Stories

My baby brother was born with CF. He struggled as a child, teenager, and young adult. We were always told that he wouldn't live to be 16, but let me...

The first year on Trikafta was the best my 9 year old has felt, but he picked up every germ a year and a half in. First, he got strep...

I was diagnosed with CF at birth, and currently am 44. I am lucky enough to be part of the evolution of changing treatments. If I look back 30-40 years...

This is just brief since I can have an attack at any time. So, I wake up at around 8:30am to take all my meds nebulizer, inhalers, vest, mental health...

If I was granted the ability to make one wish, what I would wish for would shock many people. I would wish for all CF patients around the world to...

My lungs are failing. I have CFRD now along with high blood pressure and high heart rates, I have found I am more tired, get no sleep, hurt a lot...

When things get bad I have discovered “Quiet Time”. I typically shut off all noise, TV, radio, etc. I like to lay down, close my eyes and most of the...

When I’m feeling stressed or anxious, most of the time I turn to my dog. He’s my #1 supporter and my best friend. He knows how to really cheer me...

When cystic fibrosis or other things in life get overwhelming, it helps me to do something creative or calming like crocheting while watching a favorite show, coloring, watercolor painting, bracelet...

When I'm having a stressful, or bad day because of everything that comes with CF I enjoy making some hot tea, turning on some music, and just sitting still for...

Hello, I will be 50 in June. About 18 years ago when I would get hospitalized my pulmonary rehab person got me into drawing and coloring mandalas. She would teach...

Background: 55-year-old Canadian guy with CF. FEV1 42%. Pretty stable, but in the past few years a lot, and I mean a lot, more productive cough and more flare-ups that...

Hello, I am a 57-year-old woman, who was first diagnosed with a very rare form of CF. I was diagnosed at the age of 26. I then had to have...

It has taken me over 30 years, a Covid19 Pandemic & the gentle cattle prod of my friend and publisher to tell Cody's story... my way of saying thank you...

I was diagnosed with CF, two copies of delta f508 at two weeks of age; after I had a meconium ileostomy, several bad feet of intestines removed, appendix removed, and...

When I was young I had allergies to grass, mold, dust, cats, and dogs. In my 20’s I got allergy shots which helped and then took allergy pills as I...

With a diagnosis of only 1 gene at the of 10, mom and the family seemed at ease. Moving forward to 17 and the doctors somehow found the second gene...

I found out a few months ago (in my thirties) I am a CF carrier. Whilst I know that carrier symptoms cannot begin to compare to those who have CF...

My daughter's pancreas produces enough enzymes but apparently sometimes (not predictable) the pancreas produces enzymes in a too thick mucus that can’t pass to the bladder therefore it stays in...

My beautiful niece was diagnosed with cystic fibrosis when she was four years old. And she has been hospitalized many times. However, she has always been a fighter and hasn't...