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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Travelling

I’m going backpacking around Asia and was wondering if anyone has been and if so what travel insurance is good and were...

Transplant tests I NEED TO TALK with someone who understands.

Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant...

Trikafta? Need better I formation and diet for cystic fibrosis!

Hope to hear back!...

Help. Possible adult Cystic Fibrosis

Funds for Needy People

Hi, This is Jay, my daughter is 12th grader raised funds to use equipment donation or treatment care for Cystic Fibrosis. could...

CF Care is Awful while struggling with Lungs

I am close to a CFF-approved care center but the care is awful... I was a case number and not much more...

Trikafta side effects

Hi, Just curious on who has had to stop trikafta and what your side effects were on the medication and how you...

Carrier plus allele - what am I called?

Hi all - I hope this question isn’t too obvious. Searching has failed me. I’m a CF carrier with one full CFTR...

Do You Know That Your Experience With CF Matters?

Seriously, it does! When you share your personal CF experience, you help others learn more about what life is like living with...

Trikafta coverage

Hi. I'm on Trikafta and since my job changed prescription plans, my Trikafta is a 4000.00 copay. I have good health insurance...

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