Out of NowhereI think you would probably agree with me when I say that being a caregiver to someone with CF is really just...reactions1comment
Balancing a CF Diet and Toddler PickinessCystic fibrosis presents many daily physical, mental, and emotional challenges for patients and caregivers. As a CF caregiver, one of the most...reactions1comment
Why Advocate?Advocacy, even for CF, used to be as foreign to me as most of the intricacies of the federal government. However, as...reactionscomments
Our Son Can Not Have ChildrenIt was after our son's second hernia repair surgery that it was confirmed. The nurse came out to the waiting area (not...reactionscomments
Our Cleaning And Sanitizing RegimenBefore having a child with cystic fibrosis, I never realized how much attention towards cleaning and sanitization is necessary to keep patients...reactionscomments
Should I Go For It? Dating Someone with CF (Part 1)Wow! That girl is hot! She is also super cool. She dances, sings, does comedy, she likes a lot of the things...reactions1comment
How CF Has Affected Our Family Dynamic It is a challenge for me to remember two things: what life was like before being a parent, and what life was...reactionscomments
The Sweat Test: Confirming Your Child's DiagnosisReceiving a phone call that your new child's newborn screening detected cystic fibrosis can be a frightening situation. Your doctor will probably...reactionscomments
Clearing The Fog: Advice For New CF ParentsWhether it is your first child or your fourth, a new baby brings physical, mental, and emotional exhaustion. Mothers are dealing with...reactions1comment
Managing a Hospital Stay as a CF CaregiverCystic fibrosis, in most instances, requires frequent hospital stays for everything from a “tune-up” to a full-blown lung exacerbation and much more...reactionscomments
My Journey To Becoming A CF Parent: Part IIRead Part I here. I will never forget the day we received the phone call. It was a Wednesday, and Rhett and...reactionscomments
With Our Son, CF Might Be the Least of Our ProblemsAs I watch my 20-month-old son spin around with his eyes closed, laughing the whole time and blissfully – maybe purposefully? –...reactionscomments
The CF Caregiver: An Honest Morning RoutineIt's just about impossible to keep a steady daily routine when you have a baby with cystic fibrosis (or a baby at...reactions2comments
Please Don't Give Me "Sad Face"When you give me that look I know you mean well. I know you’re trying to show me that you sympathize. I...reactionscomments
A CF Diagnosis: From One Parent to AnotherGoing back to that Friday afternoon in August 2008 is still difficult for me to do. I was fatigued. I had an...reactionscomments
Making Connections in the CF CommunityWhen I first had my daughter, one of the things that truly made me feel energized was connecting with other new moms...reactions4comments
Caregiver Resources: Where Caregivers Can Go for SupportMillions of people are caring for loved ones who are sick or disabled. In fact, some 25 percent of U.S. adults report...reactionscomments
Allowing Our Child to Experience NormalFinding out that your baby has CF is such a scary, unsettling time. Your mind goes to the one thing that you...reactions2comments
Loving Your Care CenterOur first visit to our care center, like most parents of a child with cystic fibrosis, was not pleasant. I vaguely remember...reactions1comment
What I Want The Anti-Maskers To KnowImagine you could have a place in preventing a tragic incident from occurring. Think about how wonderful it could be if you...reactionscomments
