Stories

When things get bad I have discovered “Quiet Time”. I typically shut off all noise, TV, radio, etc. I like to lay down, close my eyes and most of the...

When I’m feeling stressed or anxious, most of the time I turn to my dog. He’s my #1 supporter and my best friend. He knows how to really cheer me...

When cystic fibrosis or other things in life get overwhelming, it helps me to do something creative or calming like crocheting while watching a favorite show, coloring, watercolor painting, bracelet...

When I'm having a stressful, or bad day because of everything that comes with CF I enjoy making some hot tea, turning on some music, and just sitting still for...

Hello, I will be 50 in June. About 18 years ago when I would get hospitalized my pulmonary rehab person got me into drawing and coloring mandalas. She would teach...

Background: 55-year-old Canadian guy with CF. FEV1 42%. Pretty stable, but in the past few years a lot, and I mean a lot, more productive cough and more flare-ups that...

Hello, I am a 57-year-old woman, who was first diagnosed with a very rare form of CF. I was diagnosed at the age of 26. I then had to have...

It has taken me over 30 years, a Covid19 Pandemic & the gentle cattle prod of my friend and publisher to tell Cody's story... my way of saying thank you...

I was diagnosed with CF, two copies of delta f508 at two weeks of age; after I had a meconium ileostomy, several bad feet of intestines removed, appendix removed, and...

When I was young I had allergies to grass, mold, dust, cats, and dogs. In my 20’s I got allergy shots which helped and then took allergy pills as I...

With a diagnosis of only 1 gene at the of 10, mom and the family seemed at ease. Moving forward to 17 and the doctors somehow found the second gene...

I found out a few months ago (in my thirties) I am a CF carrier. Whilst I know that carrier symptoms cannot begin to compare to those who have CF...

My daughter's pancreas produces enough enzymes but apparently sometimes (not predictable) the pancreas produces enzymes in a too thick mucus that can’t pass to the bladder therefore it stays in...

My beautiful niece was diagnosed with cystic fibrosis when she was four years old. And she has been hospitalized many times. However, she has always been a fighter and hasn't...

I always experienced from childhood continuous bronchitis attacks that lasted up to my early thirties but never was I given an explanation by doctors why was I getting so sick...

I purposefully took my time considering whether or not to publish a recent blog about my experience with Trikafta/Kaftrio as expectations of the drug are still so high and I’ve...

I was diagnosed with CF at about 7 months old. And only have been hospitalized 2 times since birth. And the last time was 31 years ago. I grow up...

I had Acute & Chronic pancreatitis was often sick. But no doctor ever suspected CF. Not even when I had a lung abscess from non-resistant staphylococcus aureus. Then in 2016...

I'm Rosi and I'm a 22-year-old CF warrior from Bulgaria. In 2018 I was put on the waiting list for a lung transplant. Till 2017 most Bulgarians were undergoing this...

What is quarantine? Well, of course we don't want to get others' sick. So, in a way it is a humanitarian endeavor -- which I think is basically a good...