Off to KindergartenWe are officially one month into kindergarten, and so far, we have had only positive experiences in Margo’s transition. She went from pre-K on a Friday to kindergarten on a...Reactions0reactionsComments0 comments
Ask the Health Leaders: Telehealth or In-Person?Technology has come a long way, and we now have the option to receive care from medical professionals in the comfort of our own homes. The convenience is undeniable. Schedules...Reactions0reactionsComments0 comments
Managing Time As An Adult With CFRecently, I was talking to my sister about her three kids starting school again. In addition to the new school year, we talked about how the oldest is going to...Reactions0reactionsComments0 comments
Updating Your Name When You Receive MedicareHappy October everyone! Today I wanted to talk about how to change your name after marriage. I was recently married in September and I have been working on getting my...Reactions0reactionsComments0 comments
Crawling Towards the CureYou know how when you’re running a race and you’re so tired you just want to stop, but then you see the finish line and it gives you the will...Reactions0reactionsComments0 comments
Topics I Hope to See Covered at the NACFCEvery year, I look forward to tuning into the North American Cystic Fibrosis Conference (NACFC) to learn more about the newest research and data conducted on cystic fibrosis from around...Reactions0reactionsComments0 comments
Living In The Trikafta EraMany of us are old hats when it comes to the bog standard CF stuff. So, this new territory that is the Trikafta Era feels almost like an illusion of...Reactions0reactionsComments0 comments
Switching DoctorsIn a previous article, I spoke about switching pharmacies. Changing to a new pharmacy needs planning and communication. But it can be done easily if everyone is on the same...Reactions0reactionsComments2 comments
Why Is Asking for Help So Difficult?Why as humans do we have such a difficult time admitting we need help? Maybe it’s because being vulnerable is an uncomfortable state for many people. Vulnerability opens us up...Reactions0reactionsComments1 comments
Individualized Health Plan: Medication and FoodIn my previous article, I detailed Margo’s Individualized Health Plan (IHP) and our initial meeting with the school nurse. We left the meeting so energized and felt completely comfortable that...Reactions0reactionsComments0 comments
Ask the Health Leaders: CF ProgressionThere is a progressive nature to cystic fibrosis (CF), and it is a reality of living with CF despite recent advances in treatment. We asked our health leaders to share...Reactions0reactionsComments0 comments
Creating A CF Individualized Health Plan (IHP)For the next step in our prep for Margo to start kindergarten, my husband and I met with the school nurse. We were both looking forward to this meeting as...Reactions0reactionsComments0 comments
Challenges of Being A Caregiver with CFCancer is an unwelcome yet frequent visitor that seems to always show up uninvited in my family. As a kid, I lost my dad to pancreatic cancer and watched my...Reactions0reactionsComments0 comments
Getting Ready for Cold and Flu Season (Part 2)In my previous article, I wrote about how to prepare for cold and flu season. I shared practical steps to keeping your home safe and how to practice healthy habits...Reactions0reactionsComments0 comments
Getting Ready for Cold and Flu Season (Part 1)Cold and flu season is coming up very soon. And in this two-part series, I’ll be sharing information with you on how to get you and your family ready for...Reactions0reactionsComments0 comments
Routine CF Screening 101When you live with CF, there are many appointments and routine tests completed to make sure you are healthy and thriving. Firstly, there are different tests to diagnose CF in...Reactions0reactionsComments0 comments
Home Sweet Home: After SurgeryAs I wrote about in a previous blog post, having surgery is sometimes a part of life. And feelings of anxiety can come up when it is your turn to...Reactions0reactionsComments0 comments
The Limits of Chronic DiseaseI was diagnosed with cystic fibrosis (CF) at an age where everything was already changing. I was 12, just on the cusp of my teenage years. It was quite a...Reactions0reactionsComments0 comments
Pre-Surgical Anxiety and What To DoHaving surgery is a part of life. Especially if you have a chronic illness. For example, as a CF patient, I have had many procedures. Each one was for a...Reactions0reactionsComments0 comments
Easing the Financial Dent of Dental WorkThere’s no doubt that oral health impacts overall physical health. For many with cystic fibrosis (CF) our health can often affect our dental health as well. From the effects of...Reactions0reactionsComments1 comments