Morning RoutinesIn a previous article I wrote, I talked about how to get better sleep. Getting quality sleep can sometimes be difficult when you have cystic fibrosis (CF). But sleep is...reactionscomments
How I Keep My Medication OrganizedSometimes the most useful guidance to help make a situation more efficient is the most obvious. We get so stuck in our ways that it’s hard to see how beneficial...reactionscomments
Ask the Health Leaders: Grief in the CF CommunityPeople with cystic fibrosis (CF) often deal with grief in the CF community. We asked the CF Health Leaders what their experiences have been like when dealing with grief. Here's...reactionscomments
What It's Like Dating With Cystic FibrosisDating when you have cystic fibrosis (CF) can be a lot of things. It can be hard, frustrating, tiresome, and overwhelming. But it can also be fun, exciting, and a...reactionscomments
Micro Habits and Small GoalsMy husband and I went to our local mega-store the other day. Think Costco’s or Sam’s and that is where we were. As we were grabbing our monthly bulk items...reactionscomments
A Big StepRecently I did something with my kids for the first time that previously, I didn’t think would be possible. I took them both, by myself, to eat inside at Chick-Fil-A...reactionscomments
Letting Yourself Be LovedI’ve been doing a lot of inner work the past few weeks. I’ve spent so much time focusing on my physical health I sometimes forget my mental health needs my...reactionscomments
Tips for Employment with Cystic FibrosisAs Cystic Fibrosis patients continue to age, it is important to consider what types of jobs and careers would suit them. With advancements in both technology and medicine, more opportunities...reactions2comments
My Rare Cystic Fibrosis Diagnosis StoryGrowing up with a rare disease, I didn’t realize how truly special I was. The novelty of my existence and the chance match of my genetics was completely lost on...reactionscomments
The Many Colors of Cystic Fibrosis: MetallicInspired by the song “Joseph’s Coat” from Joseph and the Technicolor Dreamcoat, I was reminded to explore colors such as silver, gold, and other metals. If I see a rusted...reactionscomments
Preparing for TrikaftaWith the FDA approval of Trikafta for kids 2-5 years old, our daughter will be starting the medication earlier than expected. She turns six in July so we were already...reactions2comments
Hospitalization Creature ComfortsHave you ever heard of creature comforts? I’ve listened to this saying occasionally. Creature comfort is something that helps people feel physical comfort. This can look like certain foods, specific...reactionscomments
Dealing with typical illnesses with my CF-erA few months ago, we went on a family vacation to the beach. Because it was early April, I figured the typical winter cold and flu illnesses were no longer...reactionscomments
A Letter to My Morning LungsDear Morning Lungs, I’m writing to tell you that you’re doing your best. I don’t blame you for your sluggish mood every morning. I am sluggish and tired too. It’s...reactionscomments
In Sickness and in Health: Telling my Partner I have CFI have lived with cystic fibrosis (CF) my entire life, I know it like the back of my hand. With CF being a rare disease, there are still a lot...reactions5comments
30 Year WaitHello all. This is my story. I was really let down medically. 30 years ago, when I was 7 months pregnant with my second child, they was giving pregnant women...reactionscomments
Remembering Kadeem MorganWe are incredibly saddened to share that CysticFibrosis.com team member Kadeem Morgan passed away on June 27, 2023. Kadeem was a talented musician and DJ who also went by the...reactionscomments
Ask the Health Leaders: More Than Our LungsA common misconception about cystic fibrosis is that it only impacts the lungs. We asked our Health Leaders what other parts of their health are impacted by CF. Read on...reactions3comments
A Sniffle Away from Losing My MindThe unrelenting storm of cold and flu season has threatened to rock the boat. By boat–I mean me–a mom living with CF treading water. Tiny runny button noses and explosive...reactionscomments
Life, Love, and LungsI recently rekindled a relationship that had ended some months before as I felt my life slowly falling apart. I received difficult news at a doctor's appointment and felt overwhelmed...reactions2comments
