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Read conversations, start a discussion, and connect with others about cystic fibrosis.

weight loss

15 year old all of sudden started lossing weight never loss weight before weights 153 was weighting 159...

EXPLORING CYSTIC FIBROSIS: GASTROINTESTINAL CHALLENGES, MENTAL HEALTH IMPACTS, AND INNOVATIVE TREATMENTS"

Cystic fibrosis (CF) is a hereditary rather inheritable mess and disturbance that exert influence on several organs. First and foremost the lungs and digestive system gets affected first.It is caused...

Best types of digestive enzymes

I’m a VF carrier and have pancreatic insufficiency. I haven’t been able to resolve my digestive issues fully with prescription enzymes (tried creon, zenpep and now vital nutrients pancreatic enzymes)...

hii

So I got cystic fibrosis and I've always wondered:why can't I smell?? I cant smell anything! it really sucks bc people are like: "oh my gosh that steak smells soooo...

My breathing and being in pain

I have alots of trouble breathing some days I have to make myself do a little house work but sometimes I think I'm going in circle and not seem to...

Carriers pain, cramping, gas, and constipation diarrhoea kidneys and duct inflamation

My elderly parent in the family with CF ( but has never been tested for carrier status ) As I understand it CF carriers, especially the elderly pancreas do not...

How Old Were You When You Were Diagnosed?

I'm just curious because I was diagnosed when I was only 6 months old, but my brother was diagnosed at 4. So, when were you (or your loved one) diagnosed...

Tilting therapy bed for physio for CF

I have a tilting bed supplied specifically for CF physio, but my boys only used it twice as they preferred the wedge on the floor. If anyone would like it...

General friendly question.

How is everyone doing?...

New to Trikafta-please respond

Hi. I just started taking Trikafta a week ago after the sickest year of my life. I started it while on levaquin and doxy. I culture pseudomonas and recently had...

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