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Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Benefits PIP

Whilst having CF is there only two benefits you can claim i.e p.i.p and ESA or is there other things and grants out there anyone knows about that could help...

Medicine in Israel

Does anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out of pocket....

Please help I need insurance advice

Hello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...

Trikafta coverage

Hi. I'm on Trikafta and since my job changed prescription plans, my Trikafta is a 4000.00 copay. I have good health insurance and had Benecard for my prescriptions and only...

Has anyone ever experienced being left out of a will because you had CF?

Has anyone ever been left out of inheriting anything because you have CF and your relative believe "your just going to pass away any way" or "they aren't long for...

Moving to the US with Cystic Fibrosis

Hi, I am a 28 year old female from the UK hoping to move to Florida next year to be with my long term partner. I feel like a fish...

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