Diagnoised as an adult with rare form of cFHello, I am a 57-year-old woman, who was first diagnosed with a very rare form of CF. I was diagnosed at the...reactionscomments
"Breathing Through A Straw" Cody & IIt has taken me over 30 years, a Covid19 Pandemic & the gentle cattle prod of my friend and publisher to tell...reactionscomments
My life story with cfI was diagnosed with CF, two copies of delta f508 at two weeks of age; after I had a meconium ileostomy, several...reactions3comments
CF Carrier with Daughter who passed away at age 26 from CFWhen I was young I had allergies to grass, mold, dust, cats, and dogs. In my 20’s I got allergy shots which...reactionscomments
Survivors GuiltWith a diagnosis of only 1 gene at the of 10, mom and the family seemed at ease. Moving forward to 17...reactions1comment
CF Carrier symptomsI found out a few months ago (in my thirties) I am a CF carrier. Whilst I know that carrier symptoms cannot...reactions5comments
Johanna CF patient MomMy daughter's pancreas produces enough enzymes but apparently sometimes (not predictable) the pancreas produces enzymes in a too thick mucus that can’t...reactions1comment
My niece is now in her 40'sMy beautiful niece was diagnosed with cystic fibrosis when she was four years old. And she has been hospitalized many times. However...reactions1comment
Cystic fibrosis carrierI always experienced from childhood continuous bronchitis attacks that lasted up to my early thirties but never was I given an explanation...reactionscomments
'The Miserable Drug'I purposefully took my time considering whether or not to publish a recent blog about my experience with Trikafta/Kaftrio as expectations of...reactions1comment
MeI was diagnosed with CF at about 7 months old. And only have been hospitalized 2 times since birth. And the last...reactionscomments
Diagnosed with CF @ 59I had Acute & Chronic pancreatitis was often sick. But no doctor ever suspected CF. Not even when I had a lung...reactionscomments
Trikafta miracleI'm Rosi and I'm a 22-year-old CF warrior from Bulgaria. In 2018 I was put on the waiting list for a lung...reactions1comment
My Time in QuarantineWhat is quarantine? Well, of course we don't want to get others' sick. So, in a way it is a humanitarian endeavor...reactionscomments
Diagnosed at 31 with infertilityI had the perfect 2019 - Just married the love of my life and began our hopeful journey into parenthood. After 6...reactionscomments
Born too soonMy son Mark was diagnosed in 1976 and passed away from Cystic Fibrosis in 1980. There was very little treatment available for...reactionscomments
My journey with 3 CF brothersFirst off I want to say my heart goes out to ALL battling CF survivors and loved ones that were taken to...reactions4comments
Pancreatic Cystic FibrosisMy 12-year-old daughter was recently diagnosed with Pancreatic CF. It seems that her case is very rare. We are struggling to find...reactionscomments
Would I have ever been diagnosed...if it weren't for....I wasn't diagnosed with CF and bronchiectasis till I was 26 years old, I am now 34. All my life, I was...reactionscomments
My Grandson hasCFIn a blood test on the mother of my grandsons while she was pregnant we were told the twin babies had markers...reactionscomments
