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Read conversations, start a discussion, and connect with others about cystic fibrosis.

My son Joshua

Cf took my beloved child at 27 yrs 8 yrs ago. I still suffer & cry....

Creon availability

Hi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South Africa and around the world experiencing problems? What...

Diagnosis Shock

I have recently been diagnosed with late onset CF. I spent the first week trying to get my head around the news. I am receiving excellent care and navigating my...

What are some tips to gain weight on Trikafta

Hello everybody! So I have a rare mutation that Trikafta wasn’t approved for, but my doctor took a chance on me and I’m so glad he did!! My health has...

Atypical

I was diagnosed with atypical CF which has caused male infertility due to lack of vas deferens. Was told as a kid it was asthma but have dealt with lung...

Hair loss

I'm a woman in my 40s with CF. I'm on a modulator. Recently I have started having my hair fall out. It's coming out in clumps and filling out my...

Things I've Experienced as a Carrier

Through 23 and me I know I am a CF carrier. I know it came from my mother's side. My primary care physician was not aware that carriers could have...

Finding Out I'm A CF Carrier

I was diagnosed as a CF carrier about 5 years ago after my son, and daughter-in-law had genetic testing when she became pregnant. They found out that both of them...

I wonder how many people are carriers & only find out after genetic testing during pregnancy?

I have had asthma, eczema & allergies from an early age. My brother has asthma & seasonal allergies. My sister was diagnosed with CF only when she was in her...

Sweat Test Results

My son has went through 3 sweat tests by the age of 2 months..first two didn’t collect enough sweat and the second test came back as <10. Not too sure...

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