Getting sickMy son has cf and every time the doctors take him off antibiotics he winds up back in the hospital. Has this happened to anyone else? The doctors don’t know...Reactions0reactionsComments7 repliesCaregivingDaily Treatment
Research on a new treatment for lung infections in patients with CFHi, I'm from a company doing research into a new, phage-based treatment for lung infections in CF patients and we'd really like to hear about your experiences being treated for...Reactions0reactionsComments1 replies
Pseudomanas Hi everyone, I have a beautiful 3 year old boy who as contracted this pseudomanas we started nebulized antibiotics in June and we finished them in September 4 weeks after...Reactions0reactionsComments2 replies
Working With CFHi everyone, I'm always curious what type of work other people with CF do? Are you able to work from home or have any accommodations? What do you love about...Reactions0reactionsComments0 repliesWork & Employment
Trikafta and Brain fog/headachesI am 42yo and began trikafta 3 years ago while in the drug study. I felt amazing at first and bumped up my fev1 from 40's to 60's. I did...Reactions0reactionsComments1 repliesTrikafta
catheter dressing recommendationHi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in Korea...Reactions0reactionsComments1 repliesCaregivingDaily TreatmentPICC Lines
TelehealthTelehealth is known to increase access to care and reduce costs. Would you ever consider using Telehealth to help manage your CF? Let's talk about it....Reactions0reactionsComments1 repliesHealthcare Team
Side effects from digestive enzymes Has anyone had a spouse that has had a digestive reaction ( diarrhea) from being with you?...Reactions0reactionsComments1 repliesGI SymptomsIntimacySide Effects
screening for colon cancerPatients above the age of 40 have a 5 to 10 times higher risk for colon cancer. Screening every 5 years?.......Reactions0reactionsComments4 replies
Battery powered travel nebulizerHello - we are looking into battery powered nebulizers. Any favorites? I'm looking at the Pari Trek and the Devilbiss - quite a difference in price between the two for...Reactions0reactionsComments2 replies