Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Did you practice the 6-foot rule before COVID-19?

How many of you CF’ers practiced — “5-Feet Apart“ or “ 6-feet apart “, Before COVID — 19?...

Why do you continue to advocate for cystic fibrosis?

It's CF awareness month and we want to know why you continue to advocate for cystic fibrosis! Whether it's for yourself or a loved one, we want to hear from...

How can I connect with other cftr/crms adults?

I’m 36 years old and a professional singer. I fought with a pseudomonas infection in my sinuses for two years before CF was considered. A year ago, my CF results...

The Challenges of Managing CF

Managing cystic fibrosis can often require hours of treatment each day, hospital visits, etc. It's extremely challenging to manage CF, even when you're feeling well. Share any tips you have...

Have a Question About Clinical Trials? Ask Away!

For any questions regarding clinical trials, ask them here....

Does My Husband Have Atypical CF?

Does anyone have any experience with atypical cystic fibrosis diagnosed in their late 20s? My husband was recently diagnosed. He has cbavd, major polyp sinus issues (two sinus surgeries in...

Is My Son a Carrier?

My grandson has CF, so my question is does this mean my son is a carrier?...

Anyone Out There Dealing With B. Cepacia?

How has it affected your inpatient stays? Have a question for the community? Ask here!...

How can malnutrition be prevented in someone with cystic fibrosis?

What are some ways to prevent infections?

Categories

Select a category to find topics that interest you.