A Sniffle Away from Losing My MindThe unrelenting storm of cold and flu season has threatened to rock the boat. By boat–I mean me–a mom living with CF treading water. Tiny runny button noses and explosive... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Life, Love, and LungsI recently rekindled a relationship that had ended some months before as I felt my life slowly falling apart. I received difficult news at a doctor's appointment and felt overwhelmed... By Jennifer Oramas4 min readBookmark for laterReactions 0 reactions Comments0 comments
Learning to Live with GriefGrief seems to go hand in hand with CF. It is impossible for sorrow not to rear its ugly head when battling a lifelong chronic illness... “chronic” stands for long-term... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments1 comments
A Letter To A New CF MomDear New CF Mom, I noticed you and your child today at Great Strides. Your newborn was wearing the same purple CF Fighter shirt my daughter was wearing. So many... By Meagan Brackeen3 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Combat Loss of Appetite and NauseaGetting sick is part of being human. It may be from a virus or a bacterium. But people get sick, and it can be hard to feed your body well... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Too Much Immune System for Me: Immunosuppressants and CFSometimes, I introspectively peak at my mangled innards and wonder how this all came to be? You manage one chronic illness your whole life? Sure, no problem. You get used... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
Being Diagnosed With Difficult InfectionsSometimes in cystic fibrosis (CF) you just happen to pull the short straw. It doesn't matter how compliant you are with daily treatment, or keeping a “CF healthy” diet. You... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments3 comments
The Different Mindsets of Coping with IllnessWhen living with a chronic illness, I find my mind drifting into various stages, emotions and feelings. I often get comments from people, praising my strength and positivity, solely for... By Mikayla Bianchin3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Needle Phobia Is Not A Fear Of NeedlesI had a very interesting conversation with one of my CF nurses the other day just as we were preparing for the dreaded monthly port flush. As I mentally psyched... By Emma Boniface3 min readBookmark for laterReactions 0 reactions Comments0 comments
Why Can Daily Tasks Feel Overwhelming?I sometimes feel overwhelmed with all the things I must do for my health. As soon as I finish one task there is another one waiting to be completed. On... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Orange (Part 2)Let's get back into cystic fibrosis (CF) and the color orange. In my last article, I discussed Halloween, cautious living, and medication. Let’s keep talking about the color orange. One... By Nicole Kohr3 min readBookmark for laterReactions 0 reactions Comments0 comments
Saying Goodbye to a CF Support SystemTen years ago, my fiance and I adopted a fluffy dilute calico cat from a lady we met in a Target parking lot. She was beautiful with green eyes, gray... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments2 comments
My Brother, My HeroMy baby brother was born with CF. He struggled as a child, teenager, and young adult. We were always told that he wouldn't live to be 16, but let me... By CommunityMember03d33a1 min readBookmark for laterReactions 0 reactions Comments0 comments
Virtual FundraisingIt’s almost that time of year where my city does cystic fibrosis (CF) walks to raise money and awareness for CF. Fundraising is my calling, I love it! I also... By Mikayla Bianchin2 min readBookmark for laterReactions 0 reactions Comments0 comments
Stress LessContent warning: This article contains mention of thoughts of self-harm. I was involved in a study the past two weeks that involved me taking my blood pressure twice a day... By Jennifer Oramas4 min readBookmark for laterReactions 0 reactions Comments0 comments
Complicated Emotions With CFIn a previous article I wrote about the mixed feelings and confusing thoughts I have had since the modulators – Orkambi, Symdeko, and Trikafta – came out. I know that... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments2 comments
Six Things You Don't Need to Apologize for with CFOnce upon a time, I apologized for being unreliable and someone once told me to stop apologizing. They said, “Your disease is unreliable, not you.” At the time, it was... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments2 comments
A New Reality With CFEvery now and then I get to feeling down. Sometimes, small, and simple things can bring me down. For example, not being able to go out to dinner with a... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments2 comments
A Look Back On My CF JourneyI figured, with it being Cystic Fibrosis (CF) Awareness Month, this was a great time to look back on my journey over the past year. So much has happened, I... By Jennifer Oramas4 min readBookmark for laterReactions 0 reactions Comments0 comments
Disability Visibility: The Super CF ChameleonMy favorite thing about having cystic fibrosis (CF) is that most often no one can actually tell that I have CF or rather, anything unique about me at all. I... By Mikayla Bianchin2 min readBookmark for laterReactions 0 reactions Comments0 comments