Seeking perspectives on genetic engineering and cystic fibrosisGood evening, I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project (EPQ) about public perceptions and ethical concerns surrounding...reactionsreplies
Medicine in IsraelDoes anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out of pocket....reactionsrepliesCost
Please help I need insurance adviceHello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...reactions2repliesCostLung TransplantInsurance & Disability
How many of you do IV antibiotics at home?It’s a subject that differs with a lot of patients especially those living in the states when it comes to insurance (I’m in the UK) but I’m able to do...reactionsrepliesPalliative CareDaily TreatmentPorts
Best centers for Atypical Adult Onset DiagnosisI am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that could be indicative of CF, but requires further...reactions1replyTips & AdviceDiagnosisResearch & Clinical Trials
CF In the elderlyI am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...reactions14repliesAwareness
cystic fibrosis and celiac diseasePlease help. My 20 year old daughter has CF and celiac but is struggling with digestive issues. The availability of creon 35 has impacted her negatively. She can only get...reactions4repliesGI Symptoms
Creon availabilityHi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South Africa and around the world experiencing problems? What...reactions2repliesCopingMental HealthTips & Advice
Diagnosis ShockI have recently been diagnosed with late onset CF. I spent the first week trying to get my head around the news. I am receiving excellent care and navigating my...reactions1reply