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Read conversations, start a discussion, and connect with others about cystic fibrosis.

living with CF as a 17 year old.

I’m 17 and was diagnosed with CF at 3 months old. I have a friend that also has CF and we go...

Kaftrio

Hello, Has anybody who takes kaftrio found they have become very negative, short tempered, low moods. just generally not yourself. I’ve been...

sodium chloride and acetlysisteine back ordered and unavailable

I have been out of two of my most needed nebulized medicines. Apparently there is a shortage of both of these and...

coping with CF

As my CF advances, I notice my limitations. My breathing has become much harder. I now have to use oxygen more often...

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pallitive care

As my lung disease has advanced. i was told to seek out pallitive care. which means that my doctors have given up...

told no to lung transplantation

I am a 57 year old woman , who was first diagnoised at the age of 26 with a form of CF...

CF Treatment

Which treatments are you (or your child) taking on a day to day basis? (Remember, this is a place to talk about...

What Excites You Most About 2020?

Share what you're most excited about in the year to come!...

heart damage due to lack of O2

I was wondering if anyone elso out there , has had to go on meds to slow your heart from working too...

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