Born too soonMy son Mark was diagnosed in 1976 and passed away from Cystic Fibrosis in 1980. There was very little treatment available for...reactionscomments
Pancreatic Cystic FibrosisMy 12-year-old daughter was recently diagnosed with Pancreatic CF. It seems that her case is very rare. We are struggling to find...reactionscomments
Would I have ever been diagnosed...if it weren't for....I wasn't diagnosed with CF and bronchiectasis till I was 26 years old, I am now 34. All my life, I was...reactionscomments
My Grandson hasCFIn a blood test on the mother of my grandsons while she was pregnant we were told the twin babies had markers...reactionscomments
My diagnosis storyI had breathing issues from the time I was 9. I had my ups and downs. In my late teens, I was...reactions1comment
My story!Until I read about salty skin, I never put it all together! Brain fog, constant sinus infections, my throat is always making...reactionscomments
Runner despite CFHi everyone, I'm Morgan. A few months ago I started Trikafta, and literally changed everything. For about a year and a half...reactionscomments
My daughter, Stephanie💜Stephanie was a fighter. She loved to travel. She went to college in the U.K. She was an amazing young lady. I...reactions1comment
Baby Number 5After having four children we decided that four was plenty enough for us. So during our fourth child's birth we decided to...reactions1comment
Three SistersA family of 3 girls, the youngest had CF, the middle child and I, the oldest, are carriers. She was not diagnosed...reactions1comment
So Much More Than CFMy daughter Caroline is two years old. She is brimming with joy and curiosity. She seeks out adventure everywhere she goes. She...reactionscomments
His fight is my fightI met my boyfriend in college almost 2 years ago. I always wondered why he cleared his throat so often and why...reactions4comments
Me living with SICK LIFE.I am 44 going on 45 this year, I have cystic fibrosis and multiple sclerosis and had thyroid cancer. I live in...reactionscomments
Cf and portsI started getting IV's frequently in 1990. I was blowing them left and right due to meds. I started getting picc lines...reactionscomments
Friends for lifeI have CF and also grew up with a friend that has CF. We lived in a small town of about 2,400...reactionscomments
CF and FibromyalgiaI am 47 and was recently diagnosed with Fibromyalgia. I have been experiencing pain in my back, arms, hands, and hips. I...reactions1comment
My HeroesI am a Grandma with an incredible 16-month-old CF warrior! My heroes are his parents, who have absolutely turned their lives upside...reactions1comment
David's lawHello, my name is David. I have cystic fibrosis and other massive major medical conditions. Today I am writing you this story...reactionscomments
What I Want People to Know About Cystic FibrosisCystic fibrosis is different for every patient and should be treated based on the patient, not some textbook description of what the...reactions1comment
Relationships With CFI find having cf is hard sometimes with relationships. As I've been seeing my partner now 8 months she has a 9-month-old...reactions4comments
