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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Travelling

I’m going backpacking around Asia and was wondering if anyone has been and if so what travel insurance is good and were you able to take all your medication with...

Fill in the blank: ___________ is something that only someone with CF would understand.

Share something that only those living with CF of caring for a loved one with CF would truly understand. Let's raise awareness by talking about topics that are uniquely related...

Transplant tests I NEED TO TALK with someone who understands.

Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant facility. And at that appointment, they discussed about...

Trikafta? Need better I formation and diet for cystic fibrosis!

Hope to hear back!...

Help. Possible adult Cystic Fibrosis

Funds for Needy People

Hi, This is Jay, my daughter is 12th grader raised funds to use equipment donation or treatment care for Cystic Fibrosis. could you please let me know if there are...

CF Care is Awful while struggling with Lungs

I am close to a CFF-approved care center but the care is awful... I was a case number and not much more to them. I tried Trikafta but my liver...

Trikafta side effects

Hi, Just curious on who has had to stop trikafta and what your side effects were on the medication and how you feel after discontinuing trikafta? I'm 38 years old...

Carrier plus allele - what am I called?

Hi all - I hope this question isn’t too obvious. Searching has failed me. I’m a CF carrier with one full CFTR gene, but my second gene has an allele...

Coughing in the morning

I have a 6 month old, he was diagnosed with CF just before Christmas. Is it normal for him to have a cough in the morning when he wakes up?...

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