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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Trikafta (Kaftrio) causing Bad Memory Loss?

Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...

Blood tests

Hello so I have to do some blood tests. Long story short, I went to go take my blood tests, and the phlebotomists say they are having trouble finding blood...

Cf group chats

Would there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or lung transplant? Or even if anyone wants any...

Helpful friendly advice PLEASE one cf patient to another.

Hello everyone. To try to make a long story short, I will try to be as non detailed as possible. This is sort of a question that is bothering me...

Sweat test result

Hello guys,im new here and i would like to ask a question that really stresses me out! My little boy had a sweat test and the value was 9.36 my...

Muscle aches & weakness

Just wondering if anyone here , experiences very painful and sore muscles, I have been having alot of muscle pain in my shoulders, and sides especially My shoulde blades are...

Muscle weakness and cramping

Anyone else suffering with muscle weakness and cramping and leg muscle twitches... It's hard exercising when your lungs are saying no but your mind is like yes & barely sleeping...

New port in my arm

Anyone else find them really uncomfortable 😣 and itchy? I've had mine over a month and I've had pain in my arm and chest on and off not to mention...

How are you preparing for cold and flu season?

What steps do you take to keep yourself healthy during the colder months?...

Motivation while constantly getting sick

I've been trying to gain some muscle mass, and made encouraging progress. I have a very small stature for a male at 5ft2 19 years with the bone density half...

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