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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Benefits PIP

Whilst having CF is there only two benefits you can claim i.e p.i.p and ESA or is there other things and grants...

Newbie´s questions

Hello good day,im newbie! Do you have pain in your neck or near your neck? Which doctor diagnosed the disease? Did your...

Seeking perspectives on genetic engineering and cystic fibrosis

Good evening, I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project...

Medicine in Israel

Does anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out...

Please help I need insurance advice

Hello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting...

How many of you do IV antibiotics at home?

It’s a subject that differs with a lot of patients especially those living in the states when it comes to insurance (I’m...

Best centers for Atypical Adult Onset Diagnosis

I am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that...

CF In the elderly

I am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...

cystic fibrosis and celiac disease

Please help. My 20 year old daughter has CF and celiac but is struggling with digestive issues. The availability of creon 35...

My son Joshua

Cf took my beloved child at 27 yrs 8 yrs ago. I still suffer & cry....

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