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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Best centers for Atypical Adult Onset Diagnosis

I am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that could be indicative of CF, but requires further...

CF In the elderly

I am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...

cystic fibrosis and celiac disease

Please help. My 20 year old daughter has CF and celiac but is struggling with digestive issues. The availability of creon 35 has impacted her negatively. She can only get...

My son Joshua

Cf took my beloved child at 27 yrs 8 yrs ago. I still suffer & cry....

Creon availability

Hi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South Africa and around the world experiencing problems? What...

Diagnosis Shock

I have recently been diagnosed with late onset CF. I spent the first week trying to get my head around the news. I am receiving excellent care and navigating my...

What are some tips to gain weight on Trikafta

Hello everybody! So I have a rare mutation that Trikafta wasn’t approved for, but my doctor took a chance on me and I’m so glad he did!! My health has...

Atypical

I was diagnosed with atypical CF which has caused male infertility due to lack of vas deferens. Was told as a kid it was asthma but have dealt with lung...

Hair loss

I'm a woman in my 40s with CF. I'm on a modulator. Recently I have started having my hair fall out. It's coming out in clumps and filling out my...

Things I've Experienced as a Carrier

Through 23 and me I know I am a CF carrier. I know it came from my mother's side. My primary care physician was not aware that carriers could have...

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