Trikfta side effects I’ve been on Trikfta since 2019 and I’ve developed cataracts on both eyes. I’m 41 years old which I was told this normally happens in children, adolescents, and young adults...Reactions 0 reactions Comments14 repliesLung TransplantTrikaftaTips & Advice
Will you take our In America survey and help others understand the true impact of cystic fibrosis?The In America survey is now closed. To better understand the patient experience and realities of living with cystic fibrosis, we are fielding our Cystic Fibrosis In America survey. By...Reactions 0 reactions Comments0 repliesAwareness
Let's Talk Food! Food is an essential part of life, but it can be a complicated subject when you have CF. What foods do you or your loved one eat most to get...Reactions 0 reactions Comments21 repliesCaregivingDiet & Nutrition
DawnMy daughter Dawn had Cystic-Fibrosis. She was born in Oct of 64, and she lived for 32 years. Dawn passed in May of 95. She went to in CHOP Phila....Reactions 0 reactions Comments0 replies
FeaturedConnecting with Other CFersLet's talk about those CF connections! Do you feel like it is easier to talk about your disease with others that also have CF? How do you find others with...Reactions 0 reactions Comments25 replies
Cystic fibrosis Recently my child gone ill frequently we had done genetic test, we found that he had a cystic fibrosis in that case we had a discussion with the doctor don’t...Reactions 0 reactions Comments0 replies
Dating Advicefinding life overwhelming now. I am out of hospital nearly 6 months. its a massive thing. posaitive but trying to adapt too life out side hospital. I was in hospital...Reactions 0 reactions Comments0 replies
Packing lots of new medications and equipment tipsSo what is the best way to pack all my medications and medical equipment in a small room I've been moved from my large room to a quite small room...Reactions 0 reactions Comments2 replies
Carrier .. symptoms of cfHi everyone .I'm looking for some advice really .is anyone here a cf carrier displaying symptoms of cf .I think that I'm definitely getting some and it's concerning me...Reactions 0 reactions Comments6 repliesCarriers
Cf chat groupsI wish there was a cf chat group where cf people can chat with each other and make cf friends if they wanted to. Especially since they aren't supposed to...Reactions 0 reactions Comments10 repliesAwarenessDepressionFriends & Family