Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Forums

Read conversations, start a discussion, and connect with others about cystic fibrosis.

Seeking perspectives on genetic engineering and cystic fibrosis

Good evening, I hope it’s okay to post this here—apologies if not! I’m a second-year college student working on a research project (EPQ) about public perceptions and ethical concerns surrounding...

Medicine in Israel

Does anyone know if Pulmozyme and TOBI are available for sale in Israel? Any idea of cost since will be paying out of pocket....

Please help I need insurance advice

Hello, I just got the saddening call yesterday that my transplant clinic is dropping me because my insurance was no longer accepting their clinic. I was devastated to say the...

How many of you do IV antibiotics at home?

It’s a subject that differs with a lot of patients especially those living in the states when it comes to insurance (I’m in the UK) but I’m able to do...

Best centers for Atypical Adult Onset Diagnosis

I am a 50 year old with gradual symptoms of CF and a genetic sequencing test showing 2 extremely rare genes that could be indicative of CF, but requires further...

CF In the elderly

I am newly diagnosed at 69 years old. I’m angry and happy and so emotional. Anyone my age with CF?...

cystic fibrosis and celiac disease

Please help. My 20 year old daughter has CF and celiac but is struggling with digestive issues. The availability of creon 35 has impacted her negatively. She can only get...

My son Joshua

Cf took my beloved child at 27 yrs 8 yrs ago. I still suffer & cry....

Creon availability

Hi all. In South Africa some of us are beginning to hear rumblings about a shortage of Creon. Are people in South Africa and around the world experiencing problems? What...

Diagnosis Shock

I have recently been diagnosed with late onset CF. I spent the first week trying to get my head around the news. I am receiving excellent care and navigating my...

Categories

Select a category to find topics that interest you.