Preparing For A Colonoscopy When You Have Cystic FibrosisColonoscopies are important in helping to screen and prevent colon cancer for everyone, but especially so for those with cystic fibrosis (CF). A colonoscopy allows the doctor to examine the... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Healthcare Obstacles & the LGBTQ+ CommunityEditor’s Note: LGBTQ+ stands for people who identify as lesbian, gay, bisexual, transgender, or queer. To learn more about gender identity, check out the interactive website The Genderbread Person. Have... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
The 6-Foot Rule for Cystic FibrosisIn early 2019, a movie began showing in theaters across the country called Five Feet Apart. The previews that aired on television showed two teenagers falling in love. Both of... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments6 comments
Clinical Trials as a Treatment OptionWhen you’re dealing with a major health issue or condition, it’s helpful to know that in addition to standard treatment, complementary or alternative medicine, clinical trials may provide another treatment... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
10 Things You Should Know About Clinical TrialsThousands of clinical trials occur each year. Learning about clinical trials can feel like you are learning a new language. The good news is that there are lots of resources... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
What is a Metered-Dose Inhaler and How Does it Work?If you take any inhaled respiratory medications, chances are you take them with a metered-dose inhaler, which is also referred to as an MDI. An MDI is a pressurized canister... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
The Clinical Trial Consent Form: Understanding Your Rights & ResponsibilitiesInformed consent is the term that signifies a person has been given information regarding all possible consequences for a treatment, including both potential risks and benefits. While informed consent frequently... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Cystic Fibrosis-Related Arthritis: Who, What, Why, and How?As people with cystic fibrosis continue to live longer, healthier lives additional complications arise and require care alongside typical CF routines. One of those complications is cystic fibrosis-related arthritis (CFA). CFA... By Janeil Whitworth3 min readBookmark for laterReactions0reactionsComments0 comments
Colorectal Cancer and Cystic FibrosisAdvances in the understanding and treatment of cystic fibrosis (CF) have led to longer life expectancies than ever before. This is a positive development within the world of CF. But... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Will I Need to Pay to Be in a Clinical Trial?Clinical trials can provide an opportunity for patients to receive the latest treatment, provide a new treatment option for those whose previous treatment didn’t work, and allow patients to be... By Editorial Team 2 min readBookmark for laterReactions0reactionsComments0 comments
Types of CFTR Modulators: Correctors, Potentiators, and AmplifiersCystic fibrosis (CF) is a disease caused by genetic mutations (changes) in a specific gene called the cystic fibrosis transmembrane conductor regulator (CFTR). When the CFTR proteins do not form... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
5 Questions to Ask Yourself Before Participating in a Clinical TrialMaking decisions can be tough, especially when they relate to your health! One decision you may face is whether or not participating in a clinical trial is right for you... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
PICC Lines and Ports for People With CFPeople with cystic fibrosis (CF) often need treatment with IV (intravenous) medications, most frequently antibiotics. Vascular access devices, including peripherally inserted central catheters (PICCs) and ports, permit ongoing access to... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Not Always a Placebo! Types of Clinical TrialsWhen many people think of clinical trials, they may think of testing a new experimental drug or taking a placebo pill. But, not all clinical trials involve treatment! Even among... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
What Is Antibiotic Resistance and How Is It Harmful to People With CF?Antibiotics are vital medicines for many people. They are drugs that fight infections caused by bacteria, by either killing the bacteria or making it harder for the bacteria to multiply... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
What It Means To Be A CarrierCystic fibrosis (CF) is a hereditary disease, which means individuals inherit genes that cause CF. CF causes changes in bodily secretions, particularly in the lungs and pancreas. By understanding the... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments8 comments
What to Expect at a Chest CT ScanCystic fibrosis (CF) is typically diagnosed by a sweat test or with genetic testing, but once a diagnosis has been made, a chest CT scan (also commonly referred to as... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
Clinical Trial ParticipationEvery clinical trial is designed to look at a specific population, so each participant is required to have certain traits (eligibility criteria) in order to take part in the study... By Editorial Team 3 min readBookmark for laterReactions0reactionsComments0 comments
The Microbiome and Cystic FibrosisIn recent years, scientists have become increasingly interested in our microbiome and how it impacts many conditions, from gastrointestinal issues to neurological problems, and beyond. A growing body of research... By Editorial Team 4 min readBookmark for laterReactions0reactionsComments0 comments
Clinical Trial TerminologyThere are several terms that are commonly used when discussing clinical trials. Here are some that come up often:Adverse event: an undesirable experience associated with the use of a medical... By Editorial Team 1 min readBookmark for laterReactions0reactionsComments0 comments
