Dietary TipsEating enough nutrients and calories each day can be challenging for children with CF. Share any tips you have on making sure your child eats enough while they're at school...Reactions 0 reactions Comments2 repliesDiet & Nutrition
Sweat test resultHello guys,im new here and i would like to ask a question that really stresses me out! My little boy had a sweat test and the value was 9.36 my...Reactions 0 reactions Comments1 repliesDiagnosisTips & Advice
Cystic Fibrosis Related DiabetesI am 53 years old male from India. My sputam was diagnosed repeatedly with Psudomonas Angusia Bacteria. I am having continues caugh. My sugar levels always high even I am...Reactions 0 reactions Comments1 replies
2 different results from one sweat testOne sweat sample, two results with 35 point difference- I am waiting to hear from the doc but got 2 different lab results from a sweat test earlier today with...Reactions 0 reactions Comments1 replies
Children of a cf mumHi my wife has cf and 12 years ago we started down the IVF route. We were lucky to have a son who is now approaching 11. Has anybody done...Reactions 0 reactions Comments5 repliesCarriers
SmartVest®️ | JAN 20, 2023 | HITE1955 With: ‘ DOUG ‘ INOGEN ONE G5 | IO- 500What does AnyOne THINK of the SmartVest®️? Or has AnyOne TRIED the SmartVest ®️ ? Would AnyOne think the SmartVest ®️, would be GREAT for AnyOne with ASTHMA, CHRONIC BRONCHITIS...Reactions 0 reactions Comments3 repliesDaily Treatment
Trikafta (Kaftrio) causing Bad Memory Loss?Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...Reactions 0 reactions Comments8 repliesTrikaftaSide EffectsTips & Advice
Will you take our In America survey and help others understand the true impact of CF?It is estimated that more than 30,000 children and adults in the United States have CF, which makes it a rare disease. Because of this, it is often a very...Reactions 0 reactions Comments0 repliesAwareness
Winter with CFWhen the temperatures fall, it's not uncommon for anxiety to rise in people with CF. What changes do you make to you or your family's routines in the colder months...Reactions 0 reactions Comments4 repliesDaily TreatmentCopingWeather
How many Creon 25,000Hi I’m a 47 year old secret cf patient in Stourbridge. For the last 3 years started having really bad stomachs, bloating and feeling blocked up. I’m trying to help...Reactions 0 reactions Comments7 replies
