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maria55

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maria55's Status Updates

  1. "I have a port on the left side of my chest. For the past 5 months, I gave pain after my monthly flush. The pain is in my neck, side, sometimes my chest. I need an ultrasound or something to see what the issue is. It flushes with no problem and has blood return. Has that happened to anyone else? I have had the port since 2016."

    1. Sarah Coff's avatar image

      Sarah Coff

      Hi @maria55, I'm sorry to hear you've been in pain lately from your monthly flush. Does your doctor have any idea what might be causing this discomfort? Keep us updated with how you're feeling when possible. Sending love your way! - Sarah, Cystic-Fibrosis.com Team Member

    2. maria55's avatar image

      maria55

      thank you. He mentioned clots, someone else said an affection. Who knows. I'm going for an ultrasound on my chest and arm and an x-ray. We'll see what they say. Thank you again!❤️

    3. Sarah Coff's avatar image

      Sarah Coff

      I'm glad that you're getting this checked out. Again, please keep us posted if possible. Sending you good vibes! - Sarah, Cystic-Fibrosis.com Team Member

    4. maria55's avatar image

      maria55

      I will. I go next week for the tests. Thank you!

    5. corenepettit's avatar image

      corenepettit

      We are thinking of you! Hope your tests went smoothly and you were able to get some answers. Warmly, Corene, Cystic-Fibrosis.com Team Member

    6. maria55's avatar image

      maria55

      thank you! So I got an ultrasound sound and Xray and of course nothing was found. Good news? I guess. Lol. Now the doctor who put in my PORT wrote a prescription for me to have a test with dye to see if they see any leakage. So now I have to see if a hospital near me will do the test since he is far and I don't have a car.
      Thank you for reaching out.

    7. Lynne's avatar image

      Lynne

      Thanks for keeping us updated. I understand the mixed feelings. Sometimes it feels like medicine is more of a ruling out process. Keep the faith. -Lynne (team member)

  2. "Feeling well."

    1. Sarah Coff's avatar image

      Sarah Coff

      Hi @maria55, I'm happy to hear you're feeling well! I saw that you recently became a member of Cystic-Fibrosis.com, so welcome! If you have any questions regarding the articles, forum pages, etc. please don't hesitate to reach out! Best, Sarah, Cystic-Fibrosis.com Team Member

  3. "Good"

    1. Sarah Coff's avatar image

      Sarah Coff

      Hi @maria55 – thank you for being part of our community! I'm so glad to hear you're doing well. Best wishes, Sarah, Cystic-Fibrosis.com Team Member