"Breathing Through A Straw" Cody & IIt has taken me over 30 years, a Covid19 Pandemic & the gentle cattle prod of my friend and publisher to tell...reactionscomments
CF Carrier with Daughter who passed away at age 26 from CFWhen I was young I had allergies to grass, mold, dust, cats, and dogs. In my 20’s I got allergy shots which...reactionscomments
'The Miserable Drug'I purposefully took my time considering whether or not to publish a recent blog about my experience with Trikafta/Kaftrio as expectations of...reactions1comment
Trikafta - first 3 daysBackground: 55-year-old Canadian guy with CF. FEV1 42%. Pretty stable, but in the past few years a lot, and I mean a...reactions3comments
Diagnoised as an adult with rare form of cFHello, I am a 57-year-old woman, who was first diagnosed with a very rare form of CF. I was diagnosed at the...reactionscomments
My life story with cfI was diagnosed with CF, two copies of delta f508 at two weeks of age; after I had a meconium ileostomy, several...reactions3comments
Survivors GuiltWith a diagnosis of only 1 gene at the of 10, mom and the family seemed at ease. Moving forward to 17...reactions1comment
Cystic Fibrosis BabesI am the proud mama to Karlee, 15, and Maximus, 14, who both have Cystic Fibrosis. CF has never defined who they...reactionscomments
CF Carrier symptomsI found out a few months ago (in my thirties) I am a CF carrier. Whilst I know that carrier symptoms cannot...reactions5comments
Johanna CF patient MomMy daughter's pancreas produces enough enzymes but apparently sometimes (not predictable) the pancreas produces enzymes in a too thick mucus that can’t...reactions1comment
My niece is now in her 40'sMy beautiful niece was diagnosed with cystic fibrosis when she was four years old. And she has been hospitalized many times. However...reactions1comment
Cystic fibrosis carrierI always experienced from childhood continuous bronchitis attacks that lasted up to my early thirties but never was I given an explanation...reactionscomments
10 Weeks PregnantHello readers! My name is Kija and I have had CF since birth. I am 18 years old and I am currently...reactions3comments
Welcome to Cystic-Fibrosis.com StoriesAt Cystic-Fibrosis.com, we believe that we are stronger together than we are alone. Living with cystic fibrosis can be a challenge, but...reactionscomments
MeI was diagnosed with CF at about 7 months old. And only have been hospitalized 2 times since birth. And the last...reactionscomments
Diagnosed with CF @ 59I had Acute & Chronic pancreatitis was often sick. But no doctor ever suspected CF. Not even when I had a lung...reactionscomments
Trikafta miracleI'm Rosi and I'm a 22-year-old CF warrior from Bulgaria. In 2018 I was put on the waiting list for a lung...reactions1comment
My journey with 3 CF brothersFirst off I want to say my heart goes out to ALL battling CF survivors and loved ones that were taken to...reactions4comments
My Time in QuarantineWhat is quarantine? Well, of course we don't want to get others' sick. So, in a way it is a humanitarian endeavor...reactionscomments
Diagnosed at 31 with infertilityI had the perfect 2019 - Just married the love of my life and began our hopeful journey into parenthood. After 6...reactionscomments
