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Read conversations, start a discussion, and connect with others about cystic fibrosis.

New to Trikafta-please respond

Hi. I just started taking Trikafta a week ago after the sickest year of my life. I started it while on levaquin and doxy. I culture pseudomonas and recently had...

when a cf child reaches 18 and transitions into being an adult

My husband and I would love to hear from parents/caregivers with a CF child transitioning into the adult world. We are nervous about all the changes we're facing. Insurance is...

Trikfta side effects

I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this normally happens in children, adolescents, and young adults...

Will you take our In America survey and help others understand the true impact of cystic fibrosis?

The In America survey is now closed. To better understand the patient experience and realities of living with cystic fibrosis, we are fielding our Cystic Fibrosis In America survey. By...

Let's Talk Food!

Food is an essential part of life, but it can be a complicated subject when you have CF. What foods do you or your loved one eat most to get...

Dawn

My daughter Dawn had Cystic-Fibrosis. She was born in Oct of 64, and she lived for 32 years. Dawn passed in May of 95. She went to in CHOP Phila....

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Connecting with Other CFers

Let's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...

Cystic fibrosis

Recently my child gone ill frequently we had done genetic test, we found that he had a cystic fibrosis in that case we had a discussion with the doctor don’t...

Dating Advice

finding life overwhelming now. I am out of hospital nearly 6 months. its a massive thing. posaitive but trying to adapt too life out side hospital. I was in hospital...

Packing lots of new medications and equipment tips

So what is the best way to pack all my medications and medical equipment in a small room I've been moved from my large room to a quite small room...

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