These rules apply to all activity on Cystic-Fibrosis.com or Health Union operated properties, including but not limited to the website, Cystic-Fibrosis.com Facebook pages, Instagram, etc. The term “activity” includes, but is not limited to posts, comments, replies, direct messages, status updates.
We encourage open conversation within Cystic-Fibrosis.com – it is our goal to create the best and largest online community of experts and patients dedicated exclusively to cystic fibrosis. But please be courteous, and stay on topic. We realize that discussions around healthcare can be sensitive and sometimes emotional, and disagreement is okay. However, all activity must be respectful, non-inflammatory, and non-threatening.
The content of Cystic-Fibrosis.com is intended for users 13 years of age or older. If you are under the age of 13, you are not permitted to register as a member of Cystic-Fibrosis.com.
Your activity (which includes, but is not limited to posts, comments, replies, direct messages, status updates) may be edited or deleted at the sole discretion of Cystic-Fibrosis.com moderators if it does not comply with the following community rules:
- Activity must relate to the subject of cystic fibrosis or living with cystic fibrosis. Posts completely unrelated to this topic may be deleted.
- Conversations about religion, sex, and politics should be in the context of cystic fibrosis and must not be offensive or inflammatory. For example, talking about legislation that affects a person living with cystic fibrosis is fine; making remarks about a specific politician or political group is not.
- Activity that promotes, encourages, coordinates, or provides instructions for harmful activities, such as suicide, self-injury, or eating disorders, is not permitted and will be removed.
- Activity cannot contain any personal contact information such as an e-mail address, physical/mailing address or phone number. Please remember that Cystic-Fibrosis.com, like the entire Internet, is discoverable by search engines, etc.
- Activity must be written in English; we can only moderate comments written in English.
- Activity cannot offer medical advice of any kind.
- Activity cannot encourage any illegal activity. Posts that discuss illegal activity but do not encourage it may be allowed if they pertain to the conversation at hand as well as to cystic fibrosis.
- Activity cannot include solicitations of any kind, any nudity or otherwise explicit content.
- Messaging many community members at once, sending repeated messages, and/or sending any form of unwelcome messaging is not permitted. Continued violation of this rule may result in your account being closed and banned from the site. Content copied from another person or site must be fully referenced and credited to the original author. If you’re not sure, don’t use it.
- Activity cannot be commercial in nature or contain any direct or indirect solicitations. Posts cannot promote the sale of anything, ever. We do not allow users to offer to sell, barter or trade any items of any kind. This including solicitations to participate in legal actions, fundraisers, offers to sell a product or service or participate in surveys, studies, invitations to join closed/private groups, etc., without the prior approval of cystic fibrosis. Oh, and user names can’t be commercial, either. User names like “MyProductIsTheBest” will be deleted
- Petitions to advocate for community members based on the condition, that does not involve commercial interest, may be allowed.
- All user activity, including posts within the forums, articles, or stories, are viewable to the public and are visible to search engines. Users are able to edit their posts within the forums. However, users are not able to edit their comments on an article or story once that comment has been posted to the site.
- Users must only post information that is true and factually correct, to the best of their knowledge.
- All activity must be respectful and non-inflammatory. Personal attacks and/or bullying moderators, bloggers, writers or fellow community members will not be tolerated. Please be careful about making derogatory statements or accusations about others by name, including other community members, employers, physicians, etc. While you should feel free to speak your mind, remember that you are accountable for any written statements you make. Any post that can be considered libel may be deleted.
- Activity involving multiple comments, direct messages, posts, etc. of the same content (i.e.: posting the same article multiple times) or posting multiple articles with no context can be interpreted as spam and may be deleted.
- Profanity should be used sparingly and in the context of living with cystic fibrosis as some in the community may find coarse language offensive. Moderators retain the right and discretion to edit and delete such content.
- Community members in clinical trials are asked to respect and adhere to the guidelines of their trial protocol, with regards to communicating information about the trial. Some clinical trials have rules that ask participants not to share information, such as reactions to medications, until the trial has been completed. While we encourage discussion about participation in clinical trials and recognize it is important for people to share their experiences, certain blinded studies require participants not to disclose symptoms or details to anyone other than their health care professionals, as not to bias the study or other study participants.
- We do not allow nudity or sexual content on our platform unless it specifically refers to living with cystic fibrosis. When warranted, we report violative content to the National Center for Missing & Exploited Children (NCMEC) and/or other relevant legal authorities.
Individuals who violate these rules may have their posting privileges revoked without warning.
Last updated March 02, 2021