My Trikafta Experience in AustraliaOn Thursday morning, 11 August 2022, I started Trikafta. My lung function FEV1(%) is 55-60 and FEV1(L) 1.8L. In the past year I reached 66% at 2L but I wasn’t... By abbeykahui5 min readBookmark for laterReactions0reactionsComments4 comments
Spain or BustBefore my CF diagnosis (at age 67) I was hospitalized for 4 days on the usual antibiotics, nebulized medications, chest percussions and respiratory therapy visits. The steroid mania was at... By P Staes1 min readBookmark for laterReactions0reactionsComments0 comments
How I Lived My Life with CFCystic fibrosis (CF). I have been living with this disease from birth. It affects my life so much and hurts me. I was told it was a family illness which... By John121 min readBookmark for laterReactions0reactionsComments0 comments
My Health History with CFI was born in 1969 and adopted at 2 weeks old by my mother who was a nurse. I was diagnosed with CF at 18 months in 1970. I had... By hope4cure1 min readBookmark for laterReactions0reactionsComments0 comments
On the Road to Better HealthSo as you guys may know I posted about being in hospital for a number of months. The longest and scariest admission of my life! I hope that I, or... By Fightingforbreath3 min readBookmark for laterReactions0reactionsComments0 comments
30 Year WaitHello all. This is my story. I was really let down medically. 30 years ago, when I was 7 months pregnant with my second child, they was giving pregnant women... By Salsybar1 min readBookmark for laterReactions0reactionsComments0 comments
My Brother, My HeroMy baby brother was born with CF. He struggled as a child, teenager, and young adult. We were always told that he wouldn't live to be 16, but let me... By CommunityMember03d33a1 min readBookmark for laterReactions0reactionsComments0 comments
My Child's Trikafta FlareThe first year on Trikafta was the best my 9 year old has felt, but he picked up every germ a year and a half in. First, he got strep... By TeamTristan1 min readBookmark for laterReactions0reactionsComments1 comments
Cycling Across America with CFI was diagnosed with CF at birth, and currently am 44. I am lucky enough to be part of the evolution of changing treatments. If I look back 30-40 years... By CFCyclistAU2 min readBookmark for laterReactions0reactionsComments2 comments
A Day in the Life of a CF WarriorThis is just brief since I can have an attack at any time. So, I wake up at around 8:30am to take all my meds nebulizer, inhalers, vest, mental health... By Fightingforbreath1 min readBookmark for laterReactions0reactionsComments0 comments
One WishIf I was granted the ability to make one wish, what I would wish for would shock many people. I would wish for all CF patients around the world to... By Kadeem Morgan1 min readBookmark for laterReactions0reactionsComments1 comments
CFRDMy lungs are failing. I have CFRD now along with high blood pressure and high heart rates, I have found I am more tired, get no sleep, hurt a lot... By CommunityMember4026331 min readBookmark for laterReactions0reactionsComments0 comments
My quiet timeWhen things get bad I have discovered “Quiet Time”. I typically shut off all noise, TV, radio, etc. I like to lay down, close my eyes and most of the... By LeslieCF581 min readBookmark for laterReactions0reactionsComments0 comments
What helps me relax..When I’m feeling stressed or anxious, most of the time I turn to my dog. He’s my #1 supporter and my best friend. He knows how to really cheer me... By d.roysdon1 min readBookmark for laterReactions0reactionsComments0 comments
What Helps Me RelaxWhen cystic fibrosis or other things in life get overwhelming, it helps me to do something creative or calming like crocheting while watching a favorite show, coloring, watercolor painting, bracelet... By cftwin21 min readBookmark for laterReactions0reactionsComments1 comments
What Helps Me RelaxWhen I'm having a stressful, or bad day because of everything that comes with CF I enjoy making some hot tea, turning on some music, and just sitting still for... By CommunityMember1671 min readBookmark for laterReactions0reactionsComments0 comments
What helps me relax when Cf stresses me outHello, I will be 50 in June. About 18 years ago when I would get hospitalized my pulmonary rehab person got me into drawing and coloring mandalas. She would teach... By cfcndlelady1 min readBookmark for laterReactions0reactionsComments0 comments
Trikafta - first 3 daysBackground: 55-year-old Canadian guy with CF. FEV1 42%. Pretty stable, but in the past few years a lot, and I mean a lot, more productive cough and more flare-ups that... By Wurdy2 min readBookmark for laterReactions0reactionsComments3 comments
Diagnoised as an adult with rare form of cFHello, I am a 57-year-old woman, who was first diagnosed with a very rare form of CF. I was diagnosed at the age of 26. I then had to have... By Nyzki1 min readBookmark for laterReactions0reactionsComments0 comments
"Breathing Through A Straw" Cody & IIt has taken me over 30 years, a Covid19 Pandemic & the gentle cattle prod of my friend and publisher to tell Cody's story... my way of saying thank you... By mark1 min readBookmark for laterReactions0reactionsComments0 comments