When Smoke Wreaks HavocWhen we started Margo’s last week of kindergarten, I didn’t expect anything out of the ordinary to happen. I certainly didn’t expect...reactions2comments
What to Do after Job LossMore and more people with cystic fibrosis (CF) are working. In fact, there are more CF patients in employment than ever before...reactionscomments
Nutrition and Sickness: Importance of Meal PrepI previously wrote about loss of appetite and nausea. Getting adequate nutrition to help you heal as you battle an infection is...reactionscomments
The Hidden Mental Load of CF CareIn my opinion, the number one stressor for adults with CF is the silent mental load of CF care. The “BS of...reactions8comments
Helpful Hints for Long-Distance CaregivingBeing a caregiver can be rewarding but also draining. In many cases, caregivers and those they care for live nearby or even...reactionscomments
Measuring Lung Function with a CT ScanTests, tests, and more tests. Living with CF, it feels like you’re constantly scheduling and completing various testing to make sure you’re...reactionscomments
Manage Unwanted Trikafta Weight GainOne of the biggest challenges with Trikafta is that as our bodies become healthy, the excessive calories are no longer needed, so...reactionscomments
Stress LessContent warning: This article contains mention of thoughts of self-harm. I was involved in a study the past two weeks that involved...reactions4comments
Using My Treatment Time for GoodSeventy-five minutes a day lost. That is how I felt about my treatment time for most of my life. Yes, I would...reactionscomments
Transitioning from Pediatric to Adult CF CareAs an adolescent with cystic fibrosis (CF), I remember sensing a dark cloud over my impending transition from pediatric to adult CF...reactionscomments
Ring, Ring, Ring! Hello? It's Your CF Ears CallingHave you ever heard that curious folklore that says when your ears ring it means someone must be talking about you? I...reactionscomments
Morning RoutinesIn a previous article I wrote, I talked about how to get better sleep. Getting quality sleep can sometimes be difficult when...reactionscomments
How I Keep My Medication OrganizedSometimes the most useful guidance to help make a situation more efficient is the most obvious. We get so stuck in our...reactionscomments
Opioids for Cystic Fibrosis Pain: Benefits, Risks, and ConcernsResearch shows that more than 75 percent of adults with cystic fibrosis (CF) live with chronic pain. Many use prescription opioids to...reactions2comments
Ask the Health Leaders: Grief in the CF CommunityPeople with cystic fibrosis (CF) often deal with grief in the CF community. We asked the CF Health Leaders what their experiences...reactionscomments
What It's Like Dating With Cystic FibrosisDating when you have cystic fibrosis (CF) can be a lot of things. It can be hard, frustrating, tiresome, and overwhelming. But...reactionscomments
Micro Habits and Small GoalsMy husband and I went to our local mega-store the other day. Think Costco’s or Sam’s and that is where we were...reactionscomments
A Big StepRecently I did something with my kids for the first time that previously, I didn’t think would be possible. I took them...reactionscomments
Letting Yourself Be LovedI’ve been doing a lot of inner work the past few weeks. I’ve spent so much time focusing on my physical health...reactionscomments
Tips for Employment with Cystic FibrosisAs Cystic Fibrosis patients continue to age, it is important to consider what types of jobs and careers would suit them. With...reactions2comments
