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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Transplant tests I NEED TO TALK with someone who understands.

Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant facility. And at that appointment, they discussed about...

Trikafta? Need better I formation and diet for cystic fibrosis!

Hope to hear back!...

Help. Possible adult Cystic Fibrosis

Funds for Needy People

Hi, This is Jay, my daughter is 12th grader raised funds to use equipment donation or treatment care for Cystic Fibrosis. could you please let me know if there are...

CF Care is Awful while struggling with Lungs

I am close to a CFF-approved care center but the care is awful... I was a case number and not much more to them. I tried Trikafta but my liver...

Trikafta side effects

Hi, Just curious on who has had to stop trikafta and what your side effects were on the medication and how you feel after discontinuing trikafta? I'm 38 years old...

Carrier plus allele - what am I called?

Hi all - I hope this question isn’t too obvious. Searching has failed me. I’m a CF carrier with one full CFTR gene, but my second gene has an allele...

Do You Know That Your Experience With CF Matters?

Seriously, it does! When you share your personal CF experience, you help others learn more about what life is like living with CF. The more we talk about the challenges...

Trikafta coverage

Hi. I'm on Trikafta and since my job changed prescription plans, my Trikafta is a 4000.00 copay. I have good health insurance and had Benecard for my prescriptions and only...

Getting older with cf

I'm nearly 46 Every1 is talking about my 50th The doc told my dad when I was born she won't get to 5 yrs Now we have the magic pills...

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