FeaturedFill in the blank: ___________ is something that only someone with CF would understand. Share something that only those living with CF of caring for a loved one with CF would truly understand. Let's raise awareness by talking about topics that are uniquely related...Reactions 0 reactions Comments6 repliesAwareness
FeaturedDoes anyone remember Sammi's Story by Philippa Manning, 1993!?I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my experience with CF. I was hoping to include...Reactions 0 reactions Comments2 replies
Active todayKaftrio and pseudomonas Hello everyone. I hope all are keeping well. My son started kaftrio a month and a half ago today, he never had any 'purge' as they call it.... Where you...Reactions 0 reactions Comments0 repliesDaily Treatment
Active 2 days agoGetting older with cfI'm nearly 46 Every1 is talking about my 50th The doc told my dad when I was born she won't get to 5 yrs Now we have the magic pills...Reactions 0 reactions Comments1 replies
Active 6 days agoCystic fibrosis adult onset?Hi everyone 🙋🏻♀️just a quick introduction. I am 47 years old and live in the Netherlands. I have severe intestinal complaints and therefore had a colonoscopy, in addition to active...Reactions 0 reactions Comments0 repliesDiagnosisGI Symptoms
Lifetime of Hill Rom VestHi everyone, I am new at this forum and could not find any topic about Hill Rom Vest 105 system which is a crucial part of our daily care. What...Reactions 0 reactions Comments3 repliesDaily Treatment
Orkambi or Trikafta?Hello, My 14-year-old son has cystic fibrosis. Soon, in Romania, we will benefit from Orkambi and Trikafta medicines. From your experience, do we need to start with Orkambi and then...Reactions 0 reactions Comments1 repliesDaily TreatmentTrikaftaHealthcare Team
Trikafta (Kaftrio) causing Bad Memory Loss?Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...Reactions 0 reactions Comments1 repliesTrikaftaSide EffectsTips & Advice
Your voice matters! Take our CF surveySpreading awareness drives hope and change. Bring awareness to this rare disease and share your truth through our survey today! Whether you are a patient or a caregiver, your daily...Reactions 0 reactions Comments0 repliesAwareness
Far Apart, but Close in HeartPeople living with cystic fibrosis are required to stay at least 6-feet apart from each other. Do you make an effort to stay connected with CFers other ways? If so...Reactions 0 reactions Comments3 repliesCopingTips & Advice
Atypical CFHello, Atypical Cystic Fibrosis... I wonder if anyone can help please. I am 46 years old I have had bronchiectasis diagnosed in 2008 by HRCT after suffering symptoms all my...Reactions 0 reactions Comments4 repliesDiagnosisSymptoms
