My Trikafta Experience in AustraliaOn Thursday morning, 11 August 2022, I started Trikafta. My lung function FEV1(%) is 55-60 and FEV1(L) 1.8L. In the past year I reached 66% at 2L but I wasn’t... By abbeykahui5 min readBookmark for laterReactions 0 reactions Comments0 comments
Spain or BustBefore my CF diagnosis (at age 67) I was hospitalized for 4 days on the usual antibiotics, nebulized medications, chest percussions and respiratory therapy visits. The steroid mania was at... By P Staes1 min readBookmark for laterReactions 0 reactions Comments0 comments
How I Lived My Life with CFCystic fibrosis (CF). I have been living with this disease from birth. It affects my life so much and hurts me. I was told it was a family illness which... By John121 min readBookmark for laterReactions 0 reactions Comments0 comments
My Health History with CFI was born in 1969 and adopted at 2 weeks old by my mother who was a nurse. I was diagnosed with CF at 18 months in 1970. I had... By hope4cure1 min readBookmark for laterReactions 0 reactions Comments0 comments
On the Road to Better HealthSo as you guys may know I posted about being in hospital for a number of months. The longest and scariest admission of my life! I hope that I, or... By Fightingforbreath3 min readBookmark for laterReactions 0 reactions Comments0 comments
30 Year WaitHello all. This is my story. I was really let down medically. 30 years ago, when I was 7 months pregnant with my second child, they was giving pregnant women... By Salsybar1 min readBookmark for laterReactions 0 reactions Comments0 comments
My Brother, My HeroMy baby brother was born with CF. He struggled as a child, teenager, and young adult. We were always told that he wouldn't live to be 16, but let me... By CommunityMember03d33a1 min readBookmark for laterReactions 0 reactions Comments0 comments
My Child's Trikafta FlareThe first year on Trikafta was the best my 9 year old has felt, but he picked up every germ a year and a half in. First, he got strep... By TeamTristan1 min readBookmark for laterReactions 0 reactions Comments1 comments
Cycling Across America with CFI was diagnosed with CF at birth, and currently am 44. I am lucky enough to be part of the evolution of changing treatments. If I look back 30-40 years... By CFCyclistAU2 min readBookmark for laterReactions 0 reactions Comments2 comments
A Day in the Life of a CF WarriorThis is just brief since I can have an attack at any time. So, I wake up at around 8:30am to take all my meds nebulizer, inhalers, vest, mental health... By Fightingforbreath1 min readBookmark for laterReactions 0 reactions Comments0 comments
One WishIf I was granted the ability to make one wish, what I would wish for would shock many people. I would wish for all CF patients around the world to... By Kadeem Morgan1 min readBookmark for laterReactions 0 reactions Comments1 comments
CFRDMy lungs are failing. I have CFRD now along with high blood pressure and high heart rates, I have found I am more tired, get no sleep, hurt a lot... By CommunityMember4026331 min readBookmark for laterReactions 0 reactions Comments0 comments
My quiet timeWhen things get bad I have discovered “Quiet Time”. I typically shut off all noise, TV, radio, etc. I like to lay down, close my eyes and most of the... By LeslieCF581 min readBookmark for laterReactions 0 reactions Comments0 comments
What helps me relax..When I’m feeling stressed or anxious, most of the time I turn to my dog. He’s my #1 supporter and my best friend. He knows how to really cheer me... By d.roysdon1 min readBookmark for laterReactions 0 reactions Comments0 comments
What Helps Me RelaxWhen cystic fibrosis or other things in life get overwhelming, it helps me to do something creative or calming like crocheting while watching a favorite show, coloring, watercolor painting, bracelet... By cftwin21 min readBookmark for laterReactions 0 reactions Comments1 comments
What Helps Me RelaxWhen I'm having a stressful, or bad day because of everything that comes with CF I enjoy making some hot tea, turning on some music, and just sitting still for... By CommunityMember1671 min readBookmark for laterReactions 0 reactions Comments0 comments
What helps me relax when Cf stresses me outHello, I will be 50 in June. About 18 years ago when I would get hospitalized my pulmonary rehab person got me into drawing and coloring mandalas. She would teach... By cfcndlelady1 min readBookmark for laterReactions 0 reactions Comments0 comments
Trikafta - first 3 daysBackground: 55-year-old Canadian guy with CF. FEV1 42%. Pretty stable, but in the past few years a lot, and I mean a lot, more productive cough and more flare-ups that... By Wurdy2 min readBookmark for laterReactions 0 reactions Comments3 comments
Diagnoised as an adult with rare form of cFHello, I am a 57-year-old woman, who was first diagnosed with a very rare form of CF. I was diagnosed at the age of 26. I then had to have... By Nyzki1 min readBookmark for laterReactions 0 reactions Comments0 comments
"Breathing Through A Straw" Cody & IIt has taken me over 30 years, a Covid19 Pandemic & the gentle cattle prod of my friend and publisher to tell Cody's story... my way of saying thank you... By mark1 min readBookmark for laterReactions 0 reactions Comments0 comments