A Day in a CF Patient's Life: Clinic VisitMy daughter, Margo, recently had her quarterly CF clinic appointment, so I am going to take you through our typical routine. One...reactionscomments
Slow Trikafta Coverage Expands in CanadaTRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor), Vertex’s newest CFTR modulator, has been available in the U.S. for those 6 and up with one F508del...reactionscomments
Person Before Patient Survey Results: Getting to Know Our Community MembersThe nature of cystic fibrosis (CF) can mean frequent hospital visits and medical care. Many people report that living with CF sometimes...reactionscomments
The Many Colors of Cystic Fibrosis: Red (Part 1)If you haven’t read my previous article, “The Many Colors of Cystic Fibrosis: Blue,” you need to know that I am a...reactionscomments
Mom with CF: Worries of the WorldThe world has been heavy lately, if you haven’t noticed. Civil and governmental arrest in the Middle East, natural disasters peppering the...reactions3comments
Caregiver Awareness Month Giveaway (Now Closed)This giveaway is now closed. Thank you for your interest! When you are a caregiver for a loved one with cystic fibrosis...reactionscomments
Community Views: The Unspoken Emotional Impact of Cystic FibrosisLiving with cystic fibrosis (CF) is challenging in so many ways. When we talk about CF, we tend to talk about the...reactionscomments
Better SleepGetting better sleep is something that most people want. Whether it is better quality or more sleep, it is common to know...reactionscomments
What Is One Life Lesson CF Has Taught You?Cystic fibrosis (CF) is a chronic, life-long condition with several ups and downs. Between the initial diagnosis, hospital stays, managing difficult symptoms...reactionscomments
All About Fat-Soluble Vitamins In CFVitamins are so widely used that more than half of adults in America head to their medicine cabinet daily to take them...reactionscomments
Unique Challenges of Second Trimester CF PregnancyThe second trimester of pregnancy is often thought of as the golden period for many moms-to-be. After a rough few months of...reactionscomments
Be Involved in Your CF CareHaving cystic fibrosis has taught me the invaluable lesson: Learning to value myself when it comes to my own health. I believe...reactionscomments
My Experience: COVID Vaccine BoosterWhat can truly be said about needing a third vaccine? In my view, it is scary to be in a world where...reactionscomments
Depression and Anxiety in People Living With Cystic FibrosisLiving with cystic fibrosis (CF) can bring many challenges. While the physical symptoms of CF are often discussed, the toll that the...reactionscomments
Join the Cystic-Fibrosis.com Advocate TeamWould you like to share your experience with CF and help others who are also living or caring for someone with the...reactionscomments
Taking A ChanceOne of the most frightening things for me to do was travel, because I was always so scared to do anything. I...reactions1comment
Community Views: What Nobody Talks About with Cystic FibrosisWhile many people have heard of cystic fibrosis (CF) and may even know a little about the condition, very few fully understand...reactionscomments
Daily Routine as a Pregnant Preschool Mom with CFOur lives are a little crazy at the moment as I try to balance my CF, caring for our preschool son, and...reactionscomments
Emotional Support AnimalI have often seen service animals and I’m sure you have too. For example, you may see them in the mall or...reactions2comments
Know Your MucusIf there is one thing us patients with cystic fibrosis have in common, it's mucus! While it is a gross topic and...reactionscomments
