Why Can Daily Tasks Feel Overwhelming?I sometimes feel overwhelmed with all the things I must do for my health. As soon as I finish one task there is another one waiting to be completed. On... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Many Colors of Cystic Fibrosis: Orange (Part 2)Let's get back into cystic fibrosis (CF) and the color orange. In my last article, I discussed Halloween, cautious living, and medication. Let’s keep talking about the color orange. One... By Nicole Kohr3 min readBookmark for laterReactions 0 reactions Comments0 comments
Saying Goodbye to a CF Support SystemTen years ago, my fiance and I adopted a fluffy dilute calico cat from a lady we met in a Target parking lot. She was beautiful with green eyes, gray... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Brother, My HeroMy baby brother was born with CF. He struggled as a child, teenager, and young adult. We were always told that he wouldn't live to be 16, but let me... By CommunityMember03d33a1 min readBookmark for laterReactions 0 reactions Comments0 comments
Virtual FundraisingIt’s almost that time of year where my city does cystic fibrosis (CF) walks to raise money and awareness for CF. Fundraising is my calling, I love it! I also... By Mikayla Bianchin2 min readBookmark for laterReactions 0 reactions Comments0 comments
Stress LessContent warning: This article contains mention of thoughts of self-harm. I was involved in a study the past two weeks that involved me taking my blood pressure twice a day... By Jennifer Oramas4 min readBookmark for laterReactions 0 reactions Comments0 comments
Complicated Emotions With CFIn a previous article I wrote about the mixed feelings and confusing thoughts I have had since the modulators – Orkambi, Symdeko, and Trikafta – came out. I know that... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments0 comments
Six Things You Don't Need to Apologize for with CFOnce upon a time, I apologized for being unreliable and someone once told me to stop apologizing. They said, “Your disease is unreliable, not you.” At the time, it was... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments1 comments
A New Reality With CFEvery now and then I get to feeling down. Sometimes, small, and simple things can bring me down. For example, not being able to go out to dinner with a... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments1 comments
A Look Back On My CF JourneyI figured, with it being Cystic Fibrosis (CF) Awareness Month, this was a great time to look back on my journey over the past year. So much has happened, I... By Jennifer Oramas4 min readBookmark for laterReactions 0 reactions Comments0 comments
Disability Visibility: The Super CF ChameleonMy favorite thing about having cystic fibrosis (CF) is that most often no one can actually tell that I have CF or rather, anything unique about me at all. I... By Mikayla Bianchin2 min readBookmark for laterReactions 0 reactions Comments0 comments
2023 CF Awareness Month: BFFsMay is Cystic Fibrosis Awareness Month, and we are celebrating BFFs (best fibrosis friends) in the cystic fibrosis (CF) community! All month long we will be highlighting ways to safely... By Cystic-Fibrosis.com Team1 min readBookmark for laterReactions 0 reactions Comments0 comments
BFF Distanced Dining GiveawayIt's Cystic Fibrosis (CF) Awareness Month, and we are celebrating BFFs (best fibrosis friends). Since friends that both have CF can't be in close proximity to each other, we want... By Cystic-Fibrosis.com Team1 min readBookmark for laterReactions 0 reactions Comments2 comments
Why I Sobbed Registering My Son For KindergartenI do a lot of self-reflection humbly standing at my kitchen sink. Lost in the mundane task of dishwashing, I find it easy to process through my emotions–sloshing, scrubbing, and... By Janeil Whitworth3 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Am Sleeping Through the Trikafta InsomniaSleeping has been a great difficulty since starting Trikafta. I am not alone, the Trikafta tribe are pretty much all in agreement on this one. Those peachy pills do not like... By Emma Boniface2 min readBookmark for laterReactions 0 reactions Comments0 comments
CF and Partner PTSDBeing a partner to someone who has cystic fibrosis (CF) can be hard. It can be exhausting, scary, and confusing. As someone with CF who has a partner, my husband... By Katelyn Harlow2 min readBookmark for laterReactions 0 reactions Comments0 comments
CF and VeganismAn essential part of staying healthy with CF is the diet. Often CF patients are told to include high-fat, high-calorie foods. In my experience, this was due to the probability... By Mikayla Bianchin4 min readBookmark for laterReactions 0 reactions Comments0 comments
Five Actions That Get in the Way of My AppetiteFor the first time, many people with CF have been able to focus less on gaining and maintaining weight and more on living life. Finally, they can eat a normal... By Janeil Whitworth2 min readBookmark for laterReactions 0 reactions Comments0 comments
Feelings of Survivor's GuiltI hear a lot about survivor's guilt as a cystic fibrosis (CF) patient. I’ve had moments in my life I feel it creeping up when others talk about struggles with... By Jennifer Oramas3 min readBookmark for laterReactions 0 reactions Comments0 comments
Family DynamicsFamilies have many dynamics. There is a dynamic between the parents and children. The children in a family have their own dynamic. And the parents have their own dynamic, too... By Katelyn Harlow3 min readBookmark for laterReactions 0 reactions Comments1 comments