FeaturedHospital admissions & fed up Is there any coping strategies people use whilst in a state of depression due to our CF bringing us down I mean I have my good days and laugh and...Reactions 0 reactions Comments8 repliesDaily TreatmentDepressionMental Health
FeaturedDoes anyone remember Sammi's Story by Philippa Manning, 1993!?I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my experience with CF. I was hoping to include...Reactions 0 reactions Comments3 replies
Active todayTrikafta (Kaftrio) causing Bad Memory Loss?Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...Reactions 0 reactions Comments7 repliesTrikaftaSide EffectsTips & Advice
Active 2 days agoGetting older with cfI'm nearly 46 Every1 is talking about my 50th The doc told my dad when I was born she won't get to 5 yrs Now we have the magic pills...Reactions 0 reactions Comments6 replies
Active 8 days agogrievingI recieved a call from my pulmonologist , After discussing what has been happening with my most recent bouts of CF. the question of wether I could obtain a lung...Reactions 0 reactions Comments0 replies
Will you take our In America survey and help others understand the true impact of CF?It is estimated that more than 30,000 children and adults in the United States have CF, which makes it a rare disease. Because of this, it is often a very...Reactions 0 reactions Comments0 repliesAwareness
SmartVest®️ | JAN 20, 2023 | HITE1955 With: ‘ DOUG ‘ INOGEN ONE G5 | IO- 500What does AnyOne THINK of the SmartVest®️? Or has AnyOne TRIED the SmartVest ®️ ? Would AnyOne think the SmartVest ®️, would be GREAT for AnyOne with ASTHMA, CHRONIC BRONCHITIS...Reactions 0 reactions Comments1 repliesDaily Treatment
Winter with CFWhen the temperatures fall, it's not uncommon for anxiety to rise in people with CF. What changes do you make to you or your family's routines in the colder months...Reactions 0 reactions Comments4 repliesDaily TreatmentCopingWeather
Texting buddies CF palsAnyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and if and when give advice if ever needed...Reactions 0 reactions Comments1 repliesAwarenessCopingDepression
Dietary TipsEating enough nutrients and calories each day can be challenging for children with CF. Share any tips you have on making sure your child eats enough while they're at school...Reactions 0 reactions Comments1 repliesDiet & Nutrition
How many Creon 25,000Hi I’m a 47 year old secret cf patient in Stourbridge. For the last 3 years started having really bad stomachs, bloating and feeling blocked up. I’m trying to help...Reactions 0 reactions Comments7 replies
Does food cause thicker mucus?Does certain food cystic fibrosis people eat cause thicker mucus or trouble breathing or inflammation? I notice when I eat certain food like crackers my mucus gets thicker and I...Reactions 0 reactions Comments0 replies
