Balancing a CF Diet and Toddler PickinessCystic fibrosis presents many daily physical, mental, and emotional challenges for patients and caregivers. As a CF caregiver, one of the most...reactions1comment
Allowing Our Child to Experience NormalFinding out that your baby has CF is such a scary, unsettling time. Your mind goes to the one thing that you...reactions2comments
Loving Your Care CenterOur first visit to our care center, like most parents of a child with cystic fibrosis, was not pleasant. I vaguely remember...reactions1comment
Our Son Can Not Have ChildrenIt was after our son's second hernia repair surgery that it was confirmed. The nurse came out to the waiting area (not...reactionscomments
Our Cleaning And Sanitizing RegimenBefore having a child with cystic fibrosis, I never realized how much attention towards cleaning and sanitization is necessary to keep patients...reactionscomments
What I Want The Anti-Maskers To KnowImagine you could have a place in preventing a tragic incident from occurring. Think about how wonderful it could be if you...reactionscomments
How CF Has Affected Our Family Dynamic It is a challenge for me to remember two things: what life was like before being a parent, and what life was...reactionscomments
The Sweat Test: Confirming Your Child's DiagnosisReceiving a phone call that your new child's newborn screening detected cystic fibrosis can be a frightening situation. Your doctor will probably...reactionscomments
Clearing The Fog: Advice For New CF ParentsWhether it is your first child or your fourth, a new baby brings physical, mental, and emotional exhaustion. Mothers are dealing with...reactions1comment
Cystic Fibrosis and MasksI was recently scrolling through Instagram and a post caught my eye. It was made by someone with thousands of followers and...reactions1comment
Choosing To Send Our Daughter To Daycare: Part IOur daughter, Margo, has been in daycare since she was four months old. As two working parents, daycare was always a given...reactionscomments
A Day In The Life: Pre-Teen Caregiver EditionWhen our son was first diagnosed with CF, what began as a new parent schedule shifted gears to a caregiver schedule. Everything...reactionscomments
Caregiver Resources: Where Caregivers Can Go for SupportMillions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report...reactionscomments
CF and Caregiver AnxietyI cannot think of a time that I was not anxious. I believe it is now a part of who I am...reactionscomments
My Journey To Becoming A CF Parent: Part IIRead Part I here. I will never forget the day we received the phone call. It was a Wednesday, and Rhett and...reactionscomments
Community Views: How Does Being a Caregiver Impact Your Life?Most of us know what a caregiver does, but not everyone fully understands what it is like to be a caregiver until...reactions1comment
The CF Caregiver: An Honest Morning RoutineIt's just about impossible to keep a steady daily routine when you have a baby with cystic fibrosis (or a baby at...reactions2comments
With Our Son, CF Might Be the Least of Our ProblemsAs I watch my 20-month-old son spin around with his eyes closed, laughing the whole time and blissfully – maybe purposefully? –...reactionscomments
Please Don't Give Me "Sad Face"When you give me that look I know you mean well. I know you’re trying to show me that you sympathize. I...reactionscomments
Why Advocate?Advocacy, even for CF, used to be as foreign to me as most of the intricacies of the federal government. However, as...reactionscomments
