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Read conversations, start a discussion, and connect with others about cystic fibrosis.

PICC Line or Port?

Do you have a PICC line or a port? Why did you make this choice? Would you change your decision?...

Getting sick

My son has cf and every time the doctors take him off antibiotics he winds up back in the hospital. Has this happened to anyone else? The doctors don’t know...

Research on a new treatment for lung infections in patients with CF

Hi, I'm from a company doing research into a new, phage-based treatment for lung infections in CF patients and we'd really like to hear about your experiences being treated for...

Pseudomanas

Hi everyone, I have a beautiful 3 year old boy who as contracted this pseudomanas we started nebulized antibiotics in June and we finished them in September 4 weeks after...

Working With CF

Hi everyone, I'm always curious what type of work other people with CF do? Are you able to work from home or have any accommodations? What do you love about...

Trikafta and Brain fog/headaches

I am 42yo and began trikafta 3 years ago while in the drug study. I felt amazing at first and bumped up my fev1 from 40's to 60's. I did...

catheter dressing recommendation

Hi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in Korea...

Telehealth

Telehealth is known to increase access to care and reduce costs. Would you ever consider using Telehealth to help manage your CF? Let's talk about it....

Side effects from digestive enzymes

Has anyone had a spouse that has had a digestive reaction ( diarrhea) from being with you?...

screening for colon cancer

Patients above the age of 40 have a 5 to 10 times higher risk for colon cancer. Screening every 5 years?.......

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