Anybody else plural here?Hello!! I just joined this website, but I was wondering if anybody else on here thinks they're plural? Plural as in a system! = ) I was js wondering if...Reactions0reactionsComments0 repliesMental HealthCoping
Just a Day in My Life Struggling Physically and MentallyHi, I joined this forum last year but until now I don't think I have posted anything about myself. I have talked to a few people here but it's been...Reactions0reactionsComments5 replies
Adult Onset Atypical Cystic FibrosisIn 2005, I had a severe case of black mold bronchitis. I went to a pulmonologist like I thought I should be tested. I had the sweat test done at...Reactions0reactionsComments1 replies
Seeking Urgent Help and Guidance for My BrotherMy younger brother, Nikunj, who is 18 years old, has been battling cystic fibrosis (CF) since he was diagnosed at the age of 9. His genetic mutation is R560S. Over...Reactions0reactionsComments1 repliesLung TransplantTips & AdviceDaily Treatment
Chit chat Well it's 2025 & it's been a long time since I were last on here and I've gone thru so much in the time that I've had a break from...Reactions0reactionsComments1 replies
Benefits PIP Whilst having CF is there only two benefits you can claim i.e p.i.p and ESA or is there other things and grants out there anyone knows about that could help...Reactions0reactionsComments1 repliesCostCoping
Newbie´s questionsHello good day,im newbie! Do you have pain in your neck or near your neck? Which doctor diagnosed the disease? Did your pancreas come out good or bad on the...Reactions0reactionsComments6 repliesDiagnosis
Seeking perspectives on genetic engineering and cystic fibrosisGood evening, I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project (EPQ) about public perceptions and ethical concerns surrounding...Reactions0reactionsComments0 replies
Medicine in IsraelDoes anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out of pocket....Reactions0reactionsComments0 repliesCost
Please help I need insurance adviceHello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...Reactions0reactionsComments2 repliesLung TransplantCostInsurance & Disability