CF osteoprosisHello, so does anyone else find it so hard to keep your back straight. It's so hard for me because it's so tiring and take so much energy to keep...Reactions0reactionsComments5 repliesCopingTips & AdviceDiet & Nutrition
TravellingI’m going backpacking around Asia and was wondering if anyone has been and if so what travel insurance is good and were you able to take all your medication with...Reactions0reactionsComments1 replies
Transplant tests I NEED TO TALK with someone who understands.Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant facility. And at that appointment, they discussed about...Reactions0reactionsComments0 repliesDepressionLung TransplantTips & Advice
Trikafta? Need better I formation and diet for cystic fibrosis!Hope to hear back!...Reactions0reactionsComments4 repliesTrikafta
Help. Possible adult Cystic Fibrosis Hello?...Reactions0reactionsComments2 repliesAwarenessDiagnosisDiet & Nutrition
Funds for Needy PeopleHi, This is Jay, my daughter is 12th grader raised funds to use equipment donation or treatment care for Cystic Fibrosis. could you please let me know if there are...Reactions0reactionsComments0 replies
CF Care is Awful while struggling with LungsI am close to a CFF-approved care center but the care is awful... I was a case number and not much more to them. I tried Trikafta but my liver...Reactions0reactionsComments1 repliesCopingInsurance & Disability
Trikafta side effectsHi, Just curious on who has had to stop trikafta and what your side effects were on the medication and how you feel after discontinuing trikafta? I'm 38 years old...Reactions0reactionsComments2 repliesCFTR-Related Metabolic Syndrome
Carrier plus allele - what am I called?Hi all - I hope this question isn’t too obvious. Searching has failed me. I’m a CF carrier with one full CFTR gene, but my second gene has an allele...Reactions0reactionsComments1 repliesDiagnosis
Do You Know That Your Experience With CF Matters?Seriously, it does! When you share your personal CF experience, you help others learn more about what life is like living with CF. The more we talk about the challenges...Reactions0reactionsComments0 replies