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Read conversations, start a discussion, and connect with others about cystic fibrosis.

CF Treatment

Which treatments are you (or your child) taking on a day to day basis? (Remember, this is a place to talk about personal experiences, but we ask that you do...

What Excites You Most About 2020?

Share what you're most excited about in the year to come!...

heart damage due to lack of O2

I was wondering if anyone elso out there , has had to go on meds to slow your heart from working too hard due to lack of O2? I have...

Disability

Have you applied for disability? What was the process like for you?...

PICC Line or Port?

Do you have a PICC line or a port? Why did you make this choice? Would you change your decision?...

Getting sick

My son has cf and every time the doctors take him off antibiotics he winds up back in the hospital. Has this happened to anyone else? The doctors don’t know...

Research on a new treatment for lung infections in patients with CF

Hi, I'm from a company doing research into a new, phage-based treatment for lung infections in CF patients and we'd really like to hear about your experiences being treated for...

Pseudomanas

Hi everyone, I have a beautiful 3 year old boy who as contracted this pseudomanas we started nebulized antibiotics in June and we finished them in September 4 weeks after...

Working With CF

Hi everyone, I'm always curious what type of work other people with CF do? Are you able to work from home or have any accommodations? What do you love about...

Trikafta and Brain fog/headaches

I am 42yo and began trikafta 3 years ago while in the drug study. I felt amazing at first and bumped up my fev1 from 40's to 60's. I did...

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