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Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Just a Day in My Life Struggling Physically and Mentally

Hi, I joined this forum last year but until now I don't think I have posted anything about myself. I have talked to a few people here but it's been...

Adult Onset Atypical Cystic Fibrosis

In 2005, I had a severe case of black mold bronchitis. I went to a pulmonologist like I thought I should be tested. I had the sweat test done at...

Seeking Urgent Help and Guidance for My Brother

My younger brother, Nikunj, who is 18 years old, has been battling cystic fibrosis (CF) since he was diagnosed at the age of 9. His genetic mutation is R560S. Over...

Chit chat

Well it's 2025 & it's been a long time since I were last on here and I've gone thru so much in the time that I've had a break from...

Benefits PIP

Whilst having CF is there only two benefits you can claim i.e p.i.p and ESA or is there other things and grants out there anyone knows about that could help...

Newbie´s questions

Hello good day,im newbie! Do you have pain in your neck or near your neck? Which doctor diagnosed the disease? Did your pancreas come out good or bad on the...

Seeking perspectives on genetic engineering and cystic fibrosis

Good evening, I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project (EPQ) about public perceptions and ethical concerns surrounding...

Medicine in Israel

Does anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out of pocket....

Please help I need insurance advice

Hello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...

How many of you do IV antibiotics at home?

It’s a subject that differs with a lot of patients especially those living in the states when it comes to insurance (I’m in the UK) but I’m able to do...

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