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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Curious 🤔

I've seen a post on here saying marijuana/ I mean do CF people smoke that stuff and doesn't it effect them even more ??? I'm curious how that works 🤔...

Trikafta (Kaftrio) causing Bad Memory Loss?

Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...

Co parenting

Does anyone have any advice on co parenting with a baby with cf? I think she’ll have to live mainly with me as I am her primary care giver anyways...

Blood tests

Hello so I have to do some blood tests. Long story short, I went to go take my blood tests, and the phlebotomists say they are having trouble finding blood...

What do you wish others knew about being a caregiver or parent to someone with CF?

It can be challenging for people to understand what it's like caring for someone with cystic fibrosis. What do you wish others knew about your caregiving experience? Share below!...

A place to remember...

Over the years, many of us have lost loved ones to cystic fibrosis. Share your stories of those who are no longer with us as we celebrate their life and...

Featured

Does anyone remember Sammi's Story by Philippa Manning, 1993!?

I am a final year Sociology student with Cystic fibrosis. For one of my modules I am creating a documentary about my experience with CF. I was hoping to include...

Texting buddies CF pals

Anyone interested in staying connected and becoming friends over time sharing stories and just been a great support for one another and if and when give advice if ever needed...

Cf group chats

Would there be anyone who wants to group chat about cf and or regular cf lives? Especially the topic of bullying or lung transplant? Or even if anyone wants any...

My son with CF, CFRD, Neuropathy, and Liver Disease due to cf

My son was 6 months old dianosed with cf. Then the rest of the medical started. He is now 18 yrs old. On Trikafta since Nov 27, 2019. Since on...

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