Stories

I was diagnosed with CF, two copies of delta f508 at two weeks of age; after I had a meconium ileostomy, several bad feet of intestines removed, appendix removed, and...

When I was young I had allergies to grass, mold, dust, cats, and dogs. In my 20’s I got allergy shots which helped and then took allergy pills as I...

With a diagnosis of only 1 gene at the of 10, mom and the family seemed at ease. Moving forward to 17 and the doctors somehow found the second gene...

I found out a few months ago (in my thirties) I am a CF carrier. Whilst I know that carrier symptoms cannot begin to compare to those who have CF...

My daughter's pancreas produces enough enzymes but apparently sometimes (not predictable) the pancreas produces enzymes in a too thick mucus that can’t pass to the bladder therefore it stays in...

My beautiful niece was diagnosed with cystic fibrosis when she was four years old. And she has been hospitalized many times. However, she has always been a fighter and hasn't...

I always experienced from childhood continuous bronchitis attacks that lasted up to my early thirties but never was I given an explanation by doctors why was I getting so sick...

I purposefully took my time considering whether or not to publish a recent blog about my experience with Trikafta/Kaftrio as expectations of the drug are still so high and I’ve...

I was diagnosed with CF at about 7 months old. And only have been hospitalized 2 times since birth. And the last time was 31 years ago. I grow up...

I had Acute & Chronic pancreatitis was often sick. But no doctor ever suspected CF. Not even when I had a lung abscess from non-resistant staphylococcus aureus. Then in 2016...

I'm Rosi and I'm a 22-year-old CF warrior from Bulgaria. In 2018 I was put on the waiting list for a lung transplant. Till 2017 most Bulgarians were undergoing this...

What is quarantine? Well, of course we don't want to get others' sick. So, in a way it is a humanitarian endeavor -- which I think is basically a good...

I had the perfect 2019 - Just married the love of my life and began our hopeful journey into parenthood. After 6 months of trying, we decided to get genetic...

My son Mark was diagnosed in 1976 and passed away from Cystic Fibrosis in 1980. There was very little treatment available for CF patients at that time and very few...

First off I want to say my heart goes out to ALL battling CF survivors and loved ones that were taken to soon! I had 3 brothers with CF, my...

My 12-year-old daughter was recently diagnosed with Pancreatic CF. It seems that her case is very rare. We are struggling to find an ideal diet for her. She has had...

I wasn't diagnosed with CF and bronchiectasis till I was 26 years old, I am now 34. All my life, I was always the fun, energetic, out-going, down to earth...

In a blood test on the mother of my grandsons while she was pregnant we were told the twin babies had markers for CF. Twin boys were born on June...

I had breathing issues from the time I was 9. I had my ups and downs. In my late teens, I was told I had Bronchiectasis. In my late 30s...

Until I read about salty skin, I never put it all together! Brain fog, constant sinus infections, my throat is always making me cough, normally at night and mornings, my...