Living

The unrelenting storm of cold and flu season has threatened to rock the boat. By boat–I mean me–a mom living with CF treading water. Tiny runny button noses and explosive...

I recently rekindled a relationship that had ended some months before as I felt my life slowly falling apart. I received difficult news at a doctor's appointment and felt overwhelmed...

Grief seems to go hand in hand with CF. It is impossible for sorrow not to rear its ugly head when battling a lifelong chronic illness... “chronic” stands for long-term...

Dear New CF Mom, I noticed you and your child today at Great Strides. Your newborn was wearing the same purple CF Fighter shirt my daughter was wearing. So many...

Getting sick is part of being human. It may be from a virus or a bacterium. But people get sick, and it can be hard to feed your body well...

Sometimes, I introspectively peak at my mangled innards and wonder how this all came to be? You manage one chronic illness your whole life? Sure, no problem. You get used...

Sometimes in cystic fibrosis (CF) you just happen to pull the short straw. It doesn't matter how compliant you are with daily treatment, or keeping a “CF healthy” diet. You...

When living with a chronic illness, I find my mind drifting into various stages, emotions and feelings. I often get comments from people, praising my strength and positivity, solely for...

I had a very interesting conversation with one of my CF nurses the other day just as we were preparing for the dreaded monthly port flush. As I mentally psyched...

I sometimes feel overwhelmed with all the things I must do for my health. As soon as I finish one task there is another one waiting to be completed. On...

Let's get back into cystic fibrosis (CF) and the color orange. In my last article, I discussed Halloween, cautious living, and medication. Let’s keep talking about the color orange. One...

Ten years ago, my fiance and I adopted a fluffy dilute calico cat from a lady we met in a Target parking lot. She was beautiful with green eyes, gray...

It’s almost that time of year where my city does cystic fibrosis (CF) walks to raise money and awareness for CF. Fundraising is my calling, I love it! I also...

Content warning: This article contains mention of thoughts of self-harm. I was involved in a study the past two weeks that involved me taking my blood pressure twice a day...

In a previous article I wrote about the mixed feelings and confusing thoughts I have had since the modulators – Orkambi, Symdeko, and Trikafta – came out. I know that...

Once upon a time, I apologized for being unreliable and someone once told me to stop apologizing. They said, “Your disease is unreliable, not you.” At the time, it was...

Every now and then I get to feeling down. Sometimes, small, and simple things can bring me down. For example, not being able to go out to dinner with a...

I figured, with it being Cystic Fibrosis (CF) Awareness Month, this was a great time to look back on my journey over the past year. So much has happened, I...

My favorite thing about having cystic fibrosis (CF) is that most often no one can actually tell that I have CF or rather, anything unique about me at all. I...