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Read conversations, start a discussion, and connect with others about cystic fibrosis.

Packing lots of new medications and equipment tips

So what is the best way to pack all my medications and medical equipment in a small room I've been moved from my large room to a quite small room...

Carrier .. symptoms of cf

Hi everyone .I'm looking for some advice really .is anyone here a cf carrier displaying symptoms of cf .I think that I'm definitely getting some and it's concerning me...

Cf chat groups

I wish there was a cf chat group where cf people can chat with each other and make cf friends if they wanted to. Especially since they aren't supposed to...

CF osteoprosis

Hello, so does anyone else find it so hard to keep your back straight. It's so hard for me because it's so tiring and take so much energy to keep...

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Staying hydrated with CF

The weather is heating up! How do you make sure that you or your little CFer avoid dehydration while still having fun? Share your tips below!...

Housework

Hello, I'm not sure if any of you can relate but cf makes it hard to do house work. I mean, it's emberressing but the fact is right now, I'm...

Travelling

I’m going backpacking around Asia and was wondering if anyone has been and if so what travel insurance is good and were you able to take all your medication with...

Fill in the blank: ___________ is something that only someone with CF would understand.

Share something that only those living with CF of caring for a loved one with CF would truly understand. Let's raise awareness by talking about topics that are uniquely related...

Transplant tests I NEED TO TALK with someone who understands.

Long story short as I can make it. Our first transplant facility's surgeon left, so we got sent to another states transplant facility. And at that appointment, they discussed about...

Trikafta? Need better I formation and diet for cystic fibrosis!

Hope to hear back!...

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