Thousands of Feet ApartHaving cystic fibrosis means that I cannot be within 6 feet of another CFer. As I write this, it’s still hard for...reactionscomments
Prednisone FaceHaving cystic fibrosis involves taking so many medications and, unfortunately, each and every one of them has side effects. Each one takes...reactionscomments
Having an Emergency Preparedness PlanHaving a plan in case of an emergency or natural disaster is important and a good idea for anyone, but especially those...reactionscomments
Mom with CF: Worries of the WorldThe world has been heavy lately, if you haven’t noticed. Civil and governmental arrest in the Middle East, natural disasters peppering the...reactions3comments
What Lifestyle Changes Has Cystic Fibrosis Caused?We asked our advocates, "What changes have you had to make to your life/lifestyle because of cystic fibrosis?" Here's what they wanted...reactionscomments
My 25-Year Anniversary of CF DiagnosisThe 25th anniversary of my diagnosis. It crept up on me without my noticing. I was on a meeting a week or...reactionscomments
Getting Triggered By CF Medical TraumaI had cystic fibrosis (CF) exacerbations every other month for many years. The routine was pretty much the same. My doctors would...reactionscomments
Exploring Post Traumatic Stress Disorder in Cystic Fibrosis (Part 1)Living with cystic fibrosis can be physically debilitating and mentally destabilizing. We know there is an elevated level of depression and anxiety...reactions1comment
What to Say When Your Friend's Child is Diagnosed with CFFive years ago, when my daughter Caroline was two weeks old, she was diagnosed with cystic fibrosis (CF). Initially, we kept her...reactionscomments
A Happy Ending: My IVF JourneyIn late March 2020, I discovered two pieces of bad news. The initial transfer did not result in a pregnancy. I felt extremely...reactionscomments
Post Trikafta Flare-UpsReceiving the gift of Trikafta didn’t feel like a cure, it felt more along the lines of a promise. It felt like...reactionscomments
Not Feeling Sick EnoughWhen asked in interviews for tv stations, newspapers and conversations about my CF, I tried to think of my absolute worst day...reactions1comment
Ask The Advocates: Importance Of Research and AdvocacyThe definition of advocacy is to support another by giving them a voice. This, I think, rings so true when being part...reactionscomments
I Forgot My Treatments and I Am OKSome things always go together, like cystic fibrosis (CF) and airway clearance. It’s no surprise that airway clearance is an important part...reactionscomments
Date Nights with Cystic FibrosisWhat did you do for Valentine's day? I feel like there are three groups of people when it comes to Valentine’s Day...reactionscomments
The Many Colors of Cystic Fibrosis: Grey (Part 2)In my previous article, I explained why grey is an essential color in my journey with cystic fibrosis (CF). Back to the...reactionscomments
Holiday Gift Guide for Adults With CFHo, ho, ho! It’s a good time to wrap up your holiday shopping (or maybe you're the type that needs to scramble...reactionscomments
Ask the Advocates: Staying HydratedLiving with cystic fibrosis (CF), you learn how important hydration is and the best ways to get your body the necessary fluids...reactions1comment
Ask the Advocates: Judging An Invisible IllnessDuring cystic fibrosis (CF) awareness month this May, we strived to elevate and shine a light on CF community experiences. There are...reactions1comment
How I Applied "Atomic Habits" To My Life With CFIf you haven't already heard of it, Atomic Habits by James Clear is a book that talks about what habits are and...reactions6comments
