Returning to Normal As the masks come off and regulations relax around the country, I’ve started to reflect on what the past year has meant for us as a CF family. For the...Reactions0reactionsComments0 comments
Making Connections in the CF CommunityWhen I first had my daughter, one of the things that truly made me feel energized was connecting with other new moms. I met a group of women in our...Reactions0reactionsComments4 comments
Balancing a CF Diet and Toddler PickinessCystic fibrosis presents many daily physical, mental, and emotional challenges for patients and caregivers. As a CF caregiver, one of the most enduring challenges has been making sure my daughter...Reactions0reactionsComments1 comments
CF Milestones: Celebrating Achievements and Managing ExpectationsIn addition to all the milestones one faces with their child, the treatment and management of cystic fibrosis includes pivotal moments for patients. While they may not be the traditional...Reactions0reactionsComments1 comments
Our Cleaning And Sanitizing RegimenBefore having a child with cystic fibrosis, I never realized how much attention towards cleaning and sanitization is necessary to keep patients healthy and safe. COVID-19 has normalized hand sanitizing...Reactions0reactionsComments0 comments
How CF Has Affected Our Family Dynamic It is a challenge for me to remember two things: what life was like before being a parent, and what life was like before cystic fibrosis. In many ways, they...Reactions0reactionsComments0 comments
Clearing The Fog: Advice For New CF ParentsWhether it is your first child or your fourth, a new baby brings physical, mental, and emotional exhaustion. Mothers are dealing with fluctuating hormones and the recovery period after labor...Reactions0reactionsComments1 comments
Cystic Fibrosis and MasksI was recently scrolling through Instagram and a post caught my eye. It was made by someone with thousands of followers and said something to the effect of how sad...Reactions0reactionsComments1 comments
Choosing To Send Our Daughter To Daycare: Part IOur daughter, Margo, has been in daycare since she was four months old. As two working parents, daycare was always a given for our family. Margo’s cystic fibrosis (CF) diagnosis...Reactions0reactionsComments0 comments
My Journey To Becoming A CF Parent: Part IIRead Part I here. I will never forget the day we received the phone call. It was a Wednesday, and Rhett and I were both at work. The genetic counselor...Reactions0reactionsComments0 comments
My Journey To Becoming A CF ParentEvery CF parent has a diagnosis story--the process leading up to the diagnosis and the exact moment of learning of their child’s condition. For many people, the diagnosis comes within...Reactions0reactionsComments0 comments
