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Read conversations, start a discussion, and connect with others about cystic fibrosis.

What are some tips to gain weight on Trikafta

Hello everybody! So I have a rare mutation that Trikafta wasn’t approved for, but my doctor took a chance on me and I’m so glad he did!! My health has...

Atypical

I was diagnosed with atypical CF which has caused male infertility due to lack of vas deferens. Was told as a kid it was asthma but have dealt with lung...

Hair loss

I'm a woman in my 40s with CF. I'm on a modulator. Recently I have started having my hair fall out. It's coming out in clumps and filling out my...

Things I've Experienced as a Carrier

Through 23 and me I know I am a CF carrier. I know it came from my mother's side. My primary care physician was not aware that carriers could have...

Finding Out I'm A CF Carrier

I was diagnosed as a CF carrier about 5 years ago after my son, and daughter-in-law had genetic testing when she became pregnant. They found out that both of them...

I wonder how many people are carriers & only find out after genetic testing during pregnancy?

I have had asthma, eczema & allergies from an early age. My brother has asthma & seasonal allergies. My sister was diagnosed with CF only when she was in her...

Sweat Test Results

My son has went through 3 sweat tests by the age of 2 months..first two didn’t collect enough sweat and the second test came back as <10. Not too sure...

weight loss

15 year old all of sudden started lossing weight never loss weight before weights 153 was weighting 159...

EXPLORING CYSTIC FIBROSIS: GASTROINTESTINAL CHALLENGES, MENTAL HEALTH IMPACTS, AND INNOVATIVE TREATMENTS"

Cystic fibrosis (CF) is a hereditary rather inheritable mess and disturbance that exert influence on several organs. First and foremost the lungs and digestive system gets affected first.It is caused...

Best types of digestive enzymes

I’m a VF carrier and have pancreatic insufficiency. I haven’t been able to resolve my digestive issues fully with prescription enzymes (tried creon, zenpep and now vital nutrients pancreatic enzymes)...

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