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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Kaftrio and pseudomonas

Hello everyone. I hope all are keeping well. My son started kaftrio a month and a half ago today, he never had any 'purge' as they call it.... Where you...

Lifetime of Hill Rom Vest

Hi everyone, I am new at this forum and could not find any topic about Hill Rom Vest 105 system which is a crucial part of our daily care. What...

Your voice matters! Take our CF survey

Spreading awareness drives hope and change. Bring awareness to this rare disease and share your truth through our survey today! Whether you are a patient or a caregiver, your daily...

Far Apart, but Close in Heart

People living with cystic fibrosis are required to stay at least 6-feet apart from each other. Do you make an effort to stay connected with CFers other ways? If so...

Atypical CF

Hello, Atypical Cystic Fibrosis... I wonder if anyone can help please. I am 46 years old I have had bronchiectasis diagnosed in 2008 by HRCT after suffering symptoms all my...

Pneumonia

Hello. I’m a caregiver for my husband who was hospitalized last week with pneumonia, but he has a new ‘symptom’ that hasn’t happened before - memory loss. They said it...

New diagnosis / Any information / Kaftrio

Hi, my partner and I have just had our first child, (a little boy) and unfortunately he's been diagnosed with CF. He had meconium ileus at birth, very low enzyme...

CF Caregivers

Anyone who cares for a loved one with CF is absolutely incredible. The amount of time they dedicate to their loved one's health and happiness constantly impacts their lives. Let's...

Gut problems

I’m 52, was diagnosed at birth with CF. Last 1.5 years many issues with a regular blockage in left quadrant in intestines. Regularly do magnesium citrate to clean out (...

Cystic Fibrosis and Covid vaccine -15 year old

Hello, I am new to this forum and needed an outlet for my queries. I am the stepmother to a 15 year old boy with cystic fibrosis. His maternal mother...

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