EXPLORING CYSTIC FIBROSIS: GASTROINTESTINAL CHALLENGES, MENTAL HEALTH IMPACTS, AND INNOVATIVE TREATMENTS"Cystic fibrosis (CF) is a hereditary rather inheritable mess and disturbance that exert influence on several organs. First and foremost the lungs and digestive system gets affected first.It is caused...reactions6repliesGI SymptomsMental HealthTips & Advice
Best types of digestive enzymesI’m a VF carrier and have pancreatic insufficiency. I haven’t been able to resolve my digestive issues fully with prescription enzymes (tried creon, zenpep and now vital nutrients pancreatic enzymes)...reactions1replyGI Symptoms
hiiSo I got cystic fibrosis and I've always wondered:why can't I smell?? I cant smell anything! it really sucks bc people are like: "oh my gosh that steak smells soooo...reactions1replyTips & AdviceCoping
My breathing and being in painI have alots of trouble breathing some days I have to make myself do a little house work but sometimes I think I'm going in circle and not seem to...reactions1reply
Carriers pain, cramping, gas, and constipation diarrhoea kidneys and duct inflamationMy elderly parent in the family with CF ( but has never been tested for carrier status ) As I understand it CF carriers, especially the elderly pancreas do not...reactions1replyCarriersGI Symptoms
How Old Were You When You Were Diagnosed?I'm just curious because I was diagnosed when I was only 6 months old, but my brother was diagnosed at 4. So, when were you (or your loved one) diagnosed...reactionsrepliesDiagnosis
Tilting therapy bed for physio for CFI have a tilting bed supplied specifically for CF physio, but my boys only used it twice as they preferred the wedge on the floor. If anyone would like it...reactionsrepliesDaily Treatment
General friendly question.How is everyone doing?...reactions1replyCopingFriends & FamilyWork & Employment
New to Trikafta-please respondHi. I just started taking Trikafta a week ago after the sickest year of my life. I started it while on levaquin and doxy. I culture pseudomonas and recently had...reactions2repliesTrikafta
when a cf child reaches 18 and transitions into being an adultMy husband and I would love to hear from parents/caregivers with a CF child transitioning into the adult world. We are nervous about all the changes we're facing. Insurance is...reactions1replyCaregiving