Hospitalization Series: Pre-Admission RoutineGetting ready to be admitted to the hospital for a cystic fibrosis (CF) tune-up often made me anxious. I knew the coming weeks would be physically and mentally hard. One... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Black (Part 2)In my last article, I discussed the impact of the color black on my journey with cystic fibrosis (CF). Let’s continue talking about black. You can read Part 1 of the... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments0 comments
Do I See Myself As a Caregiver? Not Necessarily....The month of November has come and gone. As some may know, it is National Caregiver Appreciation Month as well. Cheriz and I were honored to be a part of... By Andrew Loebach3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Black (Part 1)If you haven’t read my columns before, allow me to reintroduce myself. My name is Nicole Kohr. I am a cystic fibrosis (CF) patient, a bilateral lung transplant recipient, and... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments0 comments
Important Documents: Writing Down Your WishesLiving with cystic fibrosis (CF) requires having a lot of conversations. Some of these conversations are with the children in your life about CF. Other conversations are with your doctor... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
One WishIf I was granted the ability to make one wish, what I would wish for would shock many people. I would wish for all CF patients around the world to... By Kadeem Morgan1 min readBookmark for laterReactions 0 reactions Comments1 comments
CF Hospitalization: Creating Habits & SchedulesLiving with cystic fibrosis (CF) can mean you are hospitalized a lot depending on your health. And if you aren’t hospitalized a lot, you probably have CF friends who are... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Surviving CF With "Hygge"“Hygge” (pronounced hoo-ga) is a popular Danish lifestyle that emphasizes creating a cozy and comforting environment to induce peace and happiness. Hygge is all about creating and savoring simple joys... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health. It also aims to expand opportunities for health... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments2 comments
Important Documents and Cystic FibrosisWhen you live with cystic fibrosis (CF) you are familiar with having hard conversations. We must talk to our doctors about what happens if a new medicine doesn’t work. Additionally... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Shopping Smarter for the Holiday SeasonThe holiday season is about to start! Each family has different traditions and beliefs around the holidays. But most people do see their close friends and family during this time... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Beige (Part 2)In my last article, I discussed the impact of the color beige on my journey with cystic fibrosis (CF). Let’s continue talking about beige. You can read Part 1 of the... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Beige (Part 1)If you haven’t read my columns before, allow me to reintroduce myself. My name is Nicole Kohr. I am a cystic fibrosis (CF) patient, a bilateral lung transplant recipient, and... By Nicole Kohr2 min readBookmark for laterReactions 0 reactions Comments0 comments
CFRDMy lungs are failing. I have CFRD now along with high blood pressure and high heart rates, I have found I am more tired, get no sleep, hurt a lot... By CommunityMember4026331 min readBookmark for laterReactions 0 reactions Comments0 comments
Off to KindergartenWe are officially one month into kindergarten, and so far, we have had only positive experiences in Margo’s transition. She went from pre-K on a Friday to kindergarten on a... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments0 comments
Ask the Health Leaders: Telehealth or In-Person?Technology has come a long way, and we now have the option to receive care from medical professionals in the comfort of our own homes. The convenience is undeniable. Schedules... By Editorial Team 4 min readBookmark for laterReactions 0 reactions Comments0 comments
Managing Time As An Adult With CFRecently, I was talking to my sister about her three kids starting school again. In addition to the new school year, we talked about how the oldest is going to... By Katelyn Harlow4 min readBookmark for laterReactions 0 reactions Comments0 comments
Updating Your Name When You Receive MedicareHappy October everyone! Today I wanted to talk about how to change your name after marriage. I was recently married in September and I have been working on getting my... By Moriah Frisbie4 min readBookmark for laterReactions 0 reactions Comments0 comments
Crawling Towards the CureYou know how when you’re running a race and you’re so tired you just want to stop, but then you see the finish line and it gives you the will... By Jennifer Oramas4 min readBookmark for laterReactions 0 reactions Comments0 comments
Topics I Hope to See Covered at the NACFCEvery year, I look forward to tuning into the North American Cystic Fibrosis Conference (NACFC) to learn more about the newest research and data conducted on cystic fibrosis from around... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments