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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Transplant tests I NEED TO TALK with someone who understands.

Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant...

Trikafta (Kaftrio) causing Bad Memory Loss?

Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot...

Blood tests

Hello so I have to do some blood tests. Long story short, I went to go take my blood tests, and the...

Cf group chats

Would there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or...

Helpful friendly advice PLEASE one cf patient to another.

Hello everyone. To try to make a long story short, I will try to be as non detailed as possible. This is...

Sweat test result

Hello guys,im new here and i would like to ask a question that really stresses me out! My little boy had a...

Muscle aches & weakness

Just wondering if anyone here , experiences very painful and sore muscles, I have been having alot of muscle pain in my...

Muscle weakness and cramping

Anyone else suffering with muscle weakness and cramping and leg muscle twitches... It's hard exercising when your lungs are saying no but...

New port in my arm

Anyone else find them really uncomfortable 😣 and itchy? I've had mine over a month and I've had pain in my arm...

How are you preparing for cold and flu season?

What steps do you take to keep yourself healthy during the colder months?...

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