Please help I need insurance adviceHello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...Reactions0reactionsComments2 repliesCostLung TransplantInsurance & Disability
What are your favorite ways to de-stress?Whether you live with cystic fibrosis or care for someone living with CF, it's normal to feel overwhelmed from time to time. When feeling stressed or anxious, what are your...Reactions0reactionsComments11 replies
grievingI recieved a call from my pulmonologist , After discussing what has been happening with my most recent bouts of CF. the question of wether I could obtain a lung...Reactions0reactionsComments2 replies
Helpful friendly advice PLEASE one cf patient to another.Hello everyone. To try to make a long story short, I will try to be as non detailed as possible. This is sort of a question that is bothering me...Reactions0reactionsComments2 repliesLung TransplantResearch & Clinical TrialsTips & Advice
MedsHi all. I found out Thursday my LG has cf. She is 6 weeks old. We now have her creon, parafit we are waiting on and her flucloxicillin. Any tips...Reactions0reactionsComments1 repliesDaily Treatment
SweatI don't understand why I sweat so much . I can get up trying to clean and I get to sweating having trouble breathing . I just ask God to...Reactions0reactionsComments3 replies
My Amazing Sister with CFMy sister battled CF like a trooper for 52 years! She was my hero and was so hard to say goodbye two years ago. If anyone wants to hear her...Reactions0reactionsComments2 replies
Dietary TipsEating enough nutrients and calories each day can be challenging for children with CF. Share any tips you have on making sure your child eats enough while they're at school...Reactions0reactionsComments2 repliesDiet & Nutrition
Moving to wet climate I am moving from a very dry climate in AZ to a very wet climate coastal North Carolina. If you have experience with this, tell me your thoughts on humidity...Reactions0reactionsComments1 repliesTravel
Sweat test resultHello guys,im new here and i would like to ask a question that really stresses me out! My little boy had a sweat test and the value was 9.36 my...Reactions0reactionsComments1 repliesDiagnosisTips & Advice