Important Documents: Writing Down Your WishesLiving with cystic fibrosis (CF) requires having a lot of conversations. Some of these conversations are with the children in your life...reactionscomments
One WishIf I was granted the ability to make one wish, what I would wish for would shock many people. I would wish...reactions1comment
CF Hospitalization: Creating Habits & SchedulesLiving with cystic fibrosis (CF) can mean you are hospitalized a lot depending on your health. And if you aren’t hospitalized a...reactionscomments
Surviving CF With "Hygge"“Hygge” (pronounced hoo-ga) is a popular Danish lifestyle that emphasizes creating a cozy and comforting environment to induce peace and happiness. Hygge...reactionscomments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactions2comments
Important Documents and Cystic FibrosisWhen you live with cystic fibrosis (CF) you are familiar with having hard conversations. We must talk to our doctors about what...reactionscomments
Shopping Smarter for the Holiday SeasonThe holiday season is about to start! Each family has different traditions and beliefs around the holidays. But most people do see...reactionscomments
The Many Colors of Cystic Fibrosis: Beige (Part 2)In my last article, I discussed the impact of the color beige on my journey with cystic fibrosis (CF). Let’s continue talking about...reactionscomments
The Many Colors of Cystic Fibrosis: Beige (Part 1)If you haven’t read my columns before, allow me to reintroduce myself. My name is Nicole Kohr. I am a cystic fibrosis...reactionscomments
CFRDMy lungs are failing. I have CFRD now along with high blood pressure and high heart rates, I have found I am...reactionscomments
Off to KindergartenWe are officially one month into kindergarten, and so far, we have had only positive experiences in Margo’s transition. She went from...reactionscomments
Ask the Health Leaders: Telehealth or In-Person?Technology has come a long way, and we now have the option to receive care from medical professionals in the comfort of...reactionscomments
Managing Time As An Adult With CFRecently, I was talking to my sister about her three kids starting school again. In addition to the new school year, we...reactionscomments
Updating Your Name When You Receive MedicareHappy October everyone! Today I wanted to talk about how to change your name after marriage. I was recently married in September...reactionscomments
Crawling Towards the CureYou know how when you’re running a race and you’re so tired you just want to stop, but then you see the...reactionscomments
Topics I Hope to See Covered at the NACFCEvery year, I look forward to tuning into the North American Cystic Fibrosis Conference (NACFC) to learn more about the newest research...reactionscomments
Living In The Trikafta EraMany of us are old hats when it comes to the bog standard CF stuff. So, this new territory that is the...reactionscomments
Switching DoctorsIn a previous article, I spoke about switching pharmacies. Changing to a new pharmacy needs planning and communication. But it can be...reactions2comments
Why Is Asking for Help So Difficult?Why as humans do we have such a difficult time admitting we need help? Maybe it’s because being vulnerable is an uncomfortable...reactions1comment
Individualized Health Plan: Medication and FoodIn my previous article, I detailed Margo’s Individualized Health Plan (IHP) and our initial meeting with the school nurse. We left the...reactionscomments
