FeaturedConnecting with Other CFersSince our theme for Cystic Fibrosis Awareness Month is BFFs (best fibrosis friends), let's talk about those connections! Do you feel like it is easier to talk about your disease...Reactions 0 reactions Comments1 replies
FeaturedDoes anyone remember Sammi's Story by Philippa Manning, 1993!?I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my experience with CF. I was hoping to include...Reactions 0 reactions Comments3 replies
Active 3 days agoCf group chatsWould there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or lung transplant? Or even if anyone wants any...Reactions 0 reactions Comments0 repliesDepressionDiet & NutritionTips & Advice
Active 3 days agoLet's Talk Food! Food is an essential part of life, but it can be a complicated subject when you have CF. What foods do you or your loved one eat most to get...Reactions 0 reactions Comments14 repliesCaregivingDiet & Nutrition
Active 6 days agoCo parentingDoes anyone have any advice on co parenting with a baby with cf? I think she’ll have to live mainly with me as I am her primary care giver anyways...Reactions 0 reactions Comments0 repliesCaregiving
CF In the elderlyI am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF...Reactions 0 reactions Comments9 repliesAwareness
My son with CF, CFRD, Neuropathy, and Liver Disease due to cfMy son was 6 months old dianosed with cf. Then the rest of the medical started. He is now 18 yrs old. On Trikafta since Nov 27, 2019. Since on...Reactions 0 reactions Comments1 repliesTrikafta
Getting older with cfI'm nearly 46 Every1 is talking about my 50th The doc told my dad when I was born she won't get to 5 yrs Now we have the magic pills...Reactions 0 reactions Comments9 replies
CF GutHi All, I am 61 years old, diagnosed with CF at age 5 and am 20 years post bilateral lung transplant. I have struggled with my gut my whole life...Reactions 0 reactions Comments0 repliesCoping
Please help I need insurance adviceHello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...Reactions 0 reactions Comments2 repliesCostInsurance & DisabilityLung Transplant
What are your favorite ways to de-stress?Whether you live with cystic fibrosis or care for someone living with CF, it's normal to feel overwhelmed from time to time. When feeling stressed or anxious, what are your...Reactions 0 reactions Comments11 replies
