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Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

CF relationship

Just need to vent 😭 Well we went out for a meal last nite she did nowt but shout at me carry on n she went out for a fag...

Rant

Any1 here who can relate please 🙏🏼🥺 Not sure what it is with some women toxic ASFFF 🙄 You stay single years work on yourself feeling great then you feel...

Rant

Sooo... I'm curious 🤔 how many of you cfers have cats ?? And how did you manage that with the litter tray then smell the hair and cat dander ??...

Hair loss

I'm a woman in my 40s with CF. I'm on a modulator. Recently I have started having my hair fall out. It's coming out in clumps and filling out my...

Cf chat groups

I wish there was a cf chat group where cf people can chat with each other and make cf friends if they wanted to. Especially since they aren't supposed to...

Transplant tests I NEED TO TALK with someone who understands.

Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant facility. And at that appointment, they discussed about...

Has anyone ever experienced being left out of a will because you had CF?

Has anyone ever been left out of inheriting anything because you have CF and your relative believe "your just going to pass away any way" or "they aren't long for...

Support

I need to talk to someone badly, i was out with my support worker it was freezing cold i forgot to put my oxygen on and didnt get wnough time...

Texting buddies CF pals

Anyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and if and when give advice if ever needed...

Cf group chats

Would there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or lung transplant? Or even if anyone wants any...

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