Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Kaftrio

Hello, Has anybody who takes kaftrio found they have become very negative, short tempered, low moods. just generally not yourself. I’ve been with my partner for 10yrs who has CF...

sodium chloride and acetlysisteine back ordered and unavailable

I have been out of two of my most needed nebulized medicines. Apparently there is a shortage of both of these and getting them from my pharmacy has been a...

coping with CF

As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often. I am notcing more pain in between my...

Why do you visit our Cystic-Fibrosis.com community?

pallitive care

As my lung disease has advanced. i was told to seek out pallitive care. which means that my doctors have given up on me . I am not ready to...

told no to lung transplantation

I am a 57 year old woman , who was first diagnoised at the age of 26 with a form of CF Bronchiectasis, w/ immotile cilla dyskenesia. Now that i...

CF Treatment

Which treatments are you (or your child) taking on a day to day basis? (Remember, this is a place to talk about personal experiences, but we ask that you do...

What Excites You Most About 2020?

Share what you're most excited about in the year to come!...

heart damage due to lack of O2

I was wondering if anyone elso out there , has had to go on meds to slow your heart from working too hard due to lack of O2? I have...

Disability

Have you applied for disability? What was the process like for you?...

Categories

Select a category to find topics that interest you.