Take the Managing Treatment and Medication Survey
The Managing Treatment and Medication Survey is now closed. Thank you for your interest!
Treatment is a big part of managing a chronic (long-term) health condition like cystic fibrosis (CF). Often, we are told to take medicine as prescribed or to follow the treatment plan. But what if that is not always possible?
Throughout our journey as patients, we ask ourselves questions that affect how we manage CF treatment. These questions include but are not limited to:
- Will there be side effects?
- Will it impact my ability to do my everyday tasks?
- How much does it cost?
- Did I refill my prescriptions?
Treatment is not always simple
There is more to managing CF than just taking drugs on time as prescribed. We want to learn about the real experiences of people managing and treating CF. By taking our Managing Treatment and Medication survey, you can help us recognize and better serve the interests of our community.
This survey should only take about 20 minutes to complete. All of your responses are completely anonymous. Your answers will be shared only in aggregate form with the Health Union communities, including Cystic-Fibrosis.com.
Have you (or a loved one) been experiencing any negative side effects from Trikafta?