FeaturedStaying hydrated with CFThe weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...Reactions0reactionsComments3 repliesWeather
FeaturedConnecting with Other CFersLet's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...Reactions0reactionsComments25 replies
Active 7 days agoweight loss15 year old all of sudden started lossing weight never loss weight before weights 153 was weighting 159...Reactions0reactionsComments1 repliesDiagnosis
Sweat Test ResultsMy son has went through 3 sweat tests by the age of 2 months..first two didn’t collect enough sweat and the second test came back as <10. Not too sure...Reactions0reactionsComments0 replies
Cystic Fibrosis ResearchHi Everyone! I am a final-year undergraduate design student beginning my senior design project. My focus is on creating a modular vest solution tailored to meet the needs of a...Reactions0reactionsComments0 repliesAwarenessResearch & Clinical Trials
EXPLORING CYSTIC FIBROSIS: GASTROINTESTINAL CHALLENGES, MENTAL HEALTH IMPACTS, AND INNOVATIVE TREATMENTS"Cystic fibrosis (CF) is a hereditary rather inheritable mess and disturbance that exert influence on several organs. First and foremost the lungs and digestive system gets affected first.It is caused...Reactions0reactionsComments6 repliesGI SymptomsMental HealthTips & Advice
Hair lossI'm a woman in my 40s with CF. I'm on a modulator. Recently I have started having my hair fall out. It's coming out in clumps and filling out my...Reactions0reactionsComments2 repliesDepressionTrikafta
I wonder how many people are carriers & only find out after genetic testing during pregnancy?I have had asthma, eczema & allergies from an early age. My brother has asthma & seasonal allergies. My sister was diagnosed with CF only when she was in her...Reactions0reactionsComments0 repliesCarriers
Best types of digestive enzymesI’m a VF carrier and have pancreatic insufficiency. I haven’t been able to resolve my digestive issues fully with prescription enzymes (tried creon, zenpep and now vital nutrients pancreatic enzymes)...Reactions0reactionsComments1 repliesGI Symptoms
hiiSo I got cystic fibrosis and I've always wondered:why can't I smell?? I cant smell anything! it really sucks bc people are like: "oh my gosh that steak smells soooo...Reactions0reactionsComments1 repliesTips & AdviceCoping
My breathing and being in painI have alots of trouble breathing some days I have to make myself do a little house work but sometimes I think I'm going in circle and not seem to...Reactions0reactionsComments1 replies
Carriers pain, cramping, gas, and constipation diarrhoea kidneys and duct inflamationMy elderly parent in the family with CF ( but has never been tested for carrier status ) As I understand it CF carriers, especially the elderly pancreas do not...Reactions0reactionsComments1 repliesGI SymptomsCarriers