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Hair lossI'm a woman in my 40s with CF. I'm on a modulator. Recently I have started having my hair fall out. It's coming out in clumps and filling out my...Reactions0reactionsComments4 repliesDepressionTrikafta
Cf chat groupsI wish there was a cf chat group where cf people can chat with each other and make cf friends if they wanted to. Especially since they aren't supposed to...Reactions0reactionsComments10 repliesAwarenessDepressionFriends & Family
Transplant tests I NEED TO TALK with someone who understands.Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant facility. And at that appointment, they discussed about...Reactions0reactionsComments0 repliesDepressionLung TransplantTips & Advice
Has anyone ever experienced being left out of a will because you had CF?Has anyone ever been left out of inheriting anything because you have CF and your relative believe "your just going to pass away any way" or "they aren't long for...Reactions0reactionsComments0 repliesDepressionCopingCost
SupportI need to talk to someone badly, i was out with my support worker it was freezing cold i forgot to put my oxygen on and didnt get wnough time...Reactions0reactionsComments11 repliesDepression
Texting buddies CF palsAnyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and if and when give advice if ever needed...Reactions0reactionsComments2 repliesCopingDepressionAwareness
Cf group chatsWould there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or lung transplant? Or even if anyone wants any...Reactions0reactionsComments0 repliesDepressionDiet & NutritionTips & Advice
Hospital admissions & fed up Is there any coping strategies people use whilst in a state of depression due to our CF bringing us down I mean I have my good days and laugh and...Reactions0reactionsComments8 repliesDepressionDaily TreatmentMental Health
Motivation while constantly getting sickI've been trying to gain some muscle mass, and made encouraging progress. I have a very small stature for a male at 5ft2 19 years with the bone density half...Reactions0reactionsComments7 repliesMental HealthTips & AdviceDepression