Cystic fibrosis Recently my child gone ill frequently we had done genetic test, we found that he had a cystic fibrosis in that case we had a discussion with the doctor don’t...reactionsreplies
Dating Advicefinding life overwhelming now. I am out of hospital nearly 6 months. its a massive thing. posaitive but trying to adapt too life out side hospital. I was in hospital...reactionsreplies
Packing lots of new medications and equipment tipsSo what is the best way to pack all my medications and medical equipment in a small room I've been moved from my large room to a quite small room...reactions2replies
Carrier .. symptoms of cfHi everyone .I'm looking for some advice really .is anyone here a cf carrier displaying symptoms of cf .I think that I'm definitely getting some and it's concerning me...reactions6repliesCarriers
Cf chat groupsI wish there was a cf chat group where cf people can chat with each other and make cf friends if they wanted to. Especially since they aren't supposed to...reactions10repliesAwarenessDepressionFriends & Family
CF osteoprosisHello, so does anyone else find it so hard to keep your back straight. It's so hard for me because it's so tiring and take so much energy to keep...reactions5repliesCopingTips & AdviceDiet & Nutrition
TravellingI’m going backpacking around Asia and was wondering if anyone has been and if so what travel insurance is good and were you able to take all your medication with...reactions1reply
Transplant tests I NEED TO TALK with someone who understands.Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant facility. And at that appointment, they discussed about...reactionsrepliesDepressionLung TransplantTips & Advice
Trikafta? Need better I formation and diet for cystic fibrosis!Hope to hear back!...reactions4repliesTrikafta