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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Exposure to other CF individuals

My grandson has CF and his mother has started dating someone new. Her boyfriends little brother has CF, and the two are around each other at least every few weeks...

Being An Advocate During CF Awareness Month

Share different things you do to raise awareness for cystic fibrosis. Whether you participate in walks, enjoy fundraising, or talk about CF on social media, we want to hear about...

Chronic pancreatitis

Has anyone else developed chronic pancreatitis in your late teens and then found out that you also have cystic fibrosis?...

Tips for CF College life?

Hi everyone, I’m will soon be moving into a dorm (not this fall, but in the spring hopefully if COVID-19 dies down a bit), so I wondering if anyone here...

Did you practice the 6-foot rule before COVID-19?

How many of you CF’ers practiced — “5-Feet Apart“ or “ 6-feet apart “, Before COVID — 19?...

Why do you continue to advocate for cystic fibrosis?

It's CF awareness month and we want to know why you continue to advocate for cystic fibrosis! Whether it's for yourself or a loved one, we want to hear from...

How can I connect with other cftr/crms adults?

I’m 36 years old and a professional singer. I fought with a pseudomonas infection in my sinuses for two years before CF was considered. A year ago, my CF results...

The Challenges of Managing CF

Managing cystic fibrosis can often require hours of treatment each day, hospital visits, etc. It's extremely challenging to manage CF, even when you're feeling well. Share any tips you have...

Have a Question About Clinical Trials? Ask Away!

For any questions regarding clinical trials, ask them here....

Does My Husband Have Atypical CF?

Does anyone have any experience with atypical cystic fibrosis diagnosed in their late 20s? My husband was recently diagnosed. He has cbavd, major polyp sinus issues (two sinus surgeries in...

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