My quiet timeWhen things get bad I have discovered “Quiet Time”. I typically shut off all noise, TV, radio, etc. I like to lay down, close my eyes and most of the... By LeslieCF58Bookmark for later Reactions 0 reactions Comments0 comments
What helps me relax..When I’m feeling stressed or anxious, most of the time I turn to my dog. He’s my #1 supporter and my best friend. He knows how to really cheer me... By d.roysdonBookmark for later Reactions 0 reactions Comments0 comments
What Helps Me RelaxWhen cystic fibrosis or other things in life get overwhelming, it helps me to do something creative or calming like crocheting while watching a favorite show, coloring, watercolor painting, bracelet... By cftwin2Bookmark for later Reactions 0 reactions Comments0 comments
What Helps Me RelaxWhen I'm having a stressful, or bad day because of everything that comes with CF I enjoy making some hot tea, turning on some music, and just sitting still for... By CommunityMember167Bookmark for later Reactions 0 reactions Comments0 comments
What helps me relax when Cf stresses me outHello, I will be 50 in June. About 18 years ago when I would get hospitalized my pulmonary rehab person got me into drawing and coloring mandalas. She would teach... By cfcndleladyBookmark for later Reactions 0 reactions Comments0 comments
Trikafta - first 3 daysBackground: 55-year-old Canadian guy with CF. FEV1 42%. Pretty stable, but in the past few years a lot, and I mean a lot, more productive cough and more flare-ups that... By WurdyBookmark for later Reactions 0 reactions Comments0 comments
Diagnoised as an adult with rare form of cFHello, I am a 57-year-old woman, who was first diagnosed with a very rare form of CF. I was diagnosed at the age of 26. I then had to have... By NyzkiBookmark for later Reactions 0 reactions Comments0 comments
"Breathing Through A Straw" Cody & IIt has taken me over 30 years, a Covid19 Pandemic & the gentle cattle prod of my friend and publisher to tell Cody's story... my way of saying thank you... By markBookmark for later Reactions 0 reactions Comments0 comments
My life story with cfI was diagnosed with CF, two copies of delta f508 at two weeks of age; after I had a meconium ileostomy, several bad feet of intestines removed, appendix removed, and... By elizabethkBookmark for later Reactions 0 reactions Comments2 comments
CF Carrier with Daughter who passed away at age 26 from CFWhen I was young I had allergies to grass, mold, dust, cats, and dogs. In my 20’s I got allergy shots which helped and then took allergy pills as I... By 241250Bookmark for later Reactions 0 reactions Comments0 comments
Survivors GuiltWith a diagnosis of only 1 gene at the of 10, mom and the family seemed at ease. Moving forward to 17 and the doctors somehow found the second gene... By drum.nerdBookmark for later Reactions 0 reactions Comments1 comments
CF Carrier symptomsI found out a few months ago (in my thirties) I am a CF carrier. Whilst I know that carrier symptoms cannot begin to compare to those who have CF... By Lou1686Bookmark for later Reactions 0 reactions Comments5 comments
Johanna CF patient MomMy daughter's pancreas produces enough enzymes but apparently sometimes (not predictable) the pancreas produces enzymes in a too thick mucus that can’t pass to the bladder therefore it stays in... By johannaBookmark for later Reactions 0 reactions Comments1 comments
My niece is now in her 40'sMy beautiful niece was diagnosed with cystic fibrosis when she was four years old. And she has been hospitalized many times. However, she has always been a fighter and hasn't... By lcwelkeBookmark for later Reactions 0 reactions Comments1 comments
Cystic fibrosis carrierI always experienced from childhood continuous bronchitis attacks that lasted up to my early thirties but never was I given an explanation by doctors why was I getting so sick... By MarieBookmark for later Reactions 0 reactions Comments0 comments
'The Miserable Drug'I purposefully took my time considering whether or not to publish a recent blog about my experience with Trikafta/Kaftrio as expectations of the drug are still so high and I’ve... By short4nowtBookmark for later Reactions 0 reactions Comments1 comments
MeI was diagnosed with CF at about 7 months old. And only have been hospitalized 2 times since birth. And the last time was 31 years ago. I grow up... By littlewesterBookmark for later Reactions 0 reactions Comments0 comments
Diagnosed with CF @ 59I had Acute & Chronic pancreatitis was often sick. But no doctor ever suspected CF. Not even when I had a lung abscess from non-resistant staphylococcus aureus. Then in 2016... By lynnpoeBookmark for later Reactions 0 reactions Comments0 comments
Trikafta miracleI'm Rosi and I'm a 22-year-old CF warrior from Bulgaria. In 2018 I was put on the waiting list for a lung transplant. Till 2017 most Bulgarians were undergoing this... By rositsamalinovaBookmark for later Reactions 0 reactions Comments1 comments
My Time in QuarantineWhat is quarantine? Well, of course we don't want to get others' sick. So, in a way it is a humanitarian endeavor -- which I think is basically a good... By eliaslorBookmark for later Reactions 0 reactions Comments0 comments