heart damage due to lack of O2I was wondering if anyone elso out there , has had to go on meds to slow your heart from working too hard due to lack of O2? I have...Reactions 0 reactions Comments0 repliesSymptoms
Disability Have you applied for disability? What was the process like for you?...Reactions 0 reactions Comments2 repliesTips & Advice
PICC Line or Port?Do you have a PICC line or a port? Why did you make this choice? Would you change your decision?...Reactions 0 reactions Comments2 replies
Getting sickMy son has cf and every time the doctors take him off antibiotics he winds up back in the hospital. Has this happened to anyone else? The doctors don’t know...Reactions 0 reactions Comments7 repliesCaregivingDaily Treatment
Research on a new treatment for lung infections in patients with CFHi, I'm from a company doing research into a new, phage-based treatment for lung infections in CF patients and we'd really like to hear about your experiences being treated for...Reactions 0 reactions Comments1 replies
Pseudomanas Hi everyone, I have a beautiful 3 year old boy who as contracted this pseudomanas we started nebulized antibiotics in June and we finished them in September 4 weeks after...Reactions 0 reactions Comments2 replies
Working With CFHi everyone, I'm always curious what type of work other people with CF do? Are you able to work from home or have any accommodations? What do you love about...Reactions 0 reactions Comments0 repliesWork & Employment
Trikafta and Brain fog/headachesI am 42yo and began trikafta 3 years ago while in the drug study. I felt amazing at first and bumped up my fev1 from 40's to 60's. I did...Reactions 0 reactions Comments1 repliesTrikafta
The Challenges of Managing CFManaging cystic fibrosis can often require hours of treatment each day, hospital visits, etc. It's extremely challenging to manage CF, even when you're feeling well. Share any tips you have...Reactions 0 reactions Comments3 repliesDaily TreatmentCoping
catheter dressing recommendationHi all! As a caregiver, I had to do a lot of trial and error for medical supplies, especially catheter dressings. I came across this medical company based in Korea...Reactions 0 reactions Comments1 repliesCaregivingDaily TreatmentPICC Lines