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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Has anyone ever experienced being left out of a will because you had CF?

Has anyone ever been left out of inheriting anything because you have CF and your relative believe "your just going to pass away any way" or "they aren't long for...

Disruptive Behavior

11 year old granddaughter has over the course of the last year developed narcissistic and disruptive behavior. In some cases hurting others in her class Discipline is not helping curb...

CF Gut

Hi All, I am 61 years old, diagnosed with CF at age 5 and am 20 years post bilateral lung transplant. I have struggled with my gut my whole life...

Constipation

Can anyone help me with how many Creon 36000 they take with meals and snacks. I’ve noticed severe constipation the past year or so. Maybe it’s the trikafta or me...

What type of articles are you interested in seeing more of?

Are there any CF-related topics you want to learn more about? Let us know by sharing here....

Support

I need to talk to someone badly, i was out with my support worker it was freezing cold i forgot to put my oxygen on and didnt get wnough time...

Bronchoscopy--what to expect?

Hi everyone, I am having a bronchoscopy done to get a better idea of what is happening in my lungs following a CT scan. Have you had one done? What...

Curious 🤔

I've seen a post on here saying marijuana/ I mean do CF people smoke that stuff and doesn't it effect them even more ??? I'm curious how that works 🤔...

Trikafta (Kaftrio) causing Bad Memory Loss?

Hi, I have been on Trikafta from June 2021. My lung function has went up 20%, and I generally feel a lot better. However my memory is starting to get...

Co parenting

Does anyone have any advice on co parenting with a baby with cf? I think she’ll have to live mainly with me as I am her primary care giver anyways...

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