CF) and may even know a little about the condition, very few fully understand what life with CF entails. Even the friends...

Our lives are a little crazy at the moment as I try to balance my CF, caring for our preschool son, and a new baby on the way! (Not to...

I have often seen service animals and I’m sure you have too. For example, you may see them in the mall or at a park or the store. They wear...

If there is one thing us patients with cystic fibrosis have in common, it's mucus! While it is a gross topic and something not a lot of people really talk...

It’s the nightmare all moms talk about after starting school or daycare for the first time: how frequently their children and/or other family become sick after being exposed to an...

There is one conversation that repeats in the CF community that always makes me stop and think about my life and those around me who also fight the same disease...

Growing up, treatments were never my favorite time of the day. Especially morning treatments. While I looked forward to the relief that my morning dose of medication gave me, I...

Moving can be a stressful. Coordinating leases, installations, and packing your life into boxes can feel like a lot. If you have a chronic illness, you also need to make...

The Managing Treatment and Medication Survey is now closed. Thank you for your interest! Treatment is a big part of managing a chronic (long-term) health condition like cystic fibrosis (CF)...

One of the difficult parts of having this disease is pretending that you are okay when you are not. I believe at this point in my life I have become...

Vitamins A, D,E, and K, or fat-soluble vitamins, play an important role in making sure people with CF are growing and healthy. From helping the body fight off dangerous bacteria...

It is no secret that living with cystic fibrosis (CF) can be time-consuming, frustrating, or even flat-out difficult. Due to the day-to-day challenges of living with a chronic condition like...

Joseph and the Technicolor Dream coat is one of my favorite shows. I see it every Christmas. One of my favorite songs, “Joseph Coat”, describes all of the colors on...

If you have CF, have a loved one with CF, or are just interested in science or the business model of disease non-profits, Breath from Salt: A Deadly Genetic Disease...