FeaturedDoes anyone remember Sammi's Story by Philippa Manning, 1993!?I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my experience with CF. I was hoping to include...Reactions 0 reactions Comments2 replies
FeaturedTrikafta side effectsI’m a 58 yr old female. I started Trikafta 10 months ago. It has helped diminished my cough completely but I’ve started with a lot of other symptoms. I have...Reactions 0 reactions Comments13 repliesTrikafta
Active yesterdayWorking With CFHi everyone, I'm always curious what type of work other people with CF do? Are you able to work from home or have any accommodations? What do you love about...Reactions 0 reactions Comments0 repliesWork & Employment
FeaturedActive 7 days agoBeing a Parent with CFManaging a chronic illness can be a lot of work, but adding children to the mix makes it even harder. What is it like to be a parent with CF...Reactions 0 reactions Comments8 repliesCaregiving
Active 7 days agoCF CaregiversAnyone who cares for a loved one with CF is absolutely incredible. The amount of time they dedicate to their loved one's health and happiness constantly impacts their lives. Let's...Reactions 0 reactions Comments0 replies
Pseudomanas Hi everyone, I have a beautiful 3 year old boy who as contracted this pseudomanas we started nebulized antibiotics in June and we finished them in September 4 weeks after...Reactions 0 reactions Comments1 replies
Research on a new treatment for lung infections in patients with CFHi, I'm from a company doing research into a new, phage-based treatment for lung infections in CF patients and we'd really like to hear about your experiences being treated for...Reactions 0 reactions Comments0 replies
Trikafta and Brain fog/headachesI am 42yo and began trikafta 3 years ago while in the drug study. I felt amazing at first and bumped up my fev1 from 40's to 60's. I did...Reactions 0 reactions Comments1 repliesTrikafta
My son with CF, CFRD, Neuropathy, and Liver Disease due to cfMy son was 6 months old dianosed with cf. Then the rest of the medical started. He is now 18 yrs old. On Trikafta since Nov 27, 2019. Since on...Reactions 0 reactions Comments0 repliesTrikafta
The Challenges of Managing CFManaging cystic fibrosis can often require hours of treatment each day, hospital visits, etc. It's extremely challenging to manage CF, even when you're feeling well. Share any tips you have...Reactions 0 reactions Comments3 repliesCopingDaily Treatment
