Marieliz Landa

I’ve never been shy in regards to talking about those whom I have met with cystic fibrosis and the impact they’ve had on my life. I have talked about losing...

Advance directives aren’t something to be scared about doing and it’s not something to put off either. We each have preferences and, when the time comes, we can have our...

One of the hardest aspects of having CF is outliving the friends you make with CF. I know I fight mentally with the thought of, “When is it my turn?”...

One thing I was told many, many times by various pulmonologists is CF is a “caucasian” disease. It’s primarily a disease you find in someone who isn’t me. I never...

I have always been a very cautious person, but having cystic fibrosis has made me more anxious over the years. As I have grown older, I feel like I have...

One of the best things about growing up and finishing high school is the excitement of going to college. It was a different path for me because I did not...

There’s a topic I usually don’t talk about because it was hard to come to terms with it. I found courage and strength to talk about this because I don’t...

It’s stressful being sick with a genetic disease that causes a wide range of chronic symptoms. It’s even harder being the only one in the family who was seriously sick...

Insomnia is so common with cystic fibrosis (CF). I find it a miracle when I can sleep for more than 4 to 5 hours at a time. Some days even...

One of the difficult things about having CF is home infusions and or hospital stays. For me, hospital stays usually last a week or more. During admissions, there’s a constant...

I believe that having relationships and falling in love is very important for every person, but it’s harder to navigate when you have an illness that can shorten your life...

Having cystic fibrosis involves taking so many medications and, unfortunately, each and every one of them has side effects. Each one takes its toll on us and leaves a mark...

Having cystic fibrosis means that I cannot be within 6 feet of another CFer. As I write this, it’s still hard for me to come to terms with it. I...

Having cystic fibrosis is challenging enough. It’s a daily cycle of medications and finding a balance in the day of when to do treatments and so forth. I am not...

The coronavirus has been on the news more times than I can count and it’s inducing a wave of panic across the world. People are nervous and scared - and...

Over the course of my life, I’ve noticed changes to myself that - frankly - I’ve ignored. These are changes due to my cystic fibrosis that I chose to place...

When I learned about Trikafta, I was thrilled and moved to tears. It was a bittersweet moment for me. I was happy beyond belief for the CF community. I was...