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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Do You Know That Your Experience With CF Matters?

Seriously, it does! When you share your personal CF experience, you help others learn more about what life is like living with CF. The more we talk about the challenges...

Trikafta coverage

Hi. I'm on Trikafta and since my job changed prescription plans, my Trikafta is a 4000.00 copay. I have good health insurance and had Benecard for my prescriptions and only...

Getting older with cf

I'm nearly 46 Every1 is talking about my 50th The doc told my dad when I was born she won't get to 5 yrs Now we have the magic pills...

Has anyone ever experienced being left out of a will because you had CF?

Has anyone ever been left out of inheriting anything because you have CF and your relative believe "your just going to pass away any way" or "they aren't long for...

Disruptive Behavior

11 year old granddaughter has over the course of the last year developed narcissistic and disruptive behavior. In some cases hurting others in her class Discipline is not helping curb...

CF Gut

Hi All, I am 61 years old, diagnosed with CF at age 5 and am 20 years post bilateral lung transplant. I have struggled with my gut my whole life...

Constipation

Can anyone help me with how many Creon 36000 they take with meals and snacks. I’ve noticed severe constipation the past year or so. Maybe it’s the trikafta or me...

What type of articles are you interested in seeing more of?

Are there any CF-related topics you want to learn more about? Let us know by sharing here....

Support

I need to talk to someone badly, i was out with my support worker it was freezing cold i forgot to put my oxygen on and didnt get wnough time...

Bronchoscopy--what to expect?

Hi everyone, I am having a bronchoscopy done to get a better idea of what is happening in my lungs following a CT scan. Have you had one done? What...

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