Experiencing Chronic Pain Due To Cystic FibrosisWhile waiting to begin Trikafta, my heart has felt a little heavy, mainly for reasons that I can’t explain. I think part...reactionscomments
Cystic Fibrosis (CF) Care TeamManaging treatment for cystic fibrosis (CF) is a team effort. Given the many ways living with CF can impact a person, it...reactionscomments
CF and Partner PTSDBeing a partner to someone who has cystic fibrosis (CF) can be hard. It can be exhausting, scary, and confusing. As someone...reactionscomments
How I Am Sleeping Through the Trikafta InsomniaSleeping has been a great difficulty since starting Trikafta. I am not alone, the Trikafta tribe are pretty much all in agreement...reactionscomments
CF and VeganismAn essential part of staying healthy with CF is the diet. Often CF patients are told to include high-fat, high-calorie foods. In...reactionscomments
Five Actions That Get in the Way of My AppetiteFor the first time, many people with CF have been able to focus less on gaining and maintaining weight and more on...reactionscomments
Feelings of Survivor's GuiltI hear a lot about survivor's guilt as a cystic fibrosis (CF) patient. I’ve had moments in my life I feel it...reactions4comments
Family DynamicsFamilies have many dynamics. There is a dynamic between the parents and children. The children in a family have their own dynamic...reactions3comments
Creating A CF Exercise Regime That FitsWe all hear the physios harp on about exercise but sometimes it can be daunting thinking about where to start. It took...reactionscomments
New CF Medicine StrugglesGetting a new medication prescribed can feel overwhelming. I was prescribed a new medication a few years ago. And this medication had...reactionscomments
The Many Colors of Cystic Fibrosis: Orange (Part 1)I love viewing my journey with cystic fibrosis (CF) through the lens of Joseph’s Technicolor Dreamcoat. If you’re unfamiliar with the biblical...reactionscomments
What It Means To Be A CF WarriorSome of the fiercest people I know have CF. The strength, determination and sheer willpower to fight for another breath is formidable...reactionscomments
Embracing Changes in CF ManagementIn my last article, I discussed making accommodations for the changes CF imposes on me and many other patients. However, those aren’t...reactionscomments
6 Month Trikafta Update (Part 2)I’ve seen so many incredible improvements from Trikafta, as you may have read in Part 1. I expected Trikafta to primarily help...reactionscomments
6 Month Trikafta Update (Part 1)Six months ago I began taking Trikafta--a life-changing treatment for cystic fibrosis. While Trikafta is not a cure, I affectionately refer to...reactionscomments
My Child's Trikafta FlareThe first year on Trikafta was the best my 9 year old has felt, but he picked up every germ a year...reactions1comment
My CF Exacerbation Complication: AtelectasisLiving with CF, I know pain–all kinds of different types, locations, and degrees of pain. Pain from lung infections and coughing, abdominal...reactionscomments
Painsomnia: The Unspoken CF SymptomPainsomnia became more of an issue for me in my twenties when I felt it was a symptom often overlooked by CF...reactionscomments
Slow Trikafta Coverage Expands in CanadaTRIKAFTA® (elexacaftor/tezacaftor/ivacaftor and ivacaftor), Vertex’s newest CFTR modulator, has been available in the U.S. for those 6 and up with one F508del...reactionscomments
Where Do I Fit In?Having cystic fibrosis is challenging enough. It’s a daily cycle of medications and finding a balance in the day of when to...reactionscomments
