Carrier plus allele - what am I called?Hi all - I hope this question isn’t too obvious. Searching has failed me. I’m a CF carrier with one full CFTR gene, but my second gene has an allele...Reactions 0 reactions Comments1 repliesDiagnosis
Coughing in the morning I have a 6 month old, he was diagnosed with CF just before Christmas. Is it normal for him to have a cough in the morning when he wakes up?...Reactions 0 reactions Comments3 replies
Do You Know That Your Experience With CF Matters?Seriously, it does! When you share your personal CF experience, you help others learn more about what life is like living with CF. The more we talk about the challenges...Reactions 0 reactions Comments0 replies
Trikafta coverage Hi. I'm on Trikafta and since my job changed prescription plans, my Trikafta is a 4000.00 copay. I have good health insurance and had Benecard for my prescriptions and only...Reactions 0 reactions Comments0 repliesTrikaftaCost
Getting older with cfI'm nearly 46 Every1 is talking about my 50th The doc told my dad when I was born she won't get to 5 yrs Now we have the magic pills...Reactions 0 reactions Comments26 replies
Has anyone ever experienced being left out of a will because you had CF?Has anyone ever been left out of inheriting anything because you have CF and your relative believe "your just going to pass away any way" or "they aren't long for...Reactions 0 reactions Comments0 repliesDepressionCopingCost
Disruptive Behavior 11 year old granddaughter has over the course of the last year developed narcissistic and disruptive behavior. In some cases hurting others in her class Discipline is not helping curb...Reactions 0 reactions Comments3 replies
CF In the elderlyI am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...Reactions 0 reactions Comments14 repliesAwareness
CF GutHi All, I am 61 years old, diagnosed with CF at age 5 and am 20 years post bilateral lung transplant. I have struggled with my gut my whole life...Reactions 0 reactions Comments2 repliesCoping
ConstipationCan anyone help me with how many Creon 36000 they take with meals and snacks. I’ve noticed severe constipation the past year or so. Maybe it’s the trikafta or me...Reactions 0 reactions Comments5 replies